De Sean's pre-op appt is next week. Please keep him and family in your thoughts and prayers! His pre-op was suppose to be done in July, but had to be re-scheduled for the second week in August so his entire medical team is in attendance. Yesterday was a very emotional day for De Sean's mommy as you can only imagine. We have no words to best discribe the love we all have for De Sean, and want to make sure all the difficult decisions are made in De Sean's very best interest to enhance and ensure excellent future mobility! Next update will be done after his pre-op appt. We truly thank all of you, for your continued love, prayers, and support.
De Sean's Grandma
Thanks to all of you who have donated, we have raised $7,905 as of today to the baby De Sean fund! We are very close to our goal! Thank you so much for your continued shares, love, prayers and support!
De Sean's Grandma
Update: De Sean's pre-op appointment is scheduled for the second week in August. This will be an extremly long appointment. De Sean will have an extensive evaluation with his medical team, after all his labs, X-rays etc are completed. Once all of his results are back this day, we will meet/ consult with De Sean's entire medical team, to include the plastic surgeons, to go over all test results, surgical procedures, surgery date, and will have so much more information. Until then, please continue to share and keep De Sean and his family in your thoughts and prayers as we begin his medical journey. I will keep our family, friends, and supporters updated! We truly thank all of you so much for your continued prayers love and support!
De Sean's Grandma
Today is a very special day! We will be holding a private family gathering for baby De Sean this morning, as we bless De Sean, and prepare ourselves as a family, for his medical journey to begin. Please continue to share this page to show your continued support for baby De Sean and his family!
De Sean's Grandma
Please continue to share for baby De Sean and his parents!
Wow! A special thank you to those who have walked in to US Bank and donated to the baby De Sean Fund! I have added your generous donations to his gofundme account. A very special thank- you to all that have donated and continue to support us! We are now 76.8% to our goal, thanks to ALL of you who have donated....thank you so much for your continued support! We are truly blessed!
De Sean's very proud grandma
Has raised $6,970 for the baby De Sean fund! We are reaching our goal! Thank you to our family, friends, and amazing supporters whom have donated, to those that have shown your support in so many different ways, and to all of you that continues to share De Sean's link! Thank you all so very much for your continued support!
We are 68.7% to our goal! De Sean will turn three months old on the 14th. Please "share" to show your support!
For those of you who would like to share via e-mail, here is his link below:
Thank you for your continued support for baby
De Sean and his parents!
We are getting close to our goal! A special "thank you" to our amazing family, amazing friends, and amazing supporters!
Thank you to all that support us in so many different ways! We have such amazing family, friends and supporters, and have made new special friends along the way. Wishing you and your families a safe and happy 4th of July!
De Sean and his Family
Thank you to all our fb friends for all your shares of De Sean's story. Here are our stats:
We have had 785 shares on fb, 35 on twitter, 5 on pintrest for a total of 839 shares. We have also had a total of 3,407 people visit De Sean's page! Thank you all so much to everyone who has read our story, shared, and to all those that support us in many different ways. We appreciate every single one of you!
De Sean and his Proud Grandma
Update: We are getting many comments and great information about Shriners Children's Hospital. De Sean will have his reconstructive surgeries at Shriners. What many of you may not know, is that there are other medical needs that De Sean and his parents need that are extremly expensive, that insurance will not cover (we have denial letters), if only for "preventitive" measures. One example is Genetic testing for De Sean and his parents, which is extremly expensive, but still needs to be done after the reconstruction of De Sean's hand and feet.
Thank you again for your love support and shared resources!
Update: As we learn more about this rare condition, it was interesting to learn the different types of genetic malformations. Although rare, some babies are born with a more "mild" case, which effects one limb (such as one hand or one foot) at birth. In De Seans case, this rare condition, effecting all four extremities, is extremely rare, one in every one million births. As we learn more, we will share specifically for awareness purposes.
As De Sean's mommy said "aww our boy is one in a million" and he is!
Tina Rutan, thank you for sending the information about Shriners. Baby De Sean has an amazing medical team, to include the pediatric orthopedic hand and foot specialist at Shriners, where his reconstructive surgeries will take place. De Sean has other medical specialist, like the genetisist, that insurance companies dont like to cover which are extremely expensive, and so on. We are all so truly blessed to have the love and support of our family, our friends, and our community...it takes a village!
Thank you so much fox12 Oregon!
Thank you Fox 12 Or. Watch De Sean's story today on fox 12 Oregon news! Fox 12 will follow De Sean's medical journey, and will do updates for the public on fox 12 news station! Yay!
De Sean and his Grandma
De Sean's story will be on fox 12 news tonight starting at 10:30 (because a post game is on) and will air again tomorrow!
Please continue to share!
A very tough decision need to be made today! Please continue to share!
De Sean's grandma
Thank you to everyone who has shared this link! Our family appreciates the love and support we have recieved thus far, and so does baby De Sean! Every dollar we generate will help this beautiful baby, who continues to melt the hearts of everyone he meets! Together we can make a difference!
Thank you to all our family, friends, and supporters
De Sean's Grandma
It has been brought to my attention that walk in donations at any US Bank branch has had an issue finding De Sean's donation account under the"Baby De Sean Fund."
I went to the bank on 6-19-14 to make a donation to the "Baby De Sean Fund" and encountered the same problem. They could not find his account. Everyone at the bank was apologetic and quickly problem solved the issue by doing the following:
US Bank has put out an international email to every bank branch about baby De Sean and his donation account to solve this issue. If you have any problems, please let me know right away.
Walk in donations can be made to the "Baby
De Sean Fund" at any US Bank Branch
~De Sean's Grandma~
Hi everyone this is De Sean's mom Seanna!! I just wanted to let everyone know that De Sean had his 2 month check up and he did great!! He is now 11lbs 12.5 oz and 23 1/4 inches long!! Once again we thank you all so much for your love and support for De Sean!! He is the sweetest little guy and we just adore him!! We love you all!!
De Sean's mom and dad are so greatful, blessed and shocked from the outpour of love and support that has been shown, in so many different ways! Please share on your page, and let's continue to raise awarness and help De Sean's parents with some tough challenges ahead!
Hi family and friends! Words can't discribe how I am feeling right now. This fundraiser is for such an amazing baby boy, who is our world and loved so very much, by so many! Thank you to everyone who has donated to De Sean's fund, and thank you all for your continued love and support!
~De Sean's Proud Grandma~
Thank you for visiting, we appreciate it! We will keep you all posted on De Sean's medical journey!
This is my precious grandson born on 04-14-14. He was born with a rare genetic condition
called Split Hand/Split Foot Malformation. He was born with four fingers on each hand (no middle finger on right or left hand) and has three toes on each foot. His right foot has two toes that are fused together.
On his left hand, his pinky and ring finger are bent/fused at the knuckle, which he can not straighten.
We recently learned from his Pediatric Orthopedic Foot and Hand Specialist/Surgeons (Shriners), that baby De Sean will need to undergo reconstructive surgery on both hands and both feet at the age of three months old, to ensure his future mobility. His fused fingers on his left hand need to be separated and straightned, and the cleft (gap) where both hands and feet split in utero, will need to be surgically closed. His pointer fingers on each hand has extra bone, which will need to be shaved down as part of the hand reconstruction. Baby De Sean will have reconstructive surgery on his left hand and left foot first. When his left hand and left foot heals, he will under-go his second reconstructive surgery on his right hand and right foot.
We are still learning about this rare condition, and will have a better understanding, once genetic testing is done on baby and his parents. What we have learned, is that De Sean's type of malformation that effects all four extremitites (both hands and feet) is approx one in every one-million births.
My daughter had a normal pregnancy (full term) and a handful of ultasounds during her pregnancy, but his condition was not detected until he was born. So we still have alot to learn, and will share for awarness once we have more information. De Sean's medical team stated that this type of reconstruction is not performed until 1-3 years of age. In my grandson's case, his hands and feet need to be reconstructed at the age of three months old, before De Sean starts developing his motor skills, to ensure his mobility.
My goal as De Sean's grandma and one of his biggest supporters, is to raise enough money to help De Sean's parents financially. This first year will be very challenging physically, emotionally and financially for these first time parents.
My daughter recently took a leave of absence from her job at the hospital to care for her baby, as we approach his upcoming surgeries and recovery process. De Sean's dad will also need to take time off of work to be with his son and family.
Every dollar we raise will help! Your prayers and support for baby De Sean and our family is so greatly appreciated! My grandson is my heart, who is loved so much by so many, and we could not be more proud of him. Donations can also be made in person at any US Bank Branch. Please make your donation to the "Baby De Sean Fund"
Thank you so very much
~Baby De Sean's Grandma~