Please come learn about Niemann Pick Type C and have lunch or dinner to help raise money to treat Chase. He is being treated with an Orphan Drug under a Compassionate Use IND (Protocol/Trial with one patient approved by the FDA because no other option exists to save someone's life.) April Cox, Brandy DelBonis and THE OFFICE KITCHEN AND BAR on 1475 Post Road in Warwick RI 02886 are putting on the fundraiser! It starts at 2pm and is kid friendly. To learn more about the disease you can visit the National Foundation Website at nnpdf.org or go to Chase's personal website www.chasethecure.net
Wiki also has a lot of current info, search: Niemann"“Pick disease, type C
Fundraiser for Chase June 2nd, 2013 2pm!