From Ava's mommy-On Friday In honor of Ava Rachel Jordan if you could wear one her favorite colors Purple/Blue/Green. She will be looking down on us with those bright blue eyes and that sweet smile with adorable dimples!
I have changed the title and the description if you could please help get the word out it would be much appreciated.
After a long hard fight little Ava has taken her true spot in heaven as an angel. Please at this time hug those near and dear to you and tell them how much you love them. Please keep the Jordan family in your thoughts and prayers for many days to come. God bless Ava and watch over her and give her and her mom and dad your guidance through these un bearable times. I will let everyone know of the arrangements as soon as I find out. Please DONATE now to help with the funeral arrangements as neither parent has been working for several months now and every penny WILL HELP TREMONDOUSLY. This is the last time I will ask so, find it deep in your hearts and skip some luxury this week. Continued prayers are much needed.
Update on Ava: everyone start praying please! Ava was extubated but she was under a great deal of pain all night. She was breathing fast entire night & pain could not get under-control and she had been breathing fast all night with high heart rate. She was intubated again this morning so Aaron & I agreed it was best do now and get pain under control before she crashes so body can rest let machine do work and heavy dose her with pain meds sedatives. She has been having severe pain on her left side that had started even before her becoming ill with sepsis, they are going to do sonogram to see if there is something they can see that isn't on x-Rays. Anyhow Ava was already extremely sick and now sicker. Doctor just talked to Aaron & I said it's going to be rough night.
Update-She has made it through the night and it has been a struggle for sure. We had to take another drastic measure to stabilize her. She had a central line put in clavicle/neck area to receive transfusion of plasm. Procedure in itself is fatal and she has made it through. Aaron knew ATM it was make it or break it deal in the continue of interventions. She's hanging on strong and better. Had to back of meds for keeping her blood pressure up cuz she's doing on own now.
Update from Ava's mommy-Please know not to give up prayers but also pray for no suffering. She is on ventilator and prob has sepsis. Possibly will take over her but we need to listen to god and Ava and pray for healing and no pain even if that means letting her go. PLEASE READ, SHARE, & DONATE!!!!
From Ava's mommy-Ava is in ICU not sure what is all issue. We didn't & don't think it's related to cancer nor did hospice more gastric issues but here hospital doc thinks
maybe does have to do with cancer. Either way she's very ill and phnemonia. No visitors
Jason get word plz plz plz everyone post everywhere they can for prayers plz plz plz
UPDATE!! (From Ava's mommy) Last night July 22, 2014 Ava's hair was coming out by the handfuls and ultimately decided to have mommy & daddy shave it. She looks absolutely adorable but she isn't ready to share it with everyone. Not ready for anyone to see her without hair.
The Make a Wish foundation gave little Ava a limo for the day! How awesome!
UPDAPTE: from Gina, Ava's mommy.- Chemo and hospice are being added. PLEASE pray and reach down deep and donate anything you can! Neither parent is working at this time and HELP IS NEEDED! Please find it in your heart to help this family in their time of need.
Here is a picture of poor little Ava's tumor.
Hug your little ones tight tonight, and please PRAY for this little one as she starts radiation in the morning. And DONATE what ever you can spare!
I'll be seeing Ava tonight, she asked her mom and dad if she could see me. So tonight I'll take some pics and post. Please share this story with all that you know!
From Cindy (Ava's Grandmother)-Our precious little AVA was so joyful, fun, full of energy for a short period of time after what we thought were two highly successful brain surgeries. It was such a miracle to see her back as her real self. GOD we pray for another miracle. SHOW YOUR POWER OH LORD...show the world your miracles and power of healing. Please give my family strength to survive yet another tribulation,. Pray for us and if possible help with GoFundMe Ava Jordan. Aaron will have to be off work to be with his little girl & with everything else that has happened with losing his Dad 6 months ago, it is almost too much to bear. Please dig deep and help this my son and daughter in law to continue to provide a home for their children. God Bless You All.
From Gina, Ava's mommy- Aaron & I went for Ava's MRI & we received results. There is no easy way to say this without just saying it. Ava is dying. Tumor has returned big and ang
rier than ever. Oncologist said if we did nothing she would possibly make it month and if we did aggressive radiation it's possible it will do nothing (
cuz type tumor it is) or buy some time. And there is always Ava could ( and will) beat the odds and prove them all and be fine. Not sure what else to say
except pray and ask anyone u know to pray. I don't know what the future holds cuz needless to say Aaron & I are a wreck. We start radiation Monday it wi
ll be Monday - Friday for a month. Then we will scan again and decide what next step is depending on results. If it hasn't made a difference we are putti
ng her through hell for nothing &
For those who don't know, Ava had a terrible seizure that lasted 20 minutes. She is ok but due to the severity, the Dr. Is going to have to remove a portion of her brain. It is unknown at this time what kind of effect it will have on her. PLEASE PRAY that God will watch over her during this procedure. And SHARE this with all that you know. AND DONATE to a FANTASTIC little girl who is in desperate need of any assistance the you can give. Thank you.
Well folks I know it's been a while since I posted but I've been a little busy with my own issues. Ava's treatments are going well but the funds are EXTREMLEY tight at the Jordan house. Aaron has been able to go back to work but with two little girls and a ill wife bills are piling up and things are going unpaid. So please find it in your hearts to help this family in need. They are having to use bill money for gas money because Ava HAS to have her treatments. The tumor is a rapid growing tumor and is growing again and the long term on the situation is not good. The treatment makes it grow a lot slower but the fact remains she is FAR FROM WELL! So get out that wallet and DONATE!! if all you can spare is $5 that's better than nothing. And let's reach out to this family and lift them up with MANY prayers. PLEASE READ THIS STORY, SHARE IT WITH ALL OF YOUR FRIENDS, AND GET THAT WALLET OUT AND DONATE TO A GREAT LITTLE GIRLS CAUSE! Ava was not able to come to Grandmas house at Easter to hunt eggs with all of her cousins. She was too sick that day.
Update- well it was an all day affair, but little Ava is out of surgery and doing well. They took the tumor off of her temporal lobe and also were able to scrape some off of her brainstem. She's not out of the woods yet but she's doing really well. So please PRAY, READ, SHARE and DONATE!!!!
Well, I just received news that the surgery is going to be moved up to 7 AM tomorrow morning. So tonight when you like your little ones down to rest please put Ava and her mommy and daddy on your prayer list. Tomorrow morning they're going to go in through her temple and attempt to remove more of the tumor. So please READ, SHARE, PRAY, & DONATE!
Alight ladies and gents, time to get Ava some more help. She will be going back in on 4/1 for her second surgery and this is the scary one. As you can expect her father will be taking off work to be with his daughter during this time. So any donation can help tremendously. These hospital bills are piling up! PLEASE, share this story with all you know and let's get the word out.
Update- Ava had a few dizzy spells and some other complications that are not normal so they did another MRI. It has shown fluid has built up in the left ventricle. Drs. are trying to figure out why. I will let everyone know ASAP. PRAYERS NEEDED! Please SHARE this story and help get the word out! And DONATE WHATEVER YOU CAN!
Update/ the Drs. Are meeting to discuss the second surgery to the frontal lobe. This is the scary part folks. Please keep little Ava in your prayers and PLEASE SHARE this story with all that you know! AND DONATE to help a FANTASTIC LITTLE GIRL!
Alright folks I've left you alone for a few days, now let's get back on track! Poor Ava is still in need of assistance. I know times are tough for everyone and money is tight. If for some reason you cannot spare a couple of dollars PLEASE at least SHARE THIS PAGE! Donations are a wonderful gift but if you cannot DONATE at least SHARE!!!
Before you go out tonight please take the time and hug your children tight and tell them that you love them. Then try and imagine if they were going through what poor little Ava is going through. Also PLEASE take the time to SHARE this story with everyone you know and DONATE WHATEVER YOU CAN SPARE!!
Well folks, the insurance folks at cooks came in and said that they are out of network and poor Ava may have to go home. So, PLEASE, PLEASE help to spread the word and DONATE whatever you can and let's try to come together for this little girl. Let's get her on every prayer list there is! Let's make this happen!
Thank you to EVERYONE for your thoughts, prayers & generosity. Ava is doing better everyday. She's getting stronger & her days are filled with threaphy. She gets bored a lot if they do not have a lot for her to do, so that's a good sign she's feeling better. We are still have some decisions to make with treatment going forward. we are still working out treatment options cuz they were unable to remove tumor that spread into Brain Stem and have not decided if we will do 2nd surgery to remove tumor in temporal lobe. We have a team of great doctors working with us for Ava & they are going to test a piece of Ava's tumor they already removed & see if it is a certain mutation (B mutation) against a drug to see if it stops cells from growing. ( which will stop tumor from growing). However it will not remove tumor still there. And the part in Brain Stem does cause some issues and we will have to watch close. We still have not seen any seizures since her surgery so we are very excited that she will not be held back by those anymore. Thanks Gina & Aaron
Alright folks, I still need your support as the prognosis is not good . They did in fact remove some of the tumor from the rear of her brain, except the part wrapped around her brain stem. That part of the tumor CANNOT be removed. So long term, there is nothing that can be done, in short her days with us are numbered. The tumor WILL continue to grow, she WILL require ongoing treatment, and she WILL still need all of our support. I cannot even fathom what is going through that poor child's head. And her poor parents, the pain must be almost unbearable. So, I ask again IMAGINE if this was your child. Would you want people to help you? Get out those cards, SKIP one dinner out, and PLEASE READ, SHARE & DONATE to help this poor child and her family!
While all of you are off work, or even if you're at work, pleas take the time to spread the word and DONATE for Ava! Folks, even if it's just a few dollars every little bit helps. So, please READ SHARE DONATE
Guys the power of prayer is amazing! Let's spread the word to get Ava on as many prayer list as possible! Also please DONATE to a great family in need! If everyone who visited the page donated just $5 we would almost be at out goal! So, please find it in your heart to DONATE WHATEVER YOU CAN!
So, today while your being thankful for your healthy family and getting to be at home with them spending time together, think about poor Ava sitting in a hospital room. Remember, it could be YOUR child who is sick, YOU could be sitting in a hospital room with your child. today. So, PLEASE take the time, to READ this message, SHARE IT with all your friends, and DONATE if it's only $5! I'm asking you to help this family and child in their time of need! Remember, it could be YOU! Wouldn't you want someone to help you and your child?
Update from Gina-
PRAISE JESUS! Ava's tumor is pediatric benign low grade slow growing tumor.(meaning not cancerous) we are still working out treatment options cuz we still have tumor left in Brain Stem ( very critical area) and temporal lobe. PXA is short form of big tumor name. So we can take a little breath and make some decisions on what's best for options going forward with Ava.
From Gina(Ava's mommy)
Hey I was finally able to pull up Ava's page. It brought me to tears. Thank you to everybody so much... Please keep prayers going. Although it is still possible it's a benign tumor it is still considered malignant because it has reached the brain stem. I believe in power of praying & healing so please keep them up. I know my little girl is so sting & a firecracker just like her mama so she nor I will ever stop fighting.
Folks, I know a beautiful little girl who needs a Valentine. So, get that wallet out and help make this little girls Valentines day fantastic! Please DONATE!
Update from Ava's mommy- PLEASE READ SHARE & DONATE!!!!
Update: spoke with oncologist today, and he said still don't have final pathology. He feels that her tumor is defiantly unique & pediatric benign tumors tends to be that way. So he's please that portion taken out has stopped seizures and now we wait & see on path on how aggressive we go on treatments. If its benign maybe do surgery get temporal part out & do scans often to watch & see how slow/fast other grows. Or if need to do chemo then will do. She's still a little young to do radiation but with both those come huge side effects. Other updates she's getting a lil better each day. Thanks for the donations, thoughts, and prayers.
I wanna take a minute to thank everyone for all the donations. Trust me when I say it goes to a great cause. The family is humbled by everyone's generosity and thanks you as well. Please keep SHARING THE MESSAGE!!! And PLEASE DONATE!!!!!
Folks we haven't had any donations today. Please, reach down in you pockets/purse, get that card out and DONATE! All it takes is making your lunch one day or skipping one Starbucks. Please find it in your hearts to help this family.
Update- I talked to Ava's mom and she's doing ok right now. Pathology should come back today and we should know more. Here is what her mom said.
She started out what they thought was rare partial focal epilepsy & became medicine resistant further testing proved to be rare brain tumor. Left temporal lobe all the way back to occipital & found out now in brain stem.
So after reading all that get you credit/debit cards out and help this little out! Her daddy had to call in sick today to be with his daughter. As you can imaging the bills will be coming in soon. PLEASE, donate what you can and PLEASE SHARE WITH EVERYONE!! Thank you!
This photo was taken today! 2/11/2014
Guys I would like to thank everyone who has help spread the word, KEEP IT UP! We've made great progress but still have a long way to go. Poor little Ava needs all the help she can get and I'm going to see to it the she gets as much as possible! We all know one day in the hospital cost thousands, and she's gonna be there a while. So, let's pitch in and help his little angel out! Send a $1 or $3 it doesn't matter it all adds up! So PLEASE READ, SHARE, and most of all DONATE!!! Thank you!
Well I just sent the story to NBC and Fox 4 so let's see if we can get this story out there! With y'all's help maybe we can get noticed and get this family som help. PLEASE READ AND SHARE. DONATE if you can, no amount is too small and all is appreciated! Thank you!
Alright folks, let's skip that latte today and take a lunch so we can help little Ava out! Any amount helps, there is no donation too small. Guys we've had some really great donations but, we're in need of a whole lot more. The prognosis is not good and little Ava is going to need her daddy as much as possible! So, PLEASE SHARE and if you can DONATE! And be sure to tell everyone you know about this please! If you won't do it for me, do it for poor little Ava! And let's get them on the prayer list at every church we can! Their names are Aaron Jordan-father, Gina Jordan-mother, Leah Jordan-sister, and last but far from the least, Ava Jordan-beautiful angel! Thanks for all of your time and support!
Alright boys and girls, get those debit/credit cards out and help this family in need. Remember, every little bit helps, let's skip that Starbucks tomorrow, take a lunch on Monday and donate to a good cause. This beautiful little cousin if mine needs all the help and prayers she can get right now. I have made this a mission, and I will succeed on getting the help that they need and I would love to have each and every one of your names on the envelope that I hand to her father and mother! Just think, what if Ava was your child.
Update: Ava had had a small stroke and part of her lip is now drooping. The part of the tumor that's attached to her brain stem is wrapped around it like a snake. The doctor came out crying saying he'd never seen anything like it before. Guys, please help me help my family! Any amount will do no amount is too small, just please DONATE!!! I'm checking on having T-shirts made to support the cause! And let's keep them on your prayer lists!
Alright folks, it's Saturday and most of you are off work, so get those credit cards out and get to donating please!! No amount is too small, it all adds up and ALL is appreciated!
After 8 1/2 hours of surgery Ava came out ok. They were able to get most of the tumor except the part that is wrapped around her spinal cord and brain stem. It's unknown at this time how Ava will be and if there will be any permanent damage. Please help and share. May God bless them!
Yahoo! We got our first donation! Keep em coming folks! Let's help this family, my family! They need all the help they can get right now! Just think if it was your child! First surgery tomorrow morning so let's get them on all of your prayer list as well please! Thanks soo much!!
Come on guys, first surgery is tomorrow!! Any amount will do, let's help them out!!