A Families Fight(Cystic Fibrosis)
Donation protected
Hi...my name is Andrew & I'm married to my beautiful wife Alison.
For 21 years I have watched Alison slowly lose her battle with CF(Cystic Fibrosis),a genetic disease.....
Cystic Fibrosis (CF) primarily affects the lungs and digestive system
There is currently no cure~ Lung failure is the major cause of death for someone with CF.
Our now 12 yr old son with autism has watched his mum slowly be unable to do the simplest task with him like play catch in the yard.
He has faced more than any other 12 yr old should have had to deal with~Forced to grow too quick beyond his small yrs
28th August 2018(9months to the date of going on transplant list) saw Alison receive her 3rd call for possible lungs..... The call which seen us go from pre transplant life to post transplant life.
Our lives now take on a whole new way.
We now have to get our water tanks re-sealed & cleaned then possibly refilled(depending on loss of water)
A water filter system installed in our home + maintained every year from here on in
Mountains of medications(more than what she was on before)
A whole new way of eating as many things are now prohibited
We are still faced with living in Brisbane another 2- 3 months(this will depend on recovery) & maintain our mortgage & bills at home
Once home continual trips to Brisbane for the rest of her life
Husband Andrew has not worked in 2 yrs due to having to care for Alison & faces at least a further 12 months off work
All this brings with it financial stress
A friend told me I have to swallow my pride & ask for help though I hate doing so
We don't want a handout~ just a hand up
Any help would be appreciated in this difficult time
Andrew,Alison & Dominic
For 21 years I have watched Alison slowly lose her battle with CF(Cystic Fibrosis),a genetic disease.....
Cystic Fibrosis (CF) primarily affects the lungs and digestive system
There is currently no cure~ Lung failure is the major cause of death for someone with CF.
Our now 12 yr old son with autism has watched his mum slowly be unable to do the simplest task with him like play catch in the yard.
He has faced more than any other 12 yr old should have had to deal with~Forced to grow too quick beyond his small yrs
28th August 2018(9months to the date of going on transplant list) saw Alison receive her 3rd call for possible lungs..... The call which seen us go from pre transplant life to post transplant life.
Our lives now take on a whole new way.
We now have to get our water tanks re-sealed & cleaned then possibly refilled(depending on loss of water)
A water filter system installed in our home + maintained every year from here on in
Mountains of medications(more than what she was on before)
A whole new way of eating as many things are now prohibited
We are still faced with living in Brisbane another 2- 3 months(this will depend on recovery) & maintain our mortgage & bills at home
Once home continual trips to Brisbane for the rest of her life
Husband Andrew has not worked in 2 yrs due to having to care for Alison & faces at least a further 12 months off work
All this brings with it financial stress
A friend told me I have to swallow my pride & ask for help though I hate doing so
We don't want a handout~ just a hand up
Any help would be appreciated in this difficult time
Andrew,Alison & Dominic
Organizer
Alison Battistuzzi
Organizer
Stratheden NSW
