We just got back from KU. Danita had two follow up appointments. One with the surgery team and one with her liver dr., Dr. Taylor. We left at 5:45am to get up there to get blood labs done prior to the first appt. On the way in to the hospital we saw Dr. Schmidt, one of the surgeons that did Danita's transplant. He was surprised to see Danita walking into the hospital, no walker.
Then at her surgical appt. Dr. Kumer, Danita's other transplant surgeon walks in, big smiles, to see Danita and told her how good she looks after being so sick. Then he comments on my Shocker gear, because he said he went to the basketball tournament at the Sprint Center, when WSU played.
He then checked her wound and said it looked good and that it is healed and does not need to be changed anymore.
We had some time between appointments so Danita and I went upstairs to unit 63 and unit 64 to say hi to the nurses and aides that were there. Lots of smiles from everyone. Lots of comments about getting to hear Danita talk.
The Dr. Taylor visit started rather late, but the good news is that Danita's liver and kidney numbers are still good. Her prednisone dose will go down again next Thursday. Her Prograf dose goes down slightly starting tonight.
Even though the blood numbers have been good, Dr. Taylor wants to do a liver biopsy next month to get a closer look at the liver.
She will continue to have blood tests done weekly to watch her numbers. As they look better, she will change and have labs done every two weeks instead. Her bilirubin today was .7. Normal is below 1.0 and Danita's last test before transplant was 34. Nice change.
Happy thanksgiving everybody. Latest update is that Danita had an appointment in KC on Monday to check on the stent that was placed in her bile duct in September. It was put there because it was constricted after the transplant. They did another ERCP down her throat. The stent was not there. It had already passed through her system. They used some dye to check the bile duct and it looked good. Her liver numbers continue to be good. We go back this Monday for appointments with the surgical team and then with her liver doctor, Dr. Taylor. I'm on the road with the bowling teams for the first time this year. Taylor and Danita are going to her sister Debbie's house for thanksgiving. Obviously, there is lots to be thankful for in our household, not the least is all the people who have been there for us through everything these past few months. Safe holiday to everyone.
"One last night in a hospital. Danita will be discharged from Wesley Rehab tomorrow. She will continue therapy as an outpatient starting this Thursday.
We need to train more with regard to her blood sugar tests, insulin shots, and wound care.
Now we are trying to coordinate all she needs from rehab tools, diabetes materials, and her transplant drugs and appointments. One day to go!"
"No update on the ultrasound, but the liver numbers are still good. Taylor and I are cleared to help Danita get up and down from bed or her chair.
Still hopefully going home next week. I got a couple of things for the house, grab bars, a shower seat, and a hose type shower head.
Maybe I can get back to work after Danita gets home.
We have a sports psychologist coming nov. 9-10 to work with our teams. Then, our next tournament is over thanksgiving weekend"
Friends... Leslie Bohn has set up an online fundraiser through "Silpada Jewelry" in Danita's name. With Christmas right around the corner, this would be a great way to order some beautiful jewelry for a loved one while also benefiting Mark and Danita Lewis. Proceeds will be sent to the Lewis family. Please share share share this with your friends and family!!! Thank you Leslie Bohn!!!
"Danita did 4 therapy sessions, 2 PT and 2 OT.
OT talked to us about medical equipment Danita will need at home for a while, (grab bars, shower, and toilet help) to help her get up and down from a walker in the bathroom.
I talked to the KU transplant coordinator and hey want to redo the abdominal ultrasound that was done at Select Specialty in KC, last Tuesday. They will do that in the morning. Her blood sugar has been bouncing around a little so they are doing more checks and she is getting some regular long-term insulin shots"
"Danita did some upper body work after breakfast and now she is in a group PT session. Her therapy team did their weekly assessment mtg and see where she is at with regard to dependent .vs independent. Danita has already improved since getting in Friday. Her new projected discharge date is Wed. the 30th.
Group arm curls and then punches with a weight.
This afternoon Danita has two more sessions"
"Nice day off for Danita today, a day of rest from therapy. Tomorrow should be busy. Taylor and I surprised Danita with our dog Cuppy. I brought Cuppy to the lobby and Taylor brought Danita downstairs after lunch.
Danita and Cuppy had a nice visit. Debbie and Grant around dinner and then more family later. (Derek, Dennis, and Tina).
Danita had heard about the GoFundMe site but tonight was the first time to look through the site and read all the comments. They definitely got to her. Thanks again to everyone"
"Occupational therapy gave Danita a shower, with Danita doing most of the work. Speech therapy checked her out with speech, writing and cognitive tests that Danita aced. Now Physical therapy is here working with her on leg and core exercises in bed and then she will go to the therapy gym"
Late in the evening of August 15th, 2013, Danita Lewis was
rushed into surgery for a liver transplant, at the Kansas University Medical
Center in Kansas City. Although her surgery seems to have been successful so
far, Danita has been unable to work and will be facing an extended recovery
period where working will not be possible. Her lost wages, along with the huge
burden of her medical and hospital bills will put tremendous stress on the
Lewis family. Danita was afflicted by a rare form of a liver disease called
Primary Biliary Cirrhosis (PBC), which slowly destroys the bile ducts of the
liver. Although this may have been slowly affecting her for a long time, no
symptoms showed up until late May 2013. The medical community has not
discovered what causes PBC, and only the cure is a transplant. We are all so
incredibly thankful for the organ donor who gave their life in order to give
Danita a new chance for a healthy life. This page was created to help Mark, the assistant bowling coach for Wichita State University & Danita Lewis, an office associate for Wal-Mart, financially recover from a life altering medical situation.
Any and all help is greatly appreciated!!!