Thank you for stopping by my page. My name is Robert Postel and I am raising money for Stem Cell Transplant care before and after treatment. I have insurance but it does not cover help required for travel, outpatient care and home care upon return. I have what is called
CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) it's an auto immune disorder related to Guillain-Barre' Syndrome that attacks the use of my arms and legs and it affects about 1 or 2 people per 100,000. I am now part of a Phase 2 trial that has included 17 people for CIDP and many others for Multiple Sclerosis with the same treatment at Northwestern University Feinberg School of Medicine in Chicago under care of
Dr. Burt
Doctors and scientists will be following this study and me for the next 5 years and many others will benefit. With the help of your contribution toward my stem cell treatment I have a realistic hope of being able to resume doing activities that give my life meaning.... Your contribution, of any amount is appreciated...beyond words.
About me: My interests include people, music performing, songwriting, surfing, diving, hiking and chess. Here is one music page for a listen if you wish to dig a little deeper or (Visit Store) and donate by download at
www.reverbnation.com/robertpostel
Some background: This condition was triggered by a Cholesterol medication (Zocor) which was suggested to me after going in for a routine physical at Sansum Clinic in Santa Barbara. After being told to to "Expect" muscle cramps (I felt them) I went surfing after feeling weak I developed a Statin Induced Myopathy (muscle damage injury) triggering in my body a case of Guillain-Barre leading then to CIDP (both autoimmune related issues) to date they say there is no cure but thanks to Alice & Sophie at
www.alicedicroce.com she has given me hope and has been an awesome leader and resource. Click on Robert's blog in Alice's website to learn more or read other peoples stories and links. Also feel free to ask me questions or share your story with me. As a follow up Sansum Clinic and there insurer The Doctors Company told me it was my fault for listening to there doctor and refused to help in the least bit. They of course would not put this in writing as it is the low road for them all the way. For this reason I am tagging this with the Sansum Clinic name as I will raise the funds on there bad reputation and we are moving up the ranks. Sansum Clinic, Sansum Clinic Injuries, Sansum Clinic Santa Barbara who is rumored to merge with Cottage Hospital Santa Barbara. Thank you to all humans for stepping up with your kind words and donations.
Sincerely, Robert Postel
Supporters can also help by funding Statin studys.at
www.statineffects.com
This report is available as a PDF and not funded by pharmaceutical company's.


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Dear Robert, Although we hardly know each other, I have donated what my budget will allow. I care about people like you, who by no fault of their own, experience therapeutic drug induced injury/illness. I have a good friend who took Cipro and for 3 years has suffered a whole list of problems. We don't know if it was a bad batch or just too strong of an antibiotic for a bladder infection. What I do know is that the more information that folks like us get out there about prescription drugs harming people, the better educated patients will be regarding the complications. Stay strong. I am so happy to hear that you are doing better. Blessings to you
posted by Lisa Starr 11 months ago
Come join us this Saturday at 1pm for a great bbq and music to benefit Robert! 2865 San Marcos Ave, Los Olivos, Ca 93441. Contact: Gabriella. 686-1312
posted by Gabriella Valsecchi 11 months ago
So glad to see that you feel this is working! YAY! I look forward to seeing you on the 4th for the benefit! Love and healing...R
posted by Rebecca Troon 11 months ago
Hey, Robert! thinking of you and sending love and healing your way. So grateful you are now on this healing path!
posted by Rebecca Troon 12 months ago
You'll be home before you know it & feeling damned good to boot!
posted by Kris 13 months ago
Hi Robert, I just thought I would let you know that I am praying for you here, that God keeps you strong for your treatment and provides wisdom to your medical providers.
posted by Ben E. Brady 13 months ago
Keeping you and this situation in prayer......the medical field is a tough institution. keep persistent.....praying for justice....and healing.....
posted by Michelle Carlino 14 months ago
Hi Robert, great show tonight! To follow up on Gabriella's post, the BEST work is wonderful! Also, are you taking coQ10? Let's talk soon. xo
posted by Kalia 14 months ago
Hi Robert, I would be glad to donate my work to you. I do energy and nervous system balancing called BEST. Please contact me if it resonates. I believe the body can heal! Best wishes, Gabriella. gabriellaval@gmail.com
posted by Gabriella Valsecchi 14 months ago
$25.00 coming your way!!
posted by Cinder Jean 15 months ago