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Stem Cell Transplant Pre and Post Care.

 
Raised: $8,159.00
Goal: $10,000.00
 
 
 

Created by

Robert Postel

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Thank you for stopping by my page. My name is Robert Postel and I am raising money for Stem Cell Transplant care before and after treatment. I have insurance but ... more

 
 
 

Updated posted by Robert Postel 4 months ago

To finish they caved and admitted...

To finish they caved and admitted there was resentment that I have went over there heads to people with more education and improved greatly. Beware of the ego for in cases some doctors will not tell one about this program as they don't get credit. Thought there was an oath?

 
 

Updated posted by Robert Postel 4 months ago

I wish to say my credit...

I wish to say my credit is now back in tack, the one doctor I so want to name was lying to me saying they could do nothing and basically wished to inflict pain but I offered Robert's policy would be a write up on line and in the paper exposing her lies and shame

 
 

Updated posted by Robert Postel 4 months ago

Richard, Thank you but I wish...

Richard, Thank you but I wish to help you so let me know as you get closer and I'll see what I can do. I was debating on closing page as I am improving yet have a long way to go and this may help someone like yourself. Thank you to all and a happy new year.

 
 
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Created by Robert Postel on February 5, 2011

 

About This Page

Thank you for stopping by my page. My name is Robert Postel and I am raising money for Stem Cell Transplant care before and after treatment. I have insurance but it does not cover help required for travel, outpatient care and home care upon return. I have what is called CIDP (Chronic Inflammatory Demyelinating  Polyneuropathy) it's an auto immune disorder related to Guillain-Barre' Syndrome that attacks the use of my arms and legs and it affects about 1 or 2 people per 100,000. I am now part of a Phase 2 trial that has included 17 people for CIDP and many others for Multiple Sclerosis with the same treatment at Northwestern University Feinberg School of Medicine in Chicago under care of Dr. Burt

Doctors and scientists will be following this study and me for the next 5 years and many others will benefit. With the help of your contribution toward my stem cell treatment I have a realistic hope of being able to resume doing activities that give my life meaning.... Your contribution, of any amount is appreciated...beyond words.

About me: My interests include people, music performing, songwriting, surfing, diving, hiking and chess. Here is one music page for a listen if you wish to dig a little deeper or (Visit Store) and donate by download at www.reverbnation.com/robertpostel

Some background: This condition was triggered by a Cholesterol medication (Zocor) which was suggested to me after going in for a routine physical at Sansum Clinic in Santa Barbara. After being told to to "Expect" muscle cramps (I felt them) I went surfing after feeling weak I developed a  Statin Induced Myopathy (muscle damage injury) triggering in my body a case of Guillain-Barre leading then to CIDP (both autoimmune related issues) to date they say there is no cure but thanks to Alice & Sophie at www.alicedicroce.com she has given me hope and has been an awesome leader and resource. Click on Robert's blog in Alice's website to learn more or read other peoples stories and links. Also feel free to ask me questions or share your story with me. As a follow up Sansum Clinic and there insurer The Doctors Company told me it was my fault for listening to there doctor and refused to help in the least bit. They of course would not put this in writing as it is the low road for them all the way. For this reason I am tagging this with the Sansum Clinic name as I will raise the funds on there bad reputation and we are moving up the ranks. Sansum Clinic, Sansum Clinic Injuries, Sansum Clinic Santa Barbara who is rumored to merge with Cottage Hospital Santa Barbara. Thank you to all humans for stepping up with your kind words and donations.

Sincerely, Robert Postel

Supporters can also help by funding Statin studys.at www.statineffects.com
This report is available as a PDF and not funded by pharmaceutical company's.
 

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Dear Robert, Although we hardly know each other, I have donated what my budget will allow. I care about people like you, who by no fault of their own, experience therapeutic drug induced injury/illness. I have a good friend who took Cipro and for 3 years has suffered a whole list of problems. We don't know if it was a bad batch or just too strong of an antibiotic for a bladder infection. What I do know is that the more information that folks like us get out there about prescription drugs harming people, the better educated patients will be regarding the complications. Stay strong. I am so happy to hear that you are doing better. Blessings to you

posted by Lisa Starr 11 months ago

Come join us this Saturday at 1pm for a great bbq and music to benefit Robert! 2865 San Marcos Ave, Los Olivos, Ca 93441. Contact: Gabriella. 686-1312

posted by Gabriella Valsecchi 11 months ago

So glad to see that you feel this is working! YAY! I look forward to seeing you on the 4th for the benefit! Love and healing...R

posted by Rebecca Troon 11 months ago

Hey, Robert! thinking of you and sending love and healing your way. So grateful you are now on this healing path!

posted by Rebecca Troon 12 months ago

You'll be home before you know it & feeling damned good to boot!

posted by Kris 13 months ago

Hi Robert, I just thought I would let you know that I am praying for you here, that God keeps you strong for your treatment and provides wisdom to your medical providers.

posted by Ben E. Brady 13 months ago

Keeping you and this situation in prayer......the medical field is a tough institution. keep persistent.....praying for justice....and healing.....

posted by Michelle Carlino 14 months ago

Hi Robert, great show tonight! To follow up on Gabriella's post, the BEST work is wonderful! Also, are you taking coQ10? Let's talk soon. xo

posted by Kalia 14 months ago

Hi Robert, I would be glad to donate my work to you. I do energy and nervous system balancing called BEST. Please contact me if it resonates. I believe the body can heal! Best wishes, Gabriella. gabriellaval@gmail.com

posted by Gabriella Valsecchi 14 months ago

$25.00 coming your way!!

posted by Cinder Jean 15 months ago

1 - 10 of 10 Comments
 

Recent Donations (73)

$29.00

Anonymous

4 months ago

 

$100.00

Gilbert Chavez

9 months ago

 
 

Best of luck to you Robert! So glad to see you recovering!

 

$400.00

Funds

11 months ago

 
 

Thank you to all who made it to the BBQ and donated your time, efforts, food, music. Also for all the positive thoughts sent my way. Awesome! On the mend now : )

 

$100.00

Jim Jordan

11 months ago

 
 

Awesome you're feeling stronger and gonna be swimming soon!

 

$100.00

connie

11 months ago

 
 

Thank you for all the good updates !!!

 

$50.00

mary beth bresolin

12 months ago

 
 

please keep posting and the best of luck to you!

 

$300.00

Anonymous

12 months ago

 

$100.00

Anonymous

12 months ago

 

$50.00

Anonymous

12 months ago

 
 

Light after dark don't forget.

 

$50.00

Anonymous

13 months ago

 
 

Keep at it Robert, you'll be back at the music, surf and gatherings soon.

 

1-10 of 73 donations

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