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Colchester Colour Run

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Hi lovely people!

My daughter Iyla has a condition known as WHS - Wolf Hirschhorn Syndrome, it presents in many different ways but Iyla has had a particularly rotten time.
Iyla spent the first 5 months of her life in a variety of Intensive Care Units and has been back and forth from hospitals and appointments since.
During her admission Iyla fought numerous battles, most memorable heart failure and chronic lung disease which were caused by a large hole in her heart known as a Patent Ductus Arterious (PDA) that has now been surgically closed. Iyla does still have heart problems which may require further intervention.

At 18 months of age Iyla is progressing really well however the syndrome causes developmental and educational delays.
Iyla requires a great deal of assistance as she hasn't full head control and can not sit up without support.
There is some doubt as to whether Iyla will walk and she is also hearing impaired in both ears.

On Saturday 27th June 2015 at Ardleigh Showground some of my wonderful colleagues are participating in the Colchester Colour 5k Run and have kindly asked to raise funds for Iyla!
The ultimate goal is to convert our existing lean-to into a sensory room so that Iyla has a safe space to use and fit all of her equipment and sensory toys in.

It would be great to see a people at the event cheering on Keri, Emma, Tracie, Wendy and Tamsin.

What ever is raised will be a huge help in making this possible!

We thank you all for your constant support and generosity!

Organizer

Matt Harvey
Organizer

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