Hello, hope this finds you enjoying some spring weather. Trey had surgery about 2 weeks ago to reconnect his damaged facial nerve to a nerve in his tongue (Hypoglossal) to help relieve some of the palsy symptoms on the left side of his face. This was more for aesthetics moving forward than any functional need. The surgery was about four hours and he spent the night in the hospital. Trey's ENT doctor is #1 or #2 (depending on which poll you read) in the country so we feel very lucky to have Trey in his care. Dr. Chan and Trey have slowly developed a friendship as Trey is not fond of anyone who pokes around his ear but he has warmed up to Dr. Chan in the past year. Dr. Chan performed the biopsy way back when this party started and had the difficult task of telling us that it was something to be concerned with. He has become more than just a doctor for us like so many other's at Children's. We are blessed and grateful to have such great and caring people for Trey. The day after the surgery Dr. Chan informed us that Trey would need to abstain from bike & scooter riding, jumping on the tramp, and any contact sports/rough housing for 3 weeks. Uhhh so do you want to tell him that or is there someone who can because that won't sit well with him. 2 days after we got home he was on the tramp in wrestling match with 1 of the neighbor kids so we had to breakdown and offer up the xbox to slow him down. His scar is pretty noticeable right now and he likes to tell people he fought a ninja-bear in the alley by the ice-cream store. The effects of the surgery will take time and change as he continues to grow but as you can see in the pictures there are some subtle changes already. When Trey gets anesthesia we try to get as much done as possible so he had his scans and blood tests done, which all came back looking good. We tried to work in getting his finger and toe nails clipped but that isn't in our insurance network. He continues to stay very busy with activities, and loves school. His next set of scans will be the last of the round at 4 month intervals and then he will go to every 6 months for the next 2 years. Amazing to think of where he is from where he was. Every day is not good but there is good in every day! Take care!
Happy Thanksgiving to all. We have so much to be thankful for, our families, friends and so many others who have touched our lives in so many ways. We hope you have a wonderful day. Trey had scans today and they came back N.E.D., no evidence of disease. Always an incredible feeling, never to be taken for granted. He has grown 3 inches and gained 5 pounds in the last 4 months which is great. His feet seem to be exploding as he has needed new shoes a few times these past few months. Today was also significant as it was the first time he has done scans without anesthesia, so nice to leave without that hangover. He is also now 2 years post treatment!! He finished up concurrent soccer and flag football seasons and is moving in to wrestling and basketball. Not sure how those two work together but he enjoys them. He is hard to slow down, which is a blessing as well. School is going very well and he loves his teacher. He told the doctor today that math and reading are his favorite subjects, hopefully it will stay as such. Attached is 1 of 2 commercials Trey did as an ambassador for Children's Hospital with a local Subaru dealer. These have appeared during Colorado Rockies and Colorado Avalanche games. It is funny when people tell us they saw Trey on TV. He has no idea!! Have a wonderful Holiday season.
Trey had scans yesterday and thankfully they came back clean again. At the end of September he will be 2 years out from his last treatment. Hard to believe it will have been that long. He is doing pretty well, a few minor bumps in the road. In March he got a tooth infection that got pretty bad and had to spend 3 days in the hospital. Then in April he got a flu bug and just got so dehydrated he spent another 3 days in the hospital. More tales for the legend of Trey. As you can see from the picture he has been out and about in his role as an ambassador for Children's Hospital. He was a little nervous when he had to walk out for the Avalanche fashion show, but Coach Mario helped him make it. He was at the grand opening of the Ryan Secrest Studio and movie at Children's. Got to rub elbows with Ryan. But the highlight was meeting Todd Helton, former Rockies player. Trey was in the middle of baseball season and was speechless, which if you know Trey is doesn't happen often. He couldn't stop talking about meeting him. He got to help lead the parade of Rockies Rookies out on to Coors field at a game and told Mom & Dad who each player was as we past them or during the game. Whatever sport he is playing he is fully immersed in, watching games on TV, finding highlights on youtube or playing it with his brother. He does not want to miss the All-Star game tonight! He also enjoyed free Slurpee day with his brother and sister, summer is good. He is also going to STEM summer school, (science, technology, engineering and math) and has a fabulous teacher. He will be starting 1st grade here pretty soon and really loves school. His next scan will be in November and hopefully his first without anesthesia as the recovery afterwards is not fun, very agitated. Thanks again for all of your support and enjoy the rest of the summer!
Trey had scans on Wednesday and they came back clean again. The doctors feel like he is doing very well and his recovery is coming along nicely. He is doing very well in school and stayed busy this winter with wrestling and just finished basketball. He took a trip to Florida with his brother, sister, grandma D, cousin Morgan and mom to watch mom run a marathon. The race was a fundraiser for Give kids the World, and included a trip to Disney World. Not a bad trip in January. Trey is also going to be a cancer ambassador for Children's Hospital. We don't know many details but he has a kick off luncheon at the Denver zoo Saturday and a fashion show with the Colorado Avalanche at the end of March. One sad thing that we experienced is that two of the people who gave a lot of care to Trey are sadly moving on our main nurse Kerri move to a new Children's location and Dr. Lindsey is going to Cincinnati to do some other research, they were both awesome throughout Trey's treatment. We will miss them. Prayers for strength to everyone affected by cancer.
Well Trey had scans on Monday and thank God they came back clean. This marked 1 year after the end of treatment, so it was certainly special. Where has the time gone?? He will now have scans every 4 months with his next in January. As you can see he is doing very well, as are his brother and sister. His hair is getting very dark black as it used to be more dark brown. He has finished speech therapy, which went well. He is getting stronger and is force to be contended with in sibling wrestling matches. He started Kindergarten and is very aloof when asked if he likes it. He loves it but cool guys gotta keep it on the down low ya know. He has been told that recess and lunch do not count as subjects when asked for favorites. He is busy this fall playing both soccer and flag football and likes to practice both in the living room with complete disregard for anything fragile. If mom shuts down practice he likes to record college or pro football games and make dad sit with him and break the film down to pick up tips or tell dad how Peyton Manning could be better. Jen is training for a marathon in January in Florida. The marathon is a fundraiser for Give kids the World village, which is where we stayed during Trey's make a wish trip and hosts families from all over the world. She is trying to raise $3000, which will help benefit more families staying there. It is an amazing place, with many amazing people. In addition Tommy, Taylor, Trey and Jen will volunteer to work at GKTW for one day while there. Here is a link with information and if you wish to donate. https://www.firstgiving.com/fundraiser/JenniferTatham/wdwmarathonweekend2014#.UcMY2VyCgTQ.facebook
Thank you for your continued support and God Bless.
Summer is here. We had a great time on the Make a Wish trip to Orlando as you can see in the picture. Trey and family were treated like kings and we were spoiled more than being at Grandma's house. The place we stayed is called Give kids the world and the title fits. Ice cream all day, 2 pools, dining room, disney character visits, train, minature golf and parade's almost everyday. As you can see the house's are made to look like a fairy-tale village which the kids love. It hosts families from all over the world who are on trips like ours. We managed not to run ourselves down while doing as much as possible. 2 of the Disneyworld park, Sea World and Universal. Lot's of walking, which helped to work off all the food. Trey started his trip to Disney and decided he could ride Space Mtn. Well, he had fun for half the ride and then he wanted it to stop. After that if he couldn't see what it did he didn't want on it. As you can see we had front row seats for the Shamu show as you can see. Great seats for most of the show and then at the end 3 of them pulled up and showered us with 3 waves of water. Drenched would be an understatement, but it was worth it. Trey got to take on Darth Vader and use all those sword skills he and his brother have been honing for years. Afterwards he got to meet Darth and get a picture taken with him, not to close thou since he is a bad guy. It was really nice to see everyone have a good time and a great experience for our family. We would never be able to say thank you enough to those who made it possible. We are very grateful for the trip and humbled at the same time as we met many other family's who went through as much or more than us. Trey is having a great summer playing baseball (just ask him he'll tell you how good he is), going to summer rec and hanging out with his big brother. He has scan's this next week and we pray they come back as clean as his plate on Mac & Cheese night. God Bless!
Summer is almost upon us! Trey has found out who his kindergarten teacher will be next year and is very excited. He is ready for summer to start but more on that later. In the picture is him and 2 other boys who are going to be part of "Frank's Ride" on Sunday. This is a fundraiser for the Make-a-wish foundation and the ride is a sponsor for Trey's make-a-wish trip. His helment is custom fit with signatures from Frank's Ride board members. On Sunday Trey will ride in a side car. About 400 other bikers will be there and will tour 4 northern Colorado watering holes for brief stops. It finishes up at Anderson Farms with a BBQ and music. Very exciting and humbling to say the least. We met some great, caring people the day the picture was taken. It should be an adventure. When school ends next week, we have a few hours to get ready to go on Trey's make-a-wish trip to Florida. He picked DisneyWorld and we get to stay at a great place called Give kids the world. There is not much they don't have there and Trey was very excited when he found out they start serving ice cream at 9am in the morning (*see below)! He can't stop talking about seeing Mickey Mouse and hopes to see a gator! He is very deserving of the trip and we are so grateful to everyone who has made this possible. Trey had some dental work done last week, as he still has some issue's with his teeth from treatment and his lack of brushing (uh ice cream for breakfast, okay maybe once). The dentist has to have Trey knocked out as he won't sit still and fights like the Tasmanian devil. He bounced back pretty well and was playing soccer the next day. He is finishing up flag football and soccer, and is starting baseball. No rest in him. It's gonna be a great summer! Hope things are good in your neck of the woods.
Good news Trey's last scan was clear, his next one is in June. He is doing very well and is continuing speech therapy to help with nerve damage on the left side of his face. He is busy with school and sports. He is playing soccer, flag football and will begin baseball in May. Busy is an understatement for him. He would do more but there are only so many hours in Mom and Dad's day. Trey is looking forward to his Make-a-wish trip in May to DisneyWorld. As you can imagine his popularity has risen with his brother and sister because of this. It should be a great celebration for our family and all he has endured. Trey's t-ball coach, who works for 9news in Denver put together a great story on Trey. It included his friend Sam who is a great inspiration with an attitude like Trey's. It's a good thing they go to different schools or some teacher would be in for ride for sure. Here is the the link to the story. God Bless! http://www.9news.com/sports/article/330602/345/Five-year-old-battles-Cancer-with-Sports
Well as you can see Trey is a round-baller. Just finished his season and he is a ball hog, just like the rest. If he doesn't have the ball he is yelling at whoever does to pass it to him. He does well on defense, but his height doesn't help his game. If he goes out for a rest he gets a drink and then is on the coach to put him back in so at least his energy level is improving. He is doing well fought off some colds, got his 2nd haircut recently, and is slowly gaining some weight. He is already looking forward to his next sport and is really enjoying school. He loves to be outside or wherever his big brother is. He goes in for a scan this Wednesday and we pray it will be as clean as the last one. Please say a prayer for everyone who is fighting cancer.
Well we hope this finds everyone enjoying the New Year and all. As you can see Trey is doing well. He got his first haircut a few weeks ago. Big deal to Mom and Dad, to Trey yeah whatever. His Christmas was very good and he recieved many gifts. It was so nice to see him so excited and he was very appreciative in the brief moments of catching his breath. He is just a kid again and that is our greatest gift. Thanks to cousin Brett, Trey was lucky enough to attend the Bronco's playoff game. He was tough in the frigid cold but his brain froze a tad as at the end of the game, he asked Aunt Marci "Did we win?". He came home with some awesome gear from a very generous gentleman. Even though the picture is in a wrestling singlet (dad likes to dream), Trey is pounding the hardwood this winter with the Mead Longhorns and loves to shoot baskets. He really likes his coach and does not like being out of the game very long. Dad hopes he loves fouling and is forced to give it up for something with a little more contact, see picture above. Trey has started speech therapy as the nerve damage from the tumor caused some minor problems. Better to address it now than later. His immune system is doing well and he has fought off a few little colds, etc.. He is still not 100% and gets tired going to school full time towards the end of the week, so we have to keep and eye on him. Trey found out that he was granted a wish through the Make-a-wish Foundation and will be going to Disney World in May. Brother and Sister weren't too disappointed as the whole family gets to go. Trey certainly deserves this after his journey and we are most thankful to Make-a-wish and everyone who supports it. We are humbled still by the amazing support we recieve from so many. Many, many people still ask about Trey and wish him well. Trey has his next scan in March, please keep him in your prayers and God Bless you.
Trey was diagnosed with Rhabdomyosarcoma on December 12. This is a soft tissue cancer which accounts for 4% of all childhood cancers. 350 cases are diagnosed each year in the United States and the majority of these are in children younger than the age of 9. Forunately for Trey the Cancer is only located in his ear canal and nowhere else in his body. He has a long road of treatments and tests ahead of him but with your words of encouragement he will make it.