Caring for baby Isaiah, Heart warrior

 
Raised: $898.00
Goal: $2,000.00
 
 
 

Created by

Sarah Schroeder

233 Friends

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Isaiah was born with heart defects, 3 eye defects and an unrelated chromosomal deletion. He had his 1st heart surgery at 4 weeks of age and his eye surgery to remove the natural lens 1 m... more

 
 
 
 
 
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Updated posted by Sarah Schroeder 3 months ago

I think everyone is finally on the mend! Now we are planning to take Isaiah for his appointments with the eye specialists in IA City once again. Please pray if you will for safe travels, good appointments, no need of another surgery for his eye, good eye pressures (not too high, too high means glaucoma) and a good time for everyone left here at home. I don't ask much right? LOL! Now to get things ready!

 
 
 

Updated posted by Sarah Schroeder 4 months ago

Our elimination diet (and new Neocate formula 8 oz per day) is working!! He isn't breaking out in hives like before :) I can't say I'm in love with the new diet but whatever works for my little guy is what we'll do

 
 
 

Updated posted by Sarah Schroeder 4 months ago

Please keep Isaiah in your prayers as we navigate his food allergies! Looks like we'll be avoiding dairy/wheat/soy... That sort of feels like everything LOL! Since he still nurses I'm probably going to have to change my diet too...yikes!

 
 
 
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Created by Sarah Schroeder on July 14, 2013

Isaiah was born with heart defects, 3 eye defects and an unrelated chromosomal deletion. He had his 1st heart surgery at 4 weeks of age and his eye surgery to remove the natural lens 1 month later.

He now wears a hard contact lens that we insert and remove every day. ( or multiple times a day if he rubs it and it comes out! ;)

Isaiah wears an eye patch for 6 hours per day over his good eye to strengthen the weak eye .
He also has GERD and moderate obstructive apnea.

Right now Isaiah has multiple doctors (some that we must travel long distances to) and also Early intervention who come to the house for his therapies.

This was a shock to the system for us as we tend to be homebodies :)

We have been so blessed by our Creator to have loving and helpful friends and family who have been helping us with childcare.
We have also had great medical personnel for the most part!

We are trying to raise enough to get Isaiah a breathing monitor since we are having a hard time getting one through peds and insurance. We are also praying for finances for medical travel to IA City etc. to see his eye surgeon and contact lens specialist. He also goes to see the peds cardiologist, geneticist and other specialists too so things add up very quickly as you can imagine.

Thank you for taking time to look at our page and for your prayers.

Please feel free share the link with friends :)

God bless you and yours!
 
 
 
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Recent Donations (9)

$898 raised by 9 people in 9 months.

$150.00

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1 month ago

 

$50.00

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4 months ago

 
Teddy bear
 

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Emma Durie

5 months ago

 
 

You are an inspiration!

 
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Matt & Jo Schroeder

6 months ago

 
 

All our love and prayers.

 

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6 months ago

 

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8 months ago

 

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