Giving Brian a leg up!
Donación protegida
As asked by a few family and friends I've set this GoFundMe page for our Brian as there is several types of equipment that would help our Brian regarding getting him up on his own 2 feet! Only problem is the price of some of these just because it's for special needs or sensory its obscene!
Brian is one of 4 boys, he has 3 older brother's Curtis, alfie and Cj.
Brian is our rainbow baby after we had lost a little girl @23wks in 2008.
Brian was born on 4th June 2016, at 28wks after I underwent an exploratory laparotomy when they discovered my uterus had split. They had to deliver Brian via csection and because they couldn't stop the bleed they also did a hysterectomy. I had lost 4.6L of blood and both me and Brian were very very poorly as we both ended up in intensive care.
Brian was born with bilateral bleeds on his brain level 1 and 2. Originally we was told he would be a bit behind on his reading and writing. It wasn't until 28th July 2017 that we was told Brian had mild bilateral spastic cerebral palsy mainly his legs are affected.
Both myself and Rob struggled mentally with the news our lad would never walk normally if he ever was to walk. Any parents nightmare to be honest. Because of the stress it triggered a lot of balance issues for myself as I'm disabled with being profoundly deaf and various balance issues. I was advised not to carry Brian up or down the stairs as Brian with his CP has a tendency to arch backwards due to tightness which has resulted in us both almost falling down the stairs. Rob was worried for both our welfare that he had no choice but to give up the one thing he's always enjoyed and that was working in Newmarket racing.
An appointment with his paediatrician recently and we was told Brian is level 4 on the gmfcs scale, meaning he's worse than originally thought. Discussion about an operation known as SDR which cuts the nerves that cause the tightness is something she would not consider at the moment as Brian doesn't understand what the whole procedure is about. So in the meantime we need a little help in getting Brian various equipment to help with his on going physio we have to do with him daily to get his legs working! With your help we could get these pricey special needs equipment!
Some of the ideas and equipment already on order:
Textile pack £287
Whizzybug £200 deposit
Scoot 4in1 £85 for backrest
Upsee £315
Vibrating plate £60
Muscle stimulator £230
12wks special swimming sessions £99
Mirrored pebbles £85
Peanut physio ball £30
Many more....
Any little help will be greatly appreciated big time!!
I will update as and when we get his equipment...
Brian is one of 4 boys, he has 3 older brother's Curtis, alfie and Cj.
Brian is our rainbow baby after we had lost a little girl @23wks in 2008.
Brian was born on 4th June 2016, at 28wks after I underwent an exploratory laparotomy when they discovered my uterus had split. They had to deliver Brian via csection and because they couldn't stop the bleed they also did a hysterectomy. I had lost 4.6L of blood and both me and Brian were very very poorly as we both ended up in intensive care.
Brian was born with bilateral bleeds on his brain level 1 and 2. Originally we was told he would be a bit behind on his reading and writing. It wasn't until 28th July 2017 that we was told Brian had mild bilateral spastic cerebral palsy mainly his legs are affected.
Both myself and Rob struggled mentally with the news our lad would never walk normally if he ever was to walk. Any parents nightmare to be honest. Because of the stress it triggered a lot of balance issues for myself as I'm disabled with being profoundly deaf and various balance issues. I was advised not to carry Brian up or down the stairs as Brian with his CP has a tendency to arch backwards due to tightness which has resulted in us both almost falling down the stairs. Rob was worried for both our welfare that he had no choice but to give up the one thing he's always enjoyed and that was working in Newmarket racing.
An appointment with his paediatrician recently and we was told Brian is level 4 on the gmfcs scale, meaning he's worse than originally thought. Discussion about an operation known as SDR which cuts the nerves that cause the tightness is something she would not consider at the moment as Brian doesn't understand what the whole procedure is about. So in the meantime we need a little help in getting Brian various equipment to help with his on going physio we have to do with him daily to get his legs working! With your help we could get these pricey special needs equipment!
Some of the ideas and equipment already on order:
Textile pack £287
Whizzybug £200 deposit
Scoot 4in1 £85 for backrest
Upsee £315
Vibrating plate £60
Muscle stimulator £230
12wks special swimming sessions £99
Mirrored pebbles £85
Peanut physio ball £30
Many more....
Any little help will be greatly appreciated big time!!
I will update as and when we get his equipment...
Organizador y beneficiario
Donna Allen
Organizador
Curtis Allen
Beneficiario
