Logan Ressler Foundation

Hi my name is Logan I am 4 years old I was born August 28, 2009. My parents names are Norm Brown Jr. and Candis. My Brother name is Andrew and my sister is Lexia. Everything went great until Saturday November 3, 2012. I had been getting sick for a little while and my doctor thought it was normal since I had just started Pre K. But mommy and daddy knew something was wrong so they took me to the ER and the doctor on call gave me an X Ray and found something. It was then they did a CT Scan and found a mass. It was then they transported me from Brooksville to Tampa to St Joseph's Hospital where I was admitted. Well Monday came and my doctor sit down with my parents and explained that she wanted to biopsy the tumor that was located on my kidney and it was roughly around 9 cm in diameter. She also wanted to do a bone marrow biopsy and also place a port in my chest as a precaution for medicine. Tuesday came and they did the procedures and then let me rest. Wednesday came and my parents were heartbroken when they were informed of the results I was diagnosed with Stage 4 Neuroblastoma. It is a very rare cancer of the nervous system that affects small children the odds are 1/100,000 children are affected. I was given a treatment plan which started with a 5 day cycle of chemo then go home for 21 days while receiving several medicines at home including shots in my legs to build up my numbers. Then back to the hospital for 5 more days of chemo. Then we were told I would be going to Shands in Gainsville for another port placement in my chest and a Stem Cell collection I was there for 2 weeks. After this I had to do 3 more chemo cycles each time staying at the hospital for 5 days sometimes a little longer depending on my immune system. After this it was time to operate to remove the tumor the surgery went well. We were then told we would be sent back to Shands where we would be admitted for about 6 weeks. While at Shands I would have one more heavy dose of chemo followed by my stem cell transplant. Well that went good for a couple of days then I started not feeling so well. Mommy and daddy found me unresponsive twice so I was moved to PICU where I was put on a breathing machine because I was struggling I was there for about a week. They also did a CT scan on my brain for possible bleeding but only found some grey areas and we were told they would do a MRI when got back to St Joseph's. We left Shand's Wed June 5, 2013 and had to go back to St Joseph's the following Monday where I was set up for Radiation on the tumor sight as part of the treatment plan. All was going good almost done with the plan and then 3 days later I had a seizure. The doctor wanted to do a MRI on my brain. Well the results came back and were very bad they had found 5 tumors in my brain 3 pea sized and 2 quarter sized. The doctor then stopped radiation on the sight and started it on my brain. We were told a couple of days later they had contacted some specialists and were told that I might qualify for an investigational study in New York where they would place another port in my brain and treat me with a new protein enzyme that fights the tumors. We were also told even with the new treatment plan the chances are slim for success. Before we go to New York I need to do outpatient chemo and I need the platelets to stay up. I have pneumonia in the left lung and the doctors are trying to take care of it so the lung doesn't get worse. But we know in our heart that God has brought us this far and with hope and prayer he we see us through. With God in our life we will never give up. We want to raise the money for New York. We are going to New York soon and we are going to have Thanksgiving here. We Don't know how long treatment would be. We will keep everyone updated with everything on Logan page on facebook. Logan Cancer Free Page is where you will get the information from. We are in New York, we will be up here for a while because they added on with chemo and radiation for him because his right leg started to bother him. We will not know how long we will be up here. He should start his antibodies after his radiation and he will be receiving the antibodies twice. One in the head and one in the regular port. Change of plans we had to do chemo and raitation on the right leg where the cancer spot is. He needed support with his leg again. He is in physical and occupational therapy. The cancer spot traveled through his left leg again and a little bigger. If it's start bother him like the right did they are going to do more radiation on the spot. Right now they have him started on a new treatment plan. Called Avastin. It helps his head and his whole body. The plan will be six months if everything's goes well in two months after scans. We pray to God that it does and to keep giving everyone strength to carry on. They  did the scans on Logan in New York. The results were more disease In the left hip and on the right it went into the bone. They decided not to go ahead with with the bone marrow. The doctor there said there isn't anything else that they can do for him because he wasn't stable and they can't do the treatment for him.