Jingle Bell, Jingle Bell, Jingle Bell Rock...
Come out to Nebraska Furniture Mart tonight, I'll be in the West Electronics Breezeway Entrance ringing the bells for the Salvation Army's Red Kettle from 6pm to 8pm.
Thanksgiving... this is the time of year where whole families and friends get together to celebrate everything they're thankful for. Unfortunately, for us FPIES Families it's a time of worry on how we can navigate the holiday safely. One of the major concerns is how can I make this years Thanksgiving meal not only great tasting for everyone, but also safe for the FPIES child? So below are some tips on how to achieve that delicate balance:
1. Host the dinner yourself and make dishes tailored to your FPIES child. This usually only works if your FPIES child reacts to only 1-3 items.
2. Suggest a potluck style dinner with each attendee bringing designated items worked out ahead of time. Your family can bring tasty dishes safe for your FPIES Child to share. Note: This is the routine my family follows:-)
3. Distraction is KEY. Thanksgiving is all about food, but why does it have to be edible? Set up an area for crafts for those FPIES children who don't have any safe foods. While everyone else is eating they can be happily coloring, pasteing, and designing their little creative hearts away. Play games. Turn off the TV that shows all those foody commercials and pull out the Thanksgiving themed games!
Coming up next... Recipes for Dairy, Soy and Egg Free Baked Goods perfect for the holidays!
Tomorrow is Orientation Day for me at Creighton University's College of Business. I'm excited, a bit apprehensive, and have a case of the jitters... Please tell me it gets better once I'm there!
I'm thinking about hosting a FPIES/Food Allergy Holiday Party in December. No food or drink served except for water. With all kinds of games, crafts, music, and a Santa visit. Can I get some feedback on what everyone thinks of this idea? Would you attend? Suggestions? Thanks!
For those coming to Philadelphia for IAFFPE's 1st Annual FPIES Education Conference be sure to stop by my booth to say Hi, take pictures, find out about all the great projects I'm working on, and pick up a entry packet for the Royalty For FPIES Natural Benefit Pageant!
And the Royalty For FPIES Benefit Pageant website is up and running! Please visit at www.royaltyforfpies.webs.com
to check out the benefit pageant and download an entry form. Thank you!
P.S. it's till a bit basic, but time will fix that as I update the site.
And we have a site everyone! The Royalty for FPIES Natural Benefit Pageant will held on April 19, 2014 at the Scottish Rite Masonic Temple in Omaha, Nebraska!
Scottish Rite Masonic Temple Theatre
Had an appointment today for a tour of the Scottish Rite Masonic Temple as a potential site for my Royalty for FPIES benefit pageant on April 19, 2014. Hopefully, I can sign the contract tomorrow after some final negotiations. Here's crossing my fingers!
It's that time of year again - Halloween! And for all the FPIES families out there, it's the time when we get jittery trying to figure out how to keep our FPIES munchkins safe. So, here's a tip to save you all that worry.
First, before Halloween plan a route you want to take for Trick or Treating, then make up treat bags with safe foods, candy or toys. Next, make up fliers describing what FPIES is and if you want your families story. Then, distribute the bags and fliers to the houses along your route no more than 3 days before Halloween. Finally, on Halloween go out and Trick or Treat!
Been busy today scouting local venues, typing up an informational packet, and researching sound and stage companies for my Royalty for FPIES benefit pageant in April 2014. Thanks to my mom, for helping me out when my brain stalled in overload mode...
So cool to be named an educational ambassador for IAFFPE! Be sure to come by and talk to me at the Riverssance Festival in Sioux City, Iowa where I'll be demonstrating Kumihimo with the Medieval and Renaissance Society Village. If you have questions on what FPIES is or what/how Kumihimo is done I'll be happy to answer all comers:-)
Guess who was just elected as a member of the 5 person Nebraska Youth Leadership Council? Yep, it's me!
Baconfest was great with lots of yummy bacon inspired food. There were free beverages, free carnival games for kids, more free rides for kids, and oh let's just say a lot of free things to do! Here's a pic of me on stage helping to distribute awards to the winners of the Farmland Bacon Cookoff.
Whew! Just finished making the peach pies, chocolate chip cookies and more banana, pumpkin and zuchinni bread for the Bellevue Farmer's Market tomorrow. Be sure to come by and snag a treat 8am to Noon at Washington Park (20th & Franklin Streets) in Olde Towne Bellevue.
Hi everyone, I was soo busy helping my mom with her canning yesterday that I forgot to post, but that cobbler filling and marmalade jam was yummy. Today I have been baking up a storm for my little brother, Kainen. My mum and I made Banana Bread, Zuchinni Bread and Pumpkin Bread that is Dairy, Soy and Egg Free, but still tastes just as good as if the real stuff was in it maybe even better! I will be doing more baking Friday night, so I have some to sell at the Bellevue Farmer's Market this weekend. I might even have (gasp) chocolate chip cookies! So, if you too cannot have any dairy, soy or eggs be sure to come by and pick up some, you will never know the difference.
New Diagnositics Code Gives Hope to my little brother, Kainen, with Food Protein Induced Enterocolitis Syndrome (FPIES)! ICD-10-CM codes are necessary for billing, insurance and medical records, disease management, treatment advances, research and national statistics. Without a code our family has had to fight with insurance companies for coverage of services and costs associated with Kainen's prescription medical food (formula) which provide half of his daily caloric intake.
Kainen recovering from an FPIES reaction
Tomorrow is National Night Out, so come on down to the park located in the Golden Hills Subdivision for a fun time from 6pm to 8:30pm. I know I'll be there, hope to see you there!
Please keep tuned to this page for updates on my volunteer work, fundraisers I hold for different non-profits, and upcoming appearances. A BIG thanks to all those who view my gofundme page and share it with all your friends. It may not seem like a big thing, but it helps me spread the word and means a lot to me!