Wheelchair needed.
Donation protected
Hello,
My name is Lissa. I'm 42, live in Brighton and have recently been diagnosed with Ehlers-Danlos 3 and Fibromyalgia.
Ehlers-Danlos is basically a collagen fault that effects muscles, tendons, ligaments, bones and skin. I have joint pain, muscle weakness, frequent sprains, dislocations and partial dislocations of joints. I'm also waiting for POTS testing (Postural, Orthostatic Tachycardia Syndrome) which causes a racing heart and dizzyness.
For the past few months I have been using a stick but I am having increasing dificulties going out. I get incredibly tired walking and standing and need a wheelchair. I could try to get NHS funding but considering it's taken me 10 years to get a diagnosis and I've been told I will have to wait 8 months for POTS testing I could be in for a loooooong wait! Plus, due to the EDS I need an ultra light wheelchair. Hence the high cost.
Any help that would enable me to get out more would be much appreciated.
My name is Lissa. I'm 42, live in Brighton and have recently been diagnosed with Ehlers-Danlos 3 and Fibromyalgia.
Ehlers-Danlos is basically a collagen fault that effects muscles, tendons, ligaments, bones and skin. I have joint pain, muscle weakness, frequent sprains, dislocations and partial dislocations of joints. I'm also waiting for POTS testing (Postural, Orthostatic Tachycardia Syndrome) which causes a racing heart and dizzyness.
For the past few months I have been using a stick but I am having increasing dificulties going out. I get incredibly tired walking and standing and need a wheelchair. I could try to get NHS funding but considering it's taken me 10 years to get a diagnosis and I've been told I will have to wait 8 months for POTS testing I could be in for a loooooong wait! Plus, due to the EDS I need an ultra light wheelchair. Hence the high cost.
Any help that would enable me to get out more would be much appreciated.
Organizer
Lissa Mitchell
Organizer
