Batten Disease Foundation
Donation protected
Some of the men at Emmetts are attempting to grow facial hair this movember, raising funds for BDFA. The BDFA (Battens Disease Family Association http://www.bdfa-uk.org.uk/ ), a local lincolnshire teacher has three boys of which two of them suffer from Battens Disease , which means it is unlikely that two of her sons will make it to 16 years old. It’s a small charity that currently doesn’t receive any funding from statutory sources so relies heavily on volunteers and fundraisers.
Organizer
Sam Reynolds
Organizer