help save our home we are so close
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Justin is our 5 year son, he is our youngest and has an eight year old brother, Connor. Justin has been diagnosed with Duchenne Muscular Dystrophy. This is a rare childhood disease that destroys the muscles and targets mostly boys. DMD attacks gross motor development. DMD typically appears between the ages of two with weakness in the pelvis and upper limbs, resulting in clumsiness, frequent falling, an unusual gait and general weakness. Some patients also have mild mental retardation. As DMD progresses, a wheelchair may be needed. Most patients with Duchenne MD die in their early twenties because of muscle-based breathing and heart problems. There is no cure for DMD. Current treatment is directed toward symptoms, such as assisting with mobility, preventing scoliosis, and providing pulmonary therapy. Justin will need extensive therapy and medical equipment as he continues to grow. All money raised with help pay for medical equipment not covered by insurance and for Justin's lifelong care.
Organizer
Sheri Hammett Bolduc
Organizer
Bristol, CT