Jenna's Journey fighting Moyamoya Disease
On February 28th, 2014 we took our 7yr old daughter Jenna to St Christopher's Hospital in Philadelphia for some tests. When the tests were complete they told us that Jenna was misdiagnosed and what they thought was Hemipelegic Migraines was actually a Rare disease called Moyamoya Disease and the "episodes" she was having were mini-strokes. The neurologist then told us our baby would need Brain surgery and the best place for her to have the surgery is Boston Children's Hospital because it is such a rare disease and BCH has a Moyamoya Team. We quickly got in touch with Dr Scott at BCH, the top Doctor for this type of surgery and overnighted him the test results. He told us that she needs Brain surgery on both sides of her brain, right away before anything happens. They are trying to clear his schedule since it is an 8hr operation.
We are asking for any type of donation, big or small, to help us pay for travel expenses and co-pays to get Jenna to Boston for her Brain surgery. We will have to be there for a week and back and forth for the first year, so anything will help.
I have created a small list of things that Jenna has been asking for that I know she will enjoy after her surgery in case you would like to help get a specific item. If you would like to send something in the mail, please email me and I can provide you with our home address.
****Please see the links below for Jenna's Facebook page and the Moyamoya page to find out more about this rare life threatening disease.
Our Family & jenna thank you from the bottom of our Hearts and Thank you for your consideration and generosity.