The Peyton Dempsey Fund

Hello All!  My daughter Peyton was born with a very rare intestinal disorder called MMIH (Megacystis Microcolon Intestinal Hypoperistalsis). This means her gut does not move and she does not eat like we normally do, she is IV fed or what they call TPN (Total Parenteral Nutrition).  Most children in the past that were born with this rare condition have not survived.  Peyton just turned 2 years old!  With the help of TPN (IV nourishment) and special lipids we get from Boston, MA she is able to thrive until we find a cure, another option, or she receives a small bowel transplant.  In the meantime we fly back and forth to Boston every other month.  Angel Flight when possible supplies us with two air tickets and we usually have to pay for one out of pocket.  When they cannot supply airfare we have to purchase 3 tickets to travel.  Along with the airfare we have copays with doctors we see in Boston, shuttle fees to and from the airport, housing costs and the cost of eating and other necessities we may happen to need while there for our visit.  Without Boston and doctors here in St. Louis Peyton would not be thriving like she is today.  We have a long road and many trips ahead of us and not sure what avenue we will be looking at to hopefully one day get her "normal".  Any donation is helpful to make this happen.