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Grace's Lyme Disease Fight

I'm 27 years old and have been sick for over 4 years now. I have late stage  Lyme disease that affects my whole neurological system and many organs. I have developed two heart conditions many stomach conditions 3 different kinds of neuropathy ,arthritis ,fibromyalgia ,chronic fatique syndrome ,chronic pain syndrome and many other conditions from the lyme disease. I am bedridden and housebound because of the lyme disease and health conditions i have caused by Lyme disease . I have lost my ability to stand or walk for more than 2 minutes at a time. When I am able to I am extremely weak and experience excruciating pain. it took over 4 years to get a diagnosis after seeing endless doctors and specialists. Most  Lyme disease treatment is not covered by insurance.  Before Lyme disease I was a healthy happy independent single mother of two amazing little girls one with special needs which happen to be autism. I was the only caregiver for them since the day they were born. I worked and attended college just so I would be able to provide for them. As some of you may know caring for a child with autism is a 24/7 year round job. It's impossible to do that while sick and bedridden. i am currently on oral antibiotics and they arent not helping because i have had lyme disease for so long untreated.  On top of the antibiotics i am on many other medications and supplements I pay out of pocket for despite having insurance. I have a long list of varying symptoms that come and go as they please.
They include:
Migraines
Headaches
Cluster Headaches
Vision Problems
Dizziness
Severe stomach issues
Severe neurological impairment and damage.
Seizures and seizure activity
Tremors and muscle spasms
Numbness tingling and loss of coordination and balance.
Breathing irregularities and lung issues including growths on lungs. Damage and inflammation on joints.
Physical weakness
Severe Hair Loss
Light and sound sensitivity
Insomnia or extreme exhaustion
Constant pressure in head
Neck stiffness and inability to move neck
Body stiffness and joint damage
Blurred vision
Swelling around eyes
Pain in eyes
Decreased hearing , pain and ringing in ears.
Pressure in ears.
Sensitive to noises and sounds.
New allergies to food and medicines
Many chemical sensitivities
Feeling like constantly having the flu and a cold.
Daily fevers or low body temperature
Loss of ability to sense temperature change
Fatigue
Swollen glands and lymph nodes
Andioegema
Peripheral neuropathy autonomic neuropathy  and small fiber neuropathy
Fibromyalgia
Crps
Chronic fatigue
Bell's palsy
Numbness ,tingling and burning in face toes fingers and various other places.
Various nerve damage throughout body including organs.
Trouble swallowing eating and drinking.
One of the treatments i need is iv antibiotics through a port or picc line.
A port itself cost 7000 to 15000 dollars
A picc line costs between 700 and 3000 dollars
Supplies for port or picc line -average 1500 a month
IV medicines 1500 -2700 a month, 430 -800 a month ,3,000 a month ( may need more medicine than what is listed here)
supplements and prescription meds copays monthly cost -average of 1300 a month
Cost for lyme specialist - 1200 for first visit
Nurse to adminster medicine and port/picc line care 80 to 120 dollars a day
Hospitalization at the beginning of treatment which the costs will vary.
Most of the medications for Lyme are self pay only. Some you can submit to insurance but they don't always reimburse you.
There are many other treatments besides Iv medications but at this point because of the period of time that has passed Iv antibiotics in a hospital with 24 hour care is one of my few options along with many herbal supplements and different things to properly cleanse and detox the body. Another thing for the treatment is a rife machine which is expensive but shows success in many people's recovery. While there is some places that help with costs of prescriptions it's impossible to get the prescriptions without seeing the lyme specialist. And supplements aren't covered by any insurance or any other place.
I see many different doctors and specialists but i am not seeing a lyme specialist because of the high cost and insurance does not cover visits or medications
. I'm not showing any progress in recovering because I'm not receiving the correct treatments. I'm trying to get the proper treatment I need which isn't covered by insurance so I can get better for my kids and myself. Please share and help if you can so I can recover and get my life back. My two young daughters need me and want to be able to have their mother back.


"all pictures in the video are after i got sick"
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Photos below are before i got lyme disease.












Organizer

Gracie Anne
Organizer
Chicopee, MA

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