Help Aurelia to FIGHT&FIND a cure
Donation protected
My name is Sarah Pruitt I am the mother of a very special, beautiful, one of a kind three year old toddler named Aurelia. Recently Aurelia was diagnosed with Metachromatic Leukodystrophy (MLD). A terminal illness that still has NO CURE.
Aurelia lacks an enzyme in her body, without this enzyme her nervous system can not function leading to a breakdown in the communication between her nerves and her brain. Doctors say Aurelia will have seizures, paralysis, blindness, dementia, and inevitability Aurelia will loose her life to this disease . The only hope to keep her living longer is to have a bonemarrow transplant . She will also be the 1st ever human to have a special O-cell trail that will go along with her transplant . This trail we hope will one day lead to a CURE
Aurelia is 1 year post transplant it was so very hard to watch her go through chemo and loose her hair to seeing her suffer from all the side affect of the medications they had to give her . It was so hard seeing her catch every viruses and bacteria which made her very very sick . Someday's I though I was loosing my baby she was so close to death I would lay my head on her bed and cry begging someone to help her ,heal her ,save her please I can't live without her. This past year Aurelia has had way more downs then ups she has been fighting so hard everyday to keep this disease from taking everything from her from taking her life . She's been very sick and each day is different some days she's a normal happy 3 year old but most days she 's so sick she won't and can't even get out of bed . We live moment by moment day by day minute by minute We have made it back home to (Florida) after living a year in NC where Aurelia was transplanted. Now we have therapy 5 days a week because during the transplant process she's lost her ability to walk , run and do anything on her own. As her mother I do everything for Aurelia . She no longer lives a normal life she can not be around kids or anybody who's sick . She can not be around big crowds . She is not aloud to attend school she can't do anything a normal 3 year old can do . It's very hard to explain children with special needs they need equipment and medication that is not always covered buy insurance . To pay bills and get Aurelia everything she NEEDS is very hard when I am unable to work . Aurelia needs 24 hour care and supervision . Some days I wonder if we are going to make it. Are we going to be able to pay our bills or get Aurelia the mediation she needs . I'm asking for HELP from your family to mine . Open your heart and help my little girl Aurelia she needs someone fighting with her and for her .
I wish you could meet Aurelia .She lights up a room with her smile and laughter. She touches everyones souls the moment they meet her. Aurelia she a little girl who just wants to live and do everything a child her age should be doing . We need your help to save Aurelia and give her the care she needs. I beg you, please help my baby live one more day , one more hours anything .Please help us spread the word about this cruel disease and force the world to find a cure. Not just for Aurelia but for innocent children all over the world. Bless you and your family. Please keep Aurelia in your thoughts
Such a strong baby girl when she is going through so much .
The smile that melts hearts of people all around the world . The smile worth mpre than gold..
Aurelia lacks an enzyme in her body, without this enzyme her nervous system can not function leading to a breakdown in the communication between her nerves and her brain. Doctors say Aurelia will have seizures, paralysis, blindness, dementia, and inevitability Aurelia will loose her life to this disease . The only hope to keep her living longer is to have a bonemarrow transplant . She will also be the 1st ever human to have a special O-cell trail that will go along with her transplant . This trail we hope will one day lead to a CURE
Aurelia is 1 year post transplant it was so very hard to watch her go through chemo and loose her hair to seeing her suffer from all the side affect of the medications they had to give her . It was so hard seeing her catch every viruses and bacteria which made her very very sick . Someday's I though I was loosing my baby she was so close to death I would lay my head on her bed and cry begging someone to help her ,heal her ,save her please I can't live without her. This past year Aurelia has had way more downs then ups she has been fighting so hard everyday to keep this disease from taking everything from her from taking her life . She's been very sick and each day is different some days she's a normal happy 3 year old but most days she 's so sick she won't and can't even get out of bed . We live moment by moment day by day minute by minute We have made it back home to (Florida) after living a year in NC where Aurelia was transplanted. Now we have therapy 5 days a week because during the transplant process she's lost her ability to walk , run and do anything on her own. As her mother I do everything for Aurelia . She no longer lives a normal life she can not be around kids or anybody who's sick . She can not be around big crowds . She is not aloud to attend school she can't do anything a normal 3 year old can do . It's very hard to explain children with special needs they need equipment and medication that is not always covered buy insurance . To pay bills and get Aurelia everything she NEEDS is very hard when I am unable to work . Aurelia needs 24 hour care and supervision . Some days I wonder if we are going to make it. Are we going to be able to pay our bills or get Aurelia the mediation she needs . I'm asking for HELP from your family to mine . Open your heart and help my little girl Aurelia she needs someone fighting with her and for her .
I wish you could meet Aurelia .She lights up a room with her smile and laughter. She touches everyones souls the moment they meet her. Aurelia she a little girl who just wants to live and do everything a child her age should be doing . We need your help to save Aurelia and give her the care she needs. I beg you, please help my baby live one more day , one more hours anything .Please help us spread the word about this cruel disease and force the world to find a cure. Not just for Aurelia but for innocent children all over the world. Bless you and your family. Please keep Aurelia in your thoughts
Such a strong baby girl when she is going through so much .The smile that melts hearts of people all around the world . The smile worth mpre than gold..
Organizer
Aurelia Onley
Organizer
St. Petersburg, FL
