Texas trip from Kansas for specialist
Ive been suffering from unknown daily chronic headaches since July 2004. Ten years of this, with absolutely NO diagnosis that sticks! I never had headaches before then. One thing that sticks out is that I had shingles at 21 on my lower left side across my back all the way to the front of my stomach. I do have gliosis (scarring of the brain) but nothing else physically wrong. I am forced to take various medication, been to four neurologists, 17 emergency room visits, four pain specialists, you name it. Ive been on all of the anti-seizure meds, indomethacin for Hemicrainia Contiunua (no luck), pain patches, physical therapy, nerve blocks, three epidurals that still hurt.
I am an IT professional at a Kansas state ran mental health hospital and missing work is very rough on my co-workers. Not to mention how it has affected my friendships, relationships (currently single), and even how I interact with my family.
I feel like I am the only one ever to go through this at times, and I just want to be 'normal' again. I am tired of the doctor visits, the medication, and missing work. I had an appointment this next week with a headache specialist in Texas but I cant afford it.
Im just at my wit's end with this. I am 32 years old and I have spent a third of my life in constant, daily pain.
EVERY SINGLE DOLLAR AND CENT I do not use for my trip I WILL donate back through Gofundme to others in trouble with chronic pain. I can be a fairly crass person (and thats being nice!) but I dont think I can name ANYONE I dislike enough to wish this or any kind of pain on. And I've been wronged before to the point where even the pope would say "wow, what a d!ck!" hahahaha.
Thank you to everyone who has donated thus far, and this has given me hope....something I am sorely lacking in my life.