Hello, hope this finds you enjoying some spring weather. Trey had surgery about 2 weeks ago to reconnect his damaged facial nerve to a nerve in his tongue (Hypoglossal) to help relieve some of the palsy symptoms on the left side of his face. This was more for aesthetics moving forward than any functional need. The surgery was about four hours and he spent the night in the hospital. Trey's ENT doctor is #1 or #2 (depending on which poll you read) in the country so we feel very lucky to have Trey in his care. Dr. Chan and Trey have slowly developed a friendship as Trey is not fond of anyone who pokes around his ear but he has warmed up to Dr. Chan in the past year. Dr. Chan performed the biopsy way back when this party started and had the difficult task of telling us that it was something to be concerned with. He has become more than just a doctor for us like so many other's at Children's. We are blessed and grateful to have such great and caring people for Trey. The day after the surgery Dr. Chan informed us that Trey would need to abstain from bike & scooter riding, jumping on the tramp, and any contact sports/rough housing for 3 weeks. Uhhh so do you want to tell him that or is there someone who can because that won't sit well with him. 2 days after we got home he was on the tramp in wrestling match with 1 of the neighbor kids so we had to breakdown and offer up the xbox to slow him down. His scar is pretty noticeable right now and he likes to tell people he fought a ninja-bear in the alley by the ice-cream store. The effects of the surgery will take time and change as he continues to grow but as you can see in the pictures there are some subtle changes already. When Trey gets anesthesia we try to get as much done as possible so he had his scans and blood tests done, which all came back looking good. We tried to work in getting his finger and toe nails clipped but that isn't in our insurance network. He continues to stay very busy with activities, and loves school. His next set of scans will be the last of the round at 4 month intervals and then he will go to every 6 months for the next 2 years. Amazing to think of where he is from where he was. Every day is not good but there is good in every day! Take care!
Happy Thanksgiving to all. We have so much to be thankful for, our families, friends and so many others who have touched our lives in so many ways. We hope you have a wonderful day. Trey had scans today and they came back N.E.D., no evidence of disease. Always an incredible feeling, never to be taken for granted. He has grown 3 inches and gained 5 pounds in the last 4 months which is great. His feet seem to be exploding as he has needed new shoes a few times these past few months. Today was also significant as it was the first time he has done scans without anesthesia, so nice to leave without that hangover. He is also now 2 years post treatment!! He finished up concurrent soccer and flag football seasons and is moving in to wrestling and basketball. Not sure how those two work together but he enjoys them. He is hard to slow down, which is a blessing as well. School is going very well and he loves his teacher. He told the doctor today that math and reading are his favorite subjects, hopefully it will stay as such. Attached is 1 of 2 commercials Trey did as an ambassador for Children's Hospital with a local Subaru dealer. These have appeared during Colorado Rockies and Colorado Avalanche games. It is funny when people tell us they saw Trey on TV. He has no idea!! Have a wonderful Holiday season.
Trey had scans yesterday and thankfully they came back clean again. At the end of September he will be 2 years out from his last treatment. Hard to believe it will have been that long. He is doing pretty well, a few minor bumps in the road. In March he got a tooth infection that got pretty bad and had to spend 3 days in the hospital. Then in April he got a flu bug and just got so dehydrated he spent another 3 days in the hospital. More tales for the legend of Trey. As you can see from the picture he has been out and about in his role as an ambassador for Children's Hospital. He was a little nervous when he had to walk out for the Avalanche fashion show, but Coach Mario helped him make it. He was at the grand opening of the Ryan Secrest Studio and movie at Children's. Got to rub elbows with Ryan. But the highlight was meeting Todd Helton, former Rockies player. Trey was in the middle of baseball season and was speechless, which if you know Trey is doesn't happen often. He couldn't stop talking about meeting him. He got to help lead the parade of Rockies Rookies out on to Coors field at a game and told Mom & Dad who each player was as we past them or during the game. Whatever sport he is playing he is fully immersed in, watching games on TV, finding highlights on youtube or playing it with his brother. He does not want to miss the All-Star game tonight! He also enjoyed free Slurpee day with his brother and sister, summer is good. He is also going to STEM summer school, (science, technology, engineering and math) and has a fabulous teacher. He will be starting 1st grade here pretty soon and really loves school. His next scan will be in November and hopefully his first without anesthesia as the recovery afterwards is not fun, very agitated. Thanks again for all of your support and enjoy the rest of the summer!
Trey had scans on Wednesday and they came back clean again. The doctors feel like he is doing very well and his recovery is coming along nicely. He is doing very well in school and stayed busy this winter with wrestling and just finished basketball. He took a trip to Florida with his brother, sister, grandma D, cousin Morgan and mom to watch mom run a marathon. The race was a fundraiser for Give kids the World, and included a trip to Disney World. Not a bad trip in January. Trey is also going to be a cancer ambassador for Children's Hospital. We don't know many details but he has a kick off luncheon at the Denver zoo Saturday and a fashion show with the Colorado Avalanche at the end of March. One sad thing that we experienced is that two of the people who gave a lot of care to Trey are sadly moving on our main nurse Kerri move to a new Children's location and Dr. Lindsey is going to Cincinnati to do some other research, they were both awesome throughout Trey's treatment. We will miss them. Prayers for strength to everyone affected by cancer.
Well Trey had scans on Monday and thank God they came back clean. This marked 1 year after the end of treatment, so it was certainly special. Where has the time gone?? He will now have scans every 4 months with his next in January. As you can see he is doing very well, as are his brother and sister. His hair is getting very dark black as it used to be more dark brown. He has finished speech therapy, which went well. He is getting stronger and is force to be contended with in sibling wrestling matches. He started Kindergarten and is very aloof when asked if he likes it. He loves it but cool guys gotta keep it on the down low ya know. He has been told that recess and lunch do not count as subjects when asked for favorites. He is busy this fall playing both soccer and flag football and likes to practice both in the living room with complete disregard for anything fragile. If mom shuts down practice he likes to record college or pro football games and make dad sit with him and break the film down to pick up tips or tell dad how Peyton Manning could be better. Jen is training for a marathon in January in Florida. The marathon is a fundraiser for Give kids the World village, which is where we stayed during Trey's make a wish trip and hosts families from all over the world. She is trying to raise $3000, which will help benefit more families staying there. It is an amazing place, with many amazing people. In addition Tommy, Taylor, Trey and Jen will volunteer to work at GKTW for one day while there. Here is a link with information and if you wish to donate. https://www.firstgiving.com/fundraiser/JenniferTatham/wdwmarathonweekend2014#.UcMY2VyCgTQ.facebook
Thank you for your continued support and God Bless.
Summer is here. We had a great time on the Make a Wish trip to Orlando as you can see in the picture. Trey and family were treated like kings and we were spoiled more than being at Grandma's house. The place we stayed is called Give kids the world and the title fits. Ice cream all day, 2 pools, dining room, disney character visits, train, minature golf and parade's almost everyday. As you can see the house's are made to look like a fairy-tale village which the kids love. It hosts families from all over the world who are on trips like ours. We managed not to run ourselves down while doing as much as possible. 2 of the Disneyworld park, Sea World and Universal. Lot's of walking, which helped to work off all the food. Trey started his trip to Disney and decided he could ride Space Mtn. Well, he had fun for half the ride and then he wanted it to stop. After that if he couldn't see what it did he didn't want on it. As you can see we had front row seats for the Shamu show as you can see. Great seats for most of the show and then at the end 3 of them pulled up and showered us with 3 waves of water. Drenched would be an understatement, but it was worth it. Trey got to take on Darth Vader and use all those sword skills he and his brother have been honing for years. Afterwards he got to meet Darth and get a picture taken with him, not to close thou since he is a bad guy. It was really nice to see everyone have a good time and a great experience for our family. We would never be able to say thank you enough to those who made it possible. We are very grateful for the trip and humbled at the same time as we met many other family's who went through as much or more than us. Trey is having a great summer playing baseball (just ask him he'll tell you how good he is), going to summer rec and hanging out with his big brother. He has scan's this next week and we pray they come back as clean as his plate on Mac & Cheese night. God Bless!
Summer is almost upon us! Trey has found out who his kindergarten teacher will be next year and is very excited. He is ready for summer to start but more on that later. In the picture is him and 2 other boys who are going to be part of "Frank's Ride" on Sunday. This is a fundraiser for the Make-a-wish foundation and the ride is a sponsor for Trey's make-a-wish trip. His helment is custom fit with signatures from Frank's Ride board members. On Sunday Trey will ride in a side car. About 400 other bikers will be there and will tour 4 northern Colorado watering holes for brief stops. It finishes up at Anderson Farms with a BBQ and music. Very exciting and humbling to say the least. We met some great, caring people the day the picture was taken. It should be an adventure. When school ends next week, we have a few hours to get ready to go on Trey's make-a-wish trip to Florida. He picked DisneyWorld and we get to stay at a great place called Give kids the world. There is not much they don't have there and Trey was very excited when he found out they start serving ice cream at 9am in the morning (*see below)! He can't stop talking about seeing Mickey Mouse and hopes to see a gator! He is very deserving of the trip and we are so grateful to everyone who has made this possible. Trey had some dental work done last week, as he still has some issue's with his teeth from treatment and his lack of brushing (uh ice cream for breakfast, okay maybe once). The dentist has to have Trey knocked out as he won't sit still and fights like the Tasmanian devil. He bounced back pretty well and was playing soccer the next day. He is finishing up flag football and soccer, and is starting baseball. No rest in him. It's gonna be a great summer! Hope things are good in your neck of the woods.
Good news Trey's last scan was clear, his next one is in June. He is doing very well and is continuing speech therapy to help with nerve damage on the left side of his face. He is busy with school and sports. He is playing soccer, flag football and will begin baseball in May. Busy is an understatement for him. He would do more but there are only so many hours in Mom and Dad's day. Trey is looking forward to his Make-a-wish trip in May to DisneyWorld. As you can imagine his popularity has risen with his brother and sister because of this. It should be a great celebration for our family and all he has endured. Trey's t-ball coach, who works for 9news in Denver put together a great story on Trey. It included his friend Sam who is a great inspiration with an attitude like Trey's. It's a good thing they go to different schools or some teacher would be in for ride for sure. Here is the the link to the story. God Bless! http://www.9news.com/sports/article/330602/345/Five-year-old-battles-Cancer-with-Sports
Well as you can see Trey is a round-baller. Just finished his season and he is a ball hog, just like the rest. If he doesn't have the ball he is yelling at whoever does to pass it to him. He does well on defense, but his height doesn't help his game. If he goes out for a rest he gets a drink and then is on the coach to put him back in so at least his energy level is improving. He is doing well fought off some colds, got his 2nd haircut recently, and is slowly gaining some weight. He is already looking forward to his next sport and is really enjoying school. He loves to be outside or wherever his big brother is. He goes in for a scan this Wednesday and we pray it will be as clean as the last one. Please say a prayer for everyone who is fighting cancer.
Well we hope this finds everyone enjoying the New Year and all. As you can see Trey is doing well. He got his first haircut a few weeks ago. Big deal to Mom and Dad, to Trey yeah whatever. His Christmas was very good and he recieved many gifts. It was so nice to see him so excited and he was very appreciative in the brief moments of catching his breath. He is just a kid again and that is our greatest gift. Thanks to cousin Brett, Trey was lucky enough to attend the Bronco's playoff game. He was tough in the frigid cold but his brain froze a tad as at the end of the game, he asked Aunt Marci "Did we win?". He came home with some awesome gear from a very generous gentleman. Even though the picture is in a wrestling singlet (dad likes to dream), Trey is pounding the hardwood this winter with the Mead Longhorns and loves to shoot baskets. He really likes his coach and does not like being out of the game very long. Dad hopes he loves fouling and is forced to give it up for something with a little more contact, see picture above. Trey has started speech therapy as the nerve damage from the tumor caused some minor problems. Better to address it now than later. His immune system is doing well and he has fought off a few little colds, etc.. He is still not 100% and gets tired going to school full time towards the end of the week, so we have to keep and eye on him. Trey found out that he was granted a wish through the Make-a-wish Foundation and will be going to Disney World in May. Brother and Sister weren't too disappointed as the whole family gets to go. Trey certainly deserves this after his journey and we are most thankful to Make-a-wish and everyone who supports it. We are humbled still by the amazing support we recieve from so many. Many, many people still ask about Trey and wish him well. Trey has his next scan in March, please keep him in your prayers and God Bless you.
Happy Holidays! Hard to believe what was going on in our lives a year ago. Trey had been diagnosed and was beginning treatment. This point in time looked a long way off. Trey had his second set of post-treatment scans done on Monday and they came back clean. Always interesting to return to the hospital after not being there for awhile, lots of emotions but so thankful we have such a great facility so close. Trey's health is pretty apparent when you see him, plenty of energy, more hair and if you're lucky a hug! Good news about Trey's friend Sam. His surgery was good and he is recovering well. Bless him and his family. We pray for eveyone who has been affected by cancer and try to remember the true meaning of these holidays as well as how blessed we are by our childrens lives. The video is something put together for fun as a tribute to everyone who helped our family over the past year and to Trey as he is one fightin' son of a gun.
God Bless you and yours this holiday season and safe travels.
Where has the time gone, seems like fall was on fast forward. Incredible to believe it has been a year since this journey began. This time last year we thought we had an ear infection. Who would have thought the road that we would be travelling. Thanksgiving is just a holiday for most people, We would like to think it has become more than 1 day on the calendar for us. We try to give thanks for all that we have as often as possible whether it be the good, the bad or the in-between. Blessed would be an understatement looking back, so many people doing so much made the road a little smoother. We hope to have it stay smooth. Last month Trey had his medi-port taken out as well as a hole behind his ear from a biopsy fixed. As the Dr. was fixing the hole he was working in Trey's ear and found some tissue and wax he removed. The tumor had crushed Trey's ear canal but after removing the tissue and wax he found it and was able to open it up and see his ear drum. As Ty recounts you would have thought the Dr. won the lotto he had such a big smile on his face when he told him. A week later, the dressing, etc. was taken off and when Trey got in the car and the radio came on he got excited and told Ty he could hear out of that ear. Tomorrow we go in for a check up and another hearing test to see what the improvement is - Give Thanks day for sure! As you can see he is doing very well. His strength, appetite, weight, energy are all increasing rapidly. His hair is growing fast, Ty is jealous! He is going to school pretty regularly and is loving it. We found out today he will have his next set of scans on Dec. 17th. Nervous, very much but also optimistic. In the picture is Trey and his basketball buddy Sam. Sam lives in Mead and his older brothers wrestle in Ty's kids club and his mom is an assistant softball coach at the high school. Sam has Ollier's disease and had to have his left leg amputated Wednesday. With all the support we have recieved I just wanted to put a link to a fundraising page for him if you feel so inclined to help another family out - http://pledgie.com/campaigns/18311
We wish you and yours a fantastic, safe thanksgiving holiday.
In the picture Trey is doing his touchdown dance as he finds out that his scans came back clean last Tuesday. Very good news. He will continue to have scans done every 3 months for a year, then every 6 months. This week he gets his port taken out of his chest and also has a small hole fixed behind his ear from a biopsy. He is doing very well and has great energy and enthusiam. His spirit continues to be a great inspiration to everyone around him. It may sound silly but he has grown up beyond his years through this and can do and say somethings that you just wouldn't expect from a 5 year old. The rest of the family is doing pretty well and looks forward to Trey continuing to get healthy. The fundraiser for Trey at Noodles & Company restaurants in Longmont was incredible, beyond words. Packed with people at lunch and even more at dinner. Noodles & Co. was very generous and we thank them so much for this. Beware of a little bald headed zombie this halloween, his favorite food group is candy. God Bless.
Wanted to let everyone know of a fundraiser this week for Trey if you are in the Longmont Area on Thursday, (see the photo for details). The Noodles & Companies restaurants in Longmont are graciously donating 25% of sales for the entire day to Trey. Pretty incredible, Trey loves their Mac & Cheese. Things are going pretty well in spite of the fact we just finished up 4 days in the hospital. Trey got a fever on Monday night and so we were admitted mainly as a precaution, to make sure he could be observed and didn't have an infection of some sort. Better to have a minor inconvience than a major event. He did very well considering he was on lockdown in the room. Sharpened up his Madden NFL skills. 2 weeks til scans!
Well here we are finally, the last chemo treatment, Week 40 of 43 on the schedule. Last December this looked along way off. Today the treatment was a triple nasty so it is a little anti-climatic, as we go back tomorrow to get off fluids, get a shot and get de-accessed. Not to mention Trey has nausea, vomiting and smelly feet (okay the feet aren't chemo related). In 3 weeks Trey will get scans done and then it will be the official end of treatment. But then it is back 3 months later for scans again which will continue for the first year. We will celebrate, shoot we celebrate at least once a week sometimes more depending on what is going on. Maybe not parade and fireworks celebrate but something nonetheless. Our road while tough has been blessed with few bumps for which we are very grateful. The concern will always be there so all you can do is embrace it, stay positive and keep fighting. Trey has had great energy and attitude the past couple weeks, going to school, and playing soccer which makes life easier. Even after 9 or 10 months we are amazed at the support we continue to get from so many. We are fortunate beyond words.
What a great summer we have had. As you can see Jen and Trey carried the torch for the opening ceremonies in our backyard Olympics and then Captain Trey ran the show on a Snake river raft trip this past weekend at Ty's cousin Erin's wedding in Jackson, Wyoming. Trey likes to wear sunglasses because it's always bright out when you're cool! School has started and Trey is easing back into it. He did state one day that he would like to wait to start until college which is exciting that a 5 year old has that on his mind already but lets go ahead and cram some elementary school in while we wait. Last week was week 34, and he has his 2nd to last Triple nasty chemo. He was the trooper he has been through the entire process. He now has 2 weeks off before his next chemo treatment on week 37, which is a 5 day treatment and his last of this type beginning on Labor day. After this week 38 is a 1 day treatment, then a week off (39) and then week 40 his last chemo treatment, a triple nasty. Weeks 41-43 are evaluation. Even though we can see the light at the end we need to stay focused on now. The effect of the treatments are wearing on Trey. His weight is good even without taking appetite stimulants. His energy is good but the condition neuropathy is beginning to become more evident. This is damage to his nerves in his arms, legs due to the chemo drugs. The doctors are very aware and are constantly monitoring it. Hopefully it won't become any more severe. Trey puts on a brave face many days and his spirit remains steadfast. We're not sure tough would do justice to describe him and he wouldn't want to hear any of it anyway. He has become more comfortable telling mom and dad when he isn't feeling the best, but it takes a lot to slow him down. As you can imagine he struggles with not having the energy that at 5 he thinks he should have. His brother and sister have been on the recieving end of that frustration many times but have been more mature than their years by far. They are very caring for their baby brother and are rarely if ever selfish over the attention he gets. Trey is looking forward to starting soccer and maybe some flag football (working on his sack dance!). We continue to be blessed with love and support from our family's, friends, co-workers and even strangers. Pray for strength for Trey over these next few weeks. Thank you and God Bless.
Super Trey is on the move! Well summer is moving along and Trey is having lots of fun and doing very well. This past week he had his 3rd set of scans and things continue to look promising. We don't think the Dr's. can ever say it is gone because they can't predict what might happen but things look good where the cancer was and in the rest of his body. Trey is having a great summer playing T-Ball, Riding his bike, Swimming, Jumping on his Trampoline, and a little camping & hiking. It is hard to slow him down, if something is going on you will find him in the middle of it of it for sure. Tomorrow he starts week 31 of his chemo treatments and the last of cycle of treaments, 13 weeks. The good news is in this cycle he only has 7 treatments, 3 1-day treatments, 2 5-day treaments and 2 of the nasty Triple chemo's which last 1 day. The cup is 1/2 full! Hopefully his health will continue to hold through this last cycle as the Dr's. have said this can be a time when the treatments can begin to take more of a toll on his body. Trey has already verbally committed to playing soccer and flag football* for the fall so we are sure he will continue to will himself the health he needs to keep his commitments. He rests for nothing! We hope your summer is going well and is relaxing. Please pray for those affected by the tragedy in Aurora. God Bless.
*pending Dr. approval
Happy Summer to all. As you can see Trey has been busy. On the left is Randy Whitman who had a custom golf cart at the tournament for the kids to ride around in and also got Trey front row tickets to a Rockies game. Trey had a great time and even got a game ball! Being an experienced T-Ball player he was ready to give the Rockies some well needed advice. On the right is Tyler Schaefer whose company SAI, inc. donated a bunch of sportswear for the golf tournament to be given away, which was a hit. Trey was thrilled to be in the store and of course try on all the helments. The golf tournament was a great success and there are plenty of pictures on the tourney web page to look at, www.treytathamgolfbenefit.com . Trey's treatment's are going well and his counts have stayed up. He completed the last treatment for cycle #2 on July 2 and now has a couple weeks of only labs before he heads into the last 13 weeks of treatment. The last treatment was the nasty triple chemo which takes all day but this did not deter Trey from demanding to go to his T-ball game. We managed to get him to sit on the bench for most of the game but he did bat in the last inning and sprinted around the bases with his IV fluids backpack & Dad chasing him. His spirit is inspiring and he has a will that most times is unbreakable. We continue to be blessed by so many kind and giving people in many ways. Thank you for all the support and have a safe and fun 4th of July!
The picture is of the Golfers, Mead High School cheer and dance, and Volunteers at the Trey Tatham Benefit Golf tournament. It was a beautiful day (a little warm) to play golf. It was great to see so many people turn out and the organizers did an awesome job with everything. Ty was touched by the number of his former wrestlers and their parents who came out to play and support Trey. We have always been fortunate to be surrounded by such good people. Unfortunately Trey didn't make it out until later as he had to get some dental work done early Saturday morning that couldn't be delayed. He didn't want to miss it and was a little upset he had to come later. There were some awesome prizes, silent auction, donations, good food and fun for everyone. There were about 140 players in the tournament and some could even play golf! Trey's blood counts were back up this week and so he is back on his treatment schedule and doing well. We continue to experience such great support from so many people, it is amazing. So many people are there for us when things get tough to lift our spirits, listen, pray, bring meals, make us laugh or simply be the friend they always have been. We are forever grateful. We pray for those who are suffering and especially those who have been effected by the fires. God Bless.
Trey says "It's summer so lets hit the pool!" He has been riding his new bike and playing with his brother and sister as much as they will let him everyday. This past weekend we were in Texas to for cousin Emilee's graduation party. Trey hit the pool like a pro. Things have been going pretty well but we hit a little bump in the road today. Trey went in for chemo and his counts were below 500 (440) so he couldn't do his treatments and this week as well as the following get pushed back a week. But as we have learned be careful what you wish for because it can always be worse and we have had it pretty well so far. Hopefully he will bounce back for next week. They Dr's. have always told us that he would be tired and less active when his counts are down but Trey may be the exception to that rule. The golf tournament is this coming weekend and has an outstanding turnout, it should be a good time for everyone. Cannot say Thank you enough to all of the organizers, volunteers, Twin Peaks GC, and participants. We are truly blessed to have so many people willing to help Trey and our family.
Two special people in the picture, on the left is Diane Ruby who Ty used to teach with. She has been of grea support to both Ty and Jen and is the main organizer of the golf tournament. Don't tell Diane it can't be done or she'll show you otherwise. Coach Rob is in the other. He has been Trey's soccer coach this past fall and spring. He always got Trey going whether it was in practice or a game and never let him slack. Well the past few weeks have been a roller coaster of sorts. Great news and Good news, no bad news. The cranial nerve that has been effected by the cancer has caused a palsy in Trey facial muscles on the left side, it was one of the clues that lead us to find the cancer. It was thought that he would have some hearing loss and as we found out last week he has some but not to the extent we thought he may - great news. At a routine appointment with Trey's pediatrician we found he had some vision problems - at first it was thought he had lost all vision in his left eye - but this past week we saw the opthalmologist and found out it is much like his hearing, some loss but not as bad as thought - good news. He has to wear an eye patch on his right eye for 2 hours a day to help strengthen the left eye and could posssibly gain much of what was lost back - great news. It is amazing how he has been able to adapt to what has come his way with little to no change in his attitude. He finished up soccer and is now on to tee-ball. In fact this past week he had the nasty chemo but would have nothing to do with missing practice the same day, tough like mom! School is finishing up so it will be nice to be able to concentrate on Trey's treatments and not juggle as much. We still thank God for all of the support we get from so many people. Thank you.
Trey, Tommy and the "Pizza King", if you get to Johnstown stop by Dominic's and ask Mike for the Trey Special, Large Cheese & Cinnamon sticks. As Trey says "It's the Bestests". Trey had 5 days of Chemo this past week and did very well. Taylor went with him one day so it was nice to have big sister there. On his 5th day Trey wore Jen out by running around the clinic while hooked up. Jen had to chase him with his IV, etc. He got some looks for sure. His counts are staying good even while he fights a little cold. His does a good job of regulating his activity or making sure he sleeps a little extra. The bigger news is this is Jen's last week as she has to go back to school a week from Tuesday, so Ty will take over duties at least until school ends. Please refrain from posting your concerns just yet as Trey is willing to work with him on a temporary basis. A big thank you to the Silver Creek H.S. Girls Tennis program for doing a fundraiser for Trey and Alpine Elementary for doing a head shaving/coloring hair fundraiser. We are very grateful for all the support. Don't forget about the golf tournament on June 9th - http://www.treytathamgolfbenefit.com/
We hope everyone is doing well and thank you for your continued thoughts, prayers and support.
Here is a link to an article that was in the Longmont paper today about a great event to benefit Trey. It is being organized by some very special people. If you are a golfer, don't have to be good, it should be a great event.
Well as you can see Mr. Trey is doing well and preparing for his first season of tee-ball in the Mead youth sports program. He about jumped through the roof when asked if he wanted to play baseball. His blood counts are up and hopefully will continue to stay up. He has been going to school a little bit more and just loves being there, he has gone the whole day the past 2 days. Funny story as we were leaving school, one of Trey's classmates is on the jungle gym as we walk by he yells "Hey Trey do you have Cancer?", Trey doing his cool guy walk says "Yes until I'm 6" his buddy says "Okay see you tomorrow". Somewhere in there is a good lesson. It was great to witness. The statement It's a small world has never been more true than another instance of the great people we work with. One of the ladies Ty works with has a sister in Tulsa, Oklahoma who went to a Massage Therapist. They began to talk at the MT said she had cancer as a kid. The sister was aware of what was going on with Trey and got Ty's numbers and forwarded them to her. Well long story short Hillary had the same type of cancer as Trey, in the same place and at the same age about 23 years ago. We look forward to hearing her story and sharing. Hope all is well with everyone. Thank you for your continued support.
Well the past 2 weeks have been great. Last week was a check up and this week was a PET Scan and CT scan. The Dr.'s didn't have all the information but what was said was that things are looking good and on track treatment wise. Trey get his blood checked each week whick is used to calculate his ANC, which is a number related to all of his levels of white blood cells, hemoglobin, etc. He has been quite a bit above 1000 for most of his treatment but the other day he was 28. Below 500 is critically low and they told us we would see changes in Trey's energy levels when it gets this low. HA, the only change was maybe going to bed 10 minutes earlier. We were shocked to say the least but this week his count was up to 3000 again. Good Meds help. This week was spring break for us so we had a little staycation, hitting some of the local hotspots. The 3 amigo's caught some rays at G'ma's "pool". Grandpa Tom and Grandma Sue were out for a few days, it was nice to see them and they did their best to spoil the kids. Aunt Bobbi and Cousin Claire were here as well, so never a dull moment. Next week back to the grind as Cycle #2 begins, only 28 weeks left! Hard to say anything is easy in this but at least now we are familiar with all of the chemo meds and their effects. Plus there is no radiation! Jen has and will continue to be a rockstar in this adventure. Our families continue to be of great support no matter where they live. Our many friends are also there when needed. We are blessed beyond words! God bless you and yours.
Things are going well this week. Trey is doing pretty well even after the nasty chemo he has today (fingers crossed). He managed to keep the doctors somewhat entertained with his exploits. As you can see in the picture (w/coach rob) he played with his soccer team, in pajamas with his feeding tube taped to his shirt, and managed to score a goal! He was a bit tired but had a great time with his teammates. A special moment for sure. He has managed to attend school more often the past few weeks so he can maintain his social status plus he likes to eat in the cafeteria. We are fortunate to have some special people who are willing to work with Trey so he can keep these things in his life, he loves to do both. We continue to adjust to what comes our way as everyone does. Please never feel like your problems don't deserve our ear. Friendship is a two-way street and we want to be there for you like you are for us. If it is important to you it is important to us. You don't ever have to qualify what is going on with "but it's not near what you are going through", everyone can use someone who will listen. Good news no chemo for 2 weeks, YAHOO! Round 1 of 3 treatment cycles is finishing up as Trey will have scans and check ups over these two weeks. This video got lost and magically appeared recently so here is the type of spirit Trey has had since the start. Gotta love the "Tebow" http://youtu.be/jMD8n2D3S50
Well just like when you run a marathon and you pass one mile marker and think things may get easier but then you start cramping up, we got a cramp the past couple weeks. But we will push on!Trey went in for chemo about a week and a half ago and it went well. Next day he came back for a check up from the chemo and his lungs were acting up a little. The Dr. gave him some treatments and they weren't helping so they decided to put him the hospital overnight to be cautious. Well his throat started to close up and so they had to put a breathing tube in and moved him to the ICU, where we were for 3 days followed by 2 more days in the hospital till they felt he was ready to go home. At first they thought he had chicken pox and were concerned not only for him but also for those who were in clinic the day he was there. So they had to confirm the diagnosis and until then we had to stay. Well long story short they never did and called it a cold. Scary for a bit but Trey did very well. As you can see in the picture he also had a feeding tube put in so we can help keep his weight up as his throat heals up. He will probably have it for awhile. If you haven't noticed in most if not all the pictures of Trey he has his jammies on. Aunt Marci calls him the "Hugh Hefner" of his age group. He won't even entertain the idea of wearing anything else. We continue to have a ton of support and can't say thank you enough!
Last week turned out to very good. Trey has kept his weight up enough to dodge the nutrient treaments for now. The picture is just before he went in for his last radiation treatment and he got to put his hand print on the wall. He was so happy. We are glad to be done with that phase of treatment. We had some awesome people who helped us get through it all at University Hospital, Thank you. Trey has physical side effects that will be dealt wth over the next 4-6 weeks from the radiation treatment, such as mouth sores, sore throat and irritated skin. He has kept his great spirit throughout though. Last Monday was Trey's 5th birthday and when he went in for chemo they had a cake and presents for him, he was so excited and very thankful. He got a guinea pig also, please hold the laughter, and everyone loves him so far. This was the week leading up to the State Wrestling tournament and Trey and Ty got a little press http://www.denverpost.com/preps/ci_19974784. Jen and the kids made it to the finals for a bit and the post writer came up and met Trey which was very special. The yellow Pinning Cancer for Trey shirts were very visible over the 3 days of the state tournament with many teams, coaches and spectators wearing them. On Saturday night 3 kids on one team and their coach wore theirs in the parade of champions, they all won state titles. Two coaches wore them over their shoulders in the parade and put them on the back of their chairs during their finals matches. It was great to see all the support from the wrestling community. Ty was approached by many coaches, wrestlers and fans who offered their prayers and support. Wrestlers stick together, help each other and make each other better people, so happy to be apart of such a great sport and community. Monday we didn't have school so not only was there no early wake up call for radiation but not for school either...nice! It felt good to sleep in. Hopefully not having to get up early and being able to eat breakfast will help with Trey's weight. Long treatment day on Wednesday. Pray for Strength for all of those involved. Bless you and yours!
Last week was a good week but this week is going to be even better. Trey turns 5 on Monday, he is showing you some early birthday cake in his picture. That wasn't the plan of the picture but hey go with it. The past week was good not great. Trey will go on Nutrient treatments on Monday to help with his weight as he is down a few pounds. He tried the "Dad" diet but it is hard for normal humans and even swine to follow. His throat and voice are okay. Hopefully we can manage the mouth sores as they won't go aways for another 4-6 weeks. The biggest celebration will be Friday, the end of radiation! The last miles of this marathon are here. Jen has been amazing doing this and I can't say she will miss the drive to Aurora everyday. Without Grandma D and Grandma K we would have been crushed. There will never be the right words to say how much their help has meant. Aunt Julie, Aunt Marci, and Aunt Kris chipped in also, thank you. We had some amazing events this past week we wanted to share. 1st at Ty's school they had a silent auction to shave someone's hair. The participants were members of the wrestling team, male staff including the Principal, Asst. Principal and AD. About 150 teachers, parents and students stayed after school to watch and it was fun. Here is a link to pictures the newspaper did the day of and before http://www.timescallmedia.com/sports/#id=album-302950&num=content-5526772 . 2nd if you notice the shirt Trey is wearing it says "Pinning Cancer for Trey". This benefit was put together by Roy True, a former asst. of Ty's and Eric Penfold, Head Coach at Greeley Central. The wrestling community has been tremendous and showed again why it is such a great sport to be in by purchasing almost 1,000 shirts. If you think you would like a shirt you can contact Roy at firstname.lastname@example.org , they are $10. 3rd on Sunday there was a Zumba-thon and silent auction put on by Nicole Buhlig, who works with Jen. Trey loves Zumba as they have it in the afterschool program so it was great. Jen is going to be a tad sore as she pushed the Zumba envelope. It was great to see some people we haven't see for a few weeks and our pediatrician was there as well. We met some great people as well some who have been down this road. Can't say Thank you enough. God bless you and yours!
We survived the snow storm last week and are in the middle of week 8 of chemotheraphy and week 5 of radiation. Trey is doing pretty well but is beginning to experience the effects of 20 days of radiation as his voice is very scratchy and he is getting sores on the roof of his mouth and cheek. These sores are making it harder for him to eat and so we are working hard to get him to keep up his calorie intake. Jen told him just to eat what Dad does and his weight would go up, ouch! The picture is of Trey at chemotheraphy, all hooked up. He likes to do laps on the trike around the nurse stations so you have to chase him with his IV in tow. Now this is not just a couple of laps, he likes to do anywhere from 25-35 laps and he gets hot if you can't keep up with him. It is truly amazing to see and as he passes other patients they are a bit astonished to see this little twerp buzzing around. February 17th is going to be a great day - the end of radiation. Trey turns 5 next week also, so much to celebrate! We continue to be amazed by all of the support by so many people. We can't say thank you enough. Good luck to all the wrestlers at the end of their season, may everyone be healthly and strong as they chase their dreams!
Well another week has passed and as you can see in the picture of Trey he is doing well. It's always bright out when you're cool! Really though the sun bothers his eyes, so he screams for those shades. Also you can't really notice in the picture but the tumor caused some damage to the facial nerve on his left which has lead to some sagging of his cheek, his eyelid doesn't close completely when he blinks and when he smiles it is a little crooked - but it is still a smile we cherish. The Doctors have said it may or may not go away which in the big picture is minor and will only add to the legend of Trey. Aunt Marci came and stayed with us last week from Wednesday through Saturday, she took over Grandma K's duties. She said it was a little like a vacation, we think she is a pretty good poker player. The kids loved having her around and she made them all laugh. Trey still loves to wrestle in the living room, and he remains undefeated against all comers. He looks forward to the Super Bowl as his favorite team is playing - the winning team - which is who he roots for, just ask him! This week is full with Week 4 of radiation and 5 days of chemo. Pray for continued strength for Trey, he is truly an inspiration. God Bless you all for your support.
Another week on the road to recovery and being cancer free is down. As you can see we have another member of the no-hair club. Uncle Jon calls this a "Trey-hawk" since Trey thinks he got a Mohawk. This week has opened our eyes to the road ahead. Ty, Tommy and Taylor all had a little bug and when Trey went in for a check up with Ear, Nose and Throat on Thursday he had a temp of 100. Trey was born 2 months early and has always had some issues with illnesses. His oxygen levels were down some but they sent us home. When we came back in Friday his O2 was still down so as a precaution they put us in the hopital. Better to not let something little turn into something big. Trey will get the chance to spread his love and build his legend to even more nurses since he is on a different floor. His blood counts are good and hopefully by Sunday he can come home and stay the course for treatment. The amount of giving has been incredible and more than was imagined when Ty's brother Matt set this up. At the encouragement of others the goal has been increased. Words will never begin to express our gratitude. Trey has a team. This team has Doctors, Nurses, Social workers, Child life specialists, Nutritionists, Pharmacists, Mom & Dad, Brother and Sister, Grandma's and Grandpa's, Aunts and Uncles, Cousins and YOU! Thank you for being apart of Trey's team. GO TEAM TREY!
Well another week is almost over and things continue to be pretty good. Trey is losing his hair very rapidly so Uncle Jeff and Grandpa Gary both shaved theirs to join the No-Hair club for Men. We got Trey to shave his hair so the hair loss would be shortened . He thinks he got a Mohawk which is just fine with us. He has done well so far with Radiation and his chemo treatment is everyday this week as well. He is in great spirits and likes to ride laps around the nurse's station on a trike, all while hooked up for chemo! There have been some rough spots with him taking medicines but everyone has survived the scuffles so far - Thank goodness he is only 4 or there could be some injuries. Tommy and Taylor are doing pretty well too. They sometimes tire of their baby brother getting so much attention but understand as much as they can. They do have a new chauffeur who takes them to and from school - Grandma Kaye, so they get some special treatment as well. Jen and Ty continue to be overwhelmed by the support of so many people. Grateful is not enough to say how much everything and everyone has meant. We are blessed to have so much support from so many people.
Today Trey had his 3rd chemo treatment. Other than the trauma of accessing his port it went very smooth. Next was the radiation simulation and mapping where they made a plastic mesh mask to secure his head for treatment so they can accurately treat the same area every day . Mom and Dad have made a quirky little habit of asking most of the Dr.'s we meet where they went to Med school just as a way to get to know them better. Today we asked Dr. Lu, Trey's radiology oncologist, where he went. He told us he got his Bachelors, Masters and PhD from MIT and his Medical degree from Harvard. Ty being a bit of smart aleck said "Couldn't get into Western State huh!". Not sure he found it funny but Ty did. Never lose your sense of humor! Tomorrow we return to CU to make sure his mask is still a good fit and have a follow up with Ear, Nose & Throat. His hair is beginning to fall out so we may get a trim this weekend to lessen the impact. As you can see in the picture Ty's cousin Taig wanted to show Trey support by letting him know cool guys go bald - He lives in Alaska, brrrr. Trey's spirit is very inspiring, he is showing Mom and Dad how to be brave. We want to thank everyone for all of the support we have recieved in many different ways. In the low points it is comforting to see so many people who are pulling for Trey. Thank you!
Wow! Jen and I are humbled by all the generous donations and messages. Words will never be able to say thank you enough. The world is not what you see on the 5'oclock news. Trey has had a great week. He is beginning to take his meds without a fight and eat a lot more, not super nutritious but it is a start. He has had 2 chemo treatments so far and these will hopefully continue weekly for 43 weeks if his blood counts stay good . He also has a mapping meeting for radiation on Wednesday. Radiation will start Tuesday Jan. 10 and continue M-F for 28 days. His treatment plan is aggressive and as we were told with the mission of him being cancer free at the end! We are all working on getting used to the new "normal" and the amount of support we have gotten from family and friends helps very much. Thank you and Happy New Year!
While Trey's diagnosis is very favorable he has a long road to go. He has begun chemotheraphy and will begin radiation treatment next week. He had a great christmas with his family and is in pretty good spirits.
Trey was diagnosed with Rhabdomyosarcoma on December 12. This is a soft tissue cancer which accounts for 4% of all childhood cancers. 350 cases are diagnosed each year in the United States and the majority of these are in children younger than the age of 9. Forunately for Trey the Cancer is only located in his ear canal and nowhere else in his body. He has a long road of treatments and tests ahead of him but with your words of encouragement he will make it.
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