Help Me Heal
Donation protected
My name is Marie J Mello, I am a single mother to 3 young children- a 10 year old girl, sweetest girl on earth and 6 year old boy & girl twins, my keys to my heart. I do not have family support, and don't have many friends (other than those wonderful people online in my support groups who have been such a blessing, and those who are on facebook and twitter who I have never met in person, but have made my life much happier).I live a quiet life with just myself, my 20 year old niece and my 3 young children.
My life "looks" normal on the outside to most everyone I know, but inside, I am sick...VERY sick. I have conquered many things in my lifetime of 33 years, many battles and hurdles, such as sexual, emotional, and physical abuse from early childhood all the way into my adult years, and once I conquered that, I found out I have Systemic Lupus and Fibromyalgia, along with PASH (Pseudoangiomatous Stromal Hyperplasia), a rare bleeding disorder in which I don't clot (and suffer from nose bleeds that come on suddenly and last for weeks at a time and then disappear for months and then reappear again), and newly diagnosed as of December 2013 with something rare called Syringomyelia (I have several syrinx(es) sort of like cysts on my thoracic and cervical spine. It's VERY painful and if I don't have a Lupus flare and have painful joints, I have constant spinal pain that feels like zapping, stabbing pain, in which I take Tramadol, Fentanyl pain patches, and Ketamine daily to help assist with that. I also suffer from gastrointestinal issues- have had several tests done to figure out what shall be done to correct my situation. My colon is NON-functioning at this point and needs to come out. I know that my quality of life will improve greatly once my colon is removed. :)
I have lots of infections and even have been hospitalized MANY times- several times with Meningitis, Kidney Infections, and pneumonia many times. I have also had problems with my "bathroom" duties since being a child and have always been told "you're just constipated" and sent home with laxatives. Now, MANY years later, and with what could have been FIXED many years ago, I have been seeing a Gastroenterologist Dr. who is amazing, and he said I have a Tortuous Mega Colon Long and Redundant (long, loopy, and twisted) and Colonic Inertia (very slow transit- removal of waste), and he referred me immediately to a surgeon. I went in to meet the surgeon Dr. in March of 2013, and was diagnosed with a grade 2 rectocele (bowel prolapse)- my feces prolapse into my vaginal wall and when I have to have a BM (bowel movement) I have to splint (use my finger inside my girly part...not so much fun! And so naturally I quickly volunteered for a trans-anal rectocele repair. It went horribly wrong!! The surgeon Dr. ended up botching the repair and I ended up with a MUCH WORSE (grade 3) rectocele than I had previously! AND I now have a full pelvic prolapse and may need to be on an ostomy bag after my colon removal- which I am absolutely FINE with. At this point, I am in so much pain so many days out of the week, and NOTHING makes the abdominal pain better, on top of all my other pain, that I feel like it will be a blessing to simply be alive and well with all of the issues that I survive with.
I have Faith that God will heal me, along with the funding that all of you may help me with so that I can get the tests and surgeries I need so desperately. :) I'm so ready to start the process of getting back in the game (I stayed away from Dr.s since April, because I had been admitted to the hospital with severe blood loss, as you can read in my updates in my journal entries). But, I'm ready now, and stronger mentally than ever...I'm getting frail and weak physically, and I keep fainting, I can't eat, I NEED to get surgery, and the only thing stopping me is MONEY. I can't get the tests I need to figure out my bleeding disorder, and to give me a PET scan to see if I have cancer, and other tests to figure out why my thyroid is so enlarged. Medicare is unwilling to pay for several of these tests, and I am barely able to get by each month, as I live off of disability, and have a very sick son- he has chronic asthma and gets admitted to the hospital several times per year....so I desperately NEED your help. I've NEVER asked for help, and feel strange even asking for help, but know that God steered me in this direction for a reason. I know that we can do this together. I know that there are people and organizations, churches, other places and foundations that MAY possibly be able to help fund me and I pray DAY and NIGHT that my goal may even so much as get half way there. :)
Please, could you kindly pass this on to everyone you know that may be able to help fund my foundation? Please SHARE & copy and paste my DIRECT LINK:
http://www.gofundme.com/MarieJune
God Bless each and every one of you who have followed my journey. It has been one of learning, one of soul searching, and one of tears of sorrow and joy....I have found myself at some of my lowest points, yet those were the days that made me stronger. I now know that God gave me those days as GIFTS because I am stronger now because of those days! I am getting sicker and am so frail and ill. I know time is running out for me. I pray to get the testing I need soon. Please make my miracle happen so that I can know for sure that my surgeries can happen and I can begin to HEAL and start my life again. I am ready to LIVE and not let life pass me by. I am ready to get out of bed, and not be a vegetable...as I have been for months now. Help me make my dreams come true and make my miracle of health come true. Help me start my journey of healing. :) Bless your hearts and souls for being there emotionally and for all your prayers during some of my toughest times. It really helped to know I had a whole army behind me. :) I'm ready for what's to come in 2014. Let's bring it on. My children deserve their Mommy to be a vibrant flower that all 33 year old moms are...not one that lives in her bed 98% of her day and can't so much as shower by herself...let's do this and never look back. Let's make 2014 my year to start again and take control of my life and take it by the ballz and kick sickness in the booty ;) I know I can beat these things (yes, I may be sick with MANY illnesses and diseases, but NOTHING can hold me down once I get my surgeries)....because I have great people standing behind me. And for that I am one thankful girl, and with Faith, ANYTHING can happen, and my Faith is stronger than ever. Please, share my link and help me HEAL. :)
http://www.gofundme.com/MarieJune
Sincerely,
~~Marie J~~
My life "looks" normal on the outside to most everyone I know, but inside, I am sick...VERY sick. I have conquered many things in my lifetime of 33 years, many battles and hurdles, such as sexual, emotional, and physical abuse from early childhood all the way into my adult years, and once I conquered that, I found out I have Systemic Lupus and Fibromyalgia, along with PASH (Pseudoangiomatous Stromal Hyperplasia), a rare bleeding disorder in which I don't clot (and suffer from nose bleeds that come on suddenly and last for weeks at a time and then disappear for months and then reappear again), and newly diagnosed as of December 2013 with something rare called Syringomyelia (I have several syrinx(es) sort of like cysts on my thoracic and cervical spine. It's VERY painful and if I don't have a Lupus flare and have painful joints, I have constant spinal pain that feels like zapping, stabbing pain, in which I take Tramadol, Fentanyl pain patches, and Ketamine daily to help assist with that. I also suffer from gastrointestinal issues- have had several tests done to figure out what shall be done to correct my situation. My colon is NON-functioning at this point and needs to come out. I know that my quality of life will improve greatly once my colon is removed. :)
I have lots of infections and even have been hospitalized MANY times- several times with Meningitis, Kidney Infections, and pneumonia many times. I have also had problems with my "bathroom" duties since being a child and have always been told "you're just constipated" and sent home with laxatives. Now, MANY years later, and with what could have been FIXED many years ago, I have been seeing a Gastroenterologist Dr. who is amazing, and he said I have a Tortuous Mega Colon Long and Redundant (long, loopy, and twisted) and Colonic Inertia (very slow transit- removal of waste), and he referred me immediately to a surgeon. I went in to meet the surgeon Dr. in March of 2013, and was diagnosed with a grade 2 rectocele (bowel prolapse)- my feces prolapse into my vaginal wall and when I have to have a BM (bowel movement) I have to splint (use my finger inside my girly part...not so much fun! And so naturally I quickly volunteered for a trans-anal rectocele repair. It went horribly wrong!! The surgeon Dr. ended up botching the repair and I ended up with a MUCH WORSE (grade 3) rectocele than I had previously! AND I now have a full pelvic prolapse and may need to be on an ostomy bag after my colon removal- which I am absolutely FINE with. At this point, I am in so much pain so many days out of the week, and NOTHING makes the abdominal pain better, on top of all my other pain, that I feel like it will be a blessing to simply be alive and well with all of the issues that I survive with.
I have Faith that God will heal me, along with the funding that all of you may help me with so that I can get the tests and surgeries I need so desperately. :) I'm so ready to start the process of getting back in the game (I stayed away from Dr.s since April, because I had been admitted to the hospital with severe blood loss, as you can read in my updates in my journal entries). But, I'm ready now, and stronger mentally than ever...I'm getting frail and weak physically, and I keep fainting, I can't eat, I NEED to get surgery, and the only thing stopping me is MONEY. I can't get the tests I need to figure out my bleeding disorder, and to give me a PET scan to see if I have cancer, and other tests to figure out why my thyroid is so enlarged. Medicare is unwilling to pay for several of these tests, and I am barely able to get by each month, as I live off of disability, and have a very sick son- he has chronic asthma and gets admitted to the hospital several times per year....so I desperately NEED your help. I've NEVER asked for help, and feel strange even asking for help, but know that God steered me in this direction for a reason. I know that we can do this together. I know that there are people and organizations, churches, other places and foundations that MAY possibly be able to help fund me and I pray DAY and NIGHT that my goal may even so much as get half way there. :)
Please, could you kindly pass this on to everyone you know that may be able to help fund my foundation? Please SHARE & copy and paste my DIRECT LINK:
http://www.gofundme.com/MarieJune
God Bless each and every one of you who have followed my journey. It has been one of learning, one of soul searching, and one of tears of sorrow and joy....I have found myself at some of my lowest points, yet those were the days that made me stronger. I now know that God gave me those days as GIFTS because I am stronger now because of those days! I am getting sicker and am so frail and ill. I know time is running out for me. I pray to get the testing I need soon. Please make my miracle happen so that I can know for sure that my surgeries can happen and I can begin to HEAL and start my life again. I am ready to LIVE and not let life pass me by. I am ready to get out of bed, and not be a vegetable...as I have been for months now. Help me make my dreams come true and make my miracle of health come true. Help me start my journey of healing. :) Bless your hearts and souls for being there emotionally and for all your prayers during some of my toughest times. It really helped to know I had a whole army behind me. :) I'm ready for what's to come in 2014. Let's bring it on. My children deserve their Mommy to be a vibrant flower that all 33 year old moms are...not one that lives in her bed 98% of her day and can't so much as shower by herself...let's do this and never look back. Let's make 2014 my year to start again and take control of my life and take it by the ballz and kick sickness in the booty ;) I know I can beat these things (yes, I may be sick with MANY illnesses and diseases, but NOTHING can hold me down once I get my surgeries)....because I have great people standing behind me. And for that I am one thankful girl, and with Faith, ANYTHING can happen, and my Faith is stronger than ever. Please, share my link and help me HEAL. :)
http://www.gofundme.com/MarieJune
Sincerely,
~~Marie J~~
Organizer
Marie Mello
Organizer
Westfield, MA
