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Bonnies fight against NPCD

As a lot of you will know Bonnie has been in hospital lots latley and getting tests done. Her diagnosis came back and sadly she has a very rare FATAL genetic disease called Neimann Pick type C disease, there is only 6 people in scotland with Bonnie being the only baby Scotland. This disease is a 1 in a million chance, and due to Bonnie picking up a bad gene from myself and Jack she has sadly had this diagnosis. Along with this disease there is a number of side effects.

There is no known cure for this FATAL disease at the moment researchers are trying there hardest to find a cure. There is NO clinical trials in the UK for Bonnies age. Thankfully there is ongoing trials in America AND WE NEED TO GET BONNIE THERE especially the VTS270 which me and Jack have decided is the best chance for Bonnie. The procedure is a lumber puncture once or twice a month which takes cycodextrin straight through the. Central nervous system. We NEED EVERYONES HELP RAISING FUNDS TO GET OUR PRECIOUS BONNIE TO AMERICA. COS SHE IS ONE IN A MILLION TO US. WE will be raising funds for Bonnies treatment and to raise awareness for this rare condition.

Thank you to anyone who can contribute to this help us if its just sharing to raise awareness. FAMILY FRIENDS N FRIENDS OF FAMILY N FRIENDS AND EVERYONE PLEASE SHARE FAR N WIDE TO GET OUR PRINCESS THE BEST CHANCE. EVEN A POUND CAN MAKE A DIFFERENCE. !!!!

Hope for our wee Bonnie biscuit ❤
#HopeForBonnie
http://www.npuk.org

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  • Maureen Wilson
    • £20 
    • 6 yrs
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Kayla Strachan
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