Katie just turned 3. Hope this year will be better for her. I pray she gets stronger.
Still workin on standing.
Trialing a new trach collar at night now. Stats are staying high but she's throwing up a lot now. Not sure if it's related to trach collar or if it's a stomach virus or something. I'm hoping she'll feel better soon
Therapies aren't goin that great for her. Mostly cause she don't know them still and won't let them too close though I've made progress on several things. Hopefully I'll be able to make more. Still waiting on her walker and gate trainer. Hopefully it won't be much longer.
She is now on a trach collar for half the night. CPAP for other half of night. Her leg strength is getting better. Right arm still very weak but we are workin on it. She's come a long way from what the accident had done but still has a long road ahead of her.
Feeding therapy is coming today to evaluate Katie.
I've posted as many links as I could that had stories bout Katie. Some old and some newer but they are there for all to see. I found something that may help Katie till the PT equipment finally gets here called an upsee harness. Hoping it'll help her stand and walk again. She seems to like it so far.
Next appointment for her trach they have promised to move her down to cpap which is good. She can now drink lightly thickened liquids. Still can't eat yet. Still trying to get her right arm to move and still working on standing and walking
Katie can now sit unattended with no help. She can't put herself in that position yet but if placed there she does fine staying there
4 weeks left of rehab now.
Smiling even with what she goes through
Standing machine now. All the way up
Finally got her helmet. And is approved to go off the floor now. Tryin small foods now like yogurt and pudding. Very small amounts. So far so good
Fell asleep after throwing up all the night before finally
Katie is allowed to lay in bed without brace but will need it when she gets outta it till neck is strong enough. Has a horrible rash from the brace.
Surgery is over. Halo is finally off. Has to ware neck brace for a couple weeks.
Daddy's here to visit.
Baby girl followed more commands today. Spoke a lot also. Baby jabber and word mixture
Peep went down to 7 last night. She did great. Stats are lookin awesome. Let's hope with each change to that vent that she continues to do well. If so she'll be off it in no time. Still praying.
Chest X-ray came back lookin good. They tested her bladder also. Looks good. They decided for now to not cath her anymore. Thank god. She's done great with peep at 8 so soon they'll take it to 7. Halo comes off 9:30 on the 7th. Can't wait
Katie wasn't as cranky during therapy thankfully. Peep is down to 8 now. Cuff deflated. So far so good. Lord please keep healing my baby.
My hubby is boarding first flight. To Atlanta he goes. :(. Katie has a very busy day tomorrow. Poor baby. In between all the therapy she has a app with bone doc tomorrow to check shoulder and halo healing progress. Tuesday she has some sort if a scan on her kidneys and such to make sure all is well with how often she's being cathed. Since Katie has been here she has thrown up almost every day. Now to the point that if giving her meds for settling her tummy and meds for possible dizziness don't work she'll have to have an iv. :(. Don't want that at all. She has gotten a lil more motion outta both arms and legs since we've been here. It's just for some odd reason her stomach won't settle since she's been here. Also. I got to hold Katie today. Finally. Even with halo. That thing is seriously heavy lol. But I didn't mind. Was so happy to have her in my arms. I'll be happier once that halo is off. She seemed happy too. She slept on me. :)
We will be leaving Monday or Tuesday depending on the weather in Maryland. Should know for sure which one by today. To all of you that have continued to pray and/or donate to help her I thank you with all my heart. My daughter is my life and I can't tell you how much your support and kind words mean to us.
Update: great news insurance finally approved. So as long as we can raise money in time and the weather holds up she'll be leaving for rehab Monday between 10-11am. I wanna fly with her but small plane. Not sure if it'll hold me and my bags and wheel chair and walker. So gotta check on that.
To all that have prayed and donated money to help my baby girl I can't thank ya'll enough. My daughter is my world and without her i'm nothing. I thank all of you from the bottom of my heart for your continued prayers, kind words and support. Thank you.
Should hear something hopefully today bout the rehab in Baltimore, Maryland Hope it's good news. I pray this one or New Jersey will take her. Please lord please.
Update: rehab in New Jersey is willing to accept her as long as my insurance goes through. Should know something bout that within next couple days. If they do accept her they'd need Ryan to come up every weekend weather by car or plane so that's something needing to be figured out. Weather rehab denies her due to insurance or not we need to find a house still ASAP. When I came in today Katie was sittin in a wheel chair rather then Layin in a bed which is a huge improvement. Sat in it 20min then put her back in bed. Said they'll be gradually upping the time she spends in the chair. Is gonna have eye specialist as well as a specialist that works on testing ones swallowing ability see Katie soon so we can know how much she really is seeing and when she'd be able to eat food without a tube. Hopefully these specialists have good things to say bout her when they do finally come to see her.
Katie made several spontaneous movements today. Course the nurses are trying to make it seem not as amazing as it is. I'd be just sittin there talkin to her and she'd move her leg up or move her toes. Majority of rehabs case manager have contacted are sayin no cause of Katie being on a vent or cause Katie won't respond to commands. I had given her some more that were given to me this morning and she called me about ten min ago saying they all said no for the same reason. She's waiting to hear back from three of them. She is saying if these decline her as well that she won't be trying anymore because if the bigger well known places all say no then the not so well known places will probably say the same. She said in that case if she hears from these last few and they all say no that we will be trained on Katie's machinery and after fully trained that they may be able to live with Katie in the hospital for a short time to watch us and make sure that we are doing what we learned correctly and if so they will send Katie home.. Our home is still not suitable by any means for her condition or her machines. So please pray we find a rehab or a home that is suitable for her to go to soon.
Update. Shriners denied her. Katie's brain isn't healed enough yet. Case manger has called a lot of different recommendations y'all have given. Most don't take patients her age though there is a couple she's waitin to hear back from. Mother in law found a site that can help you search for brain and spinal rehabs so I gave that site to my case manager to utilize. No new updates on Katie except she moved her foot without me touchin it and she may or may not have taken one breathe unassisted. They aren't sure. They are tryin to teach me how to do different things. Don't think I'm ready. They were showing me how to suction her and change gauze around treak and I saw the hole in her throat. Had never seen the actual hole till today. I cried. And it almost sounded like Katie was tryin to cry. I calmed her down when they were done but they are wanting me to do it tomorrow. I honestly ain't sure if I'm ready for that in just one day if seeing them do it not to mention seeing how upset Katie got. Feel so bad for my baby girl. Please continue to keep her in your prayers. and pray we find a rehab soon. I don't want Katie to get worse. The longer she is without rehab the harder it'll be for her to heal. Pray that until a rehab is found they don't make her come home. it's not suitable for her. Too small and crampt. It'd never fit her machines and with the rooms being upstairs we wouldn't get it all up there. Please let us find a house soon that'll work for Katie before they release her.. at the very least.
Michelle Oliver: I gave that recommendation to the case manager so we'll see what happens.
Update: We were told last night that Katie will not be going to Scottish Rite. They said she's not improving enough. Now we are trying to find another place for her to go and quickly. We were told by hospital that if they can't find another rehab for her and fast that they'll have no choice but to send her home. Our home is very small and crampt and has no room for any of this equipment. She shares a room with her brother on the second floor to top it off and they said that won't work that the house has to be all on one floor not two so now we gotta find another place to live. Please pray that we are able to find a new place to live and a new rehab for Katie to go as quickly as we can.
Tuesday Update: No new news. Everything still the same. no changes. We will be leaving to Atlanta tomorrow or Thursday more then likely but still not a sure thing. They have to make sure all the paperwork is in order. I really hope that the rehab will make her stronger and that we see her progress. I miss my baby girl so very much. I just want her to be better again. She was still giving lots of kisses and moving her tongue around alot. Which is good. She had her first BM today without the help of meds which is a great sign. Lets hope they wait on giving her anymore laxatives to see how she does on her own considering what she was able to do without it today.
Mondays visit. Full of kisses. Every five seconds I get kisses. EEG showed no seizures. Yay.
After Ryan's visit last night he came back sayin that the surgeon was comin by some time today to check Katie's arm. They are concerned with the way her arm is strapped that it may be dislocated. They tried to do a X-ray yesterday and wasn't able to see anything due to halo being in the way. So surgeon will be deciding if they will force her arm upward to get a better shot in the xray. I hope he says no cause if her arm is fine they could break it by moving it like that. Was also told piece of her skull wouldn't be put back in for like 6mo and that's not what all the other docs said so I don't understand why it's being said now. I plan to ask a whole lot of questions when I get there this morning cause I don't think either of these things are right.
Doc came in said specialist about lookin at her arm and said they call me with what they'll do. As far as skull they said the nurse who spoke to Ryan was probably misinformed they still think it'll be put back soon after rehab.
They gave her some tylonal today cause of me being concerned from the expression she had on her face. been making a crying face for a few days. Lookin like she was tryin to scream. Don't know if from pain or if from just tryin to hear herself and being confused as to why she hears nothing. It appears to be helping cause i haven't seen it near as often. also have noticed that she's interacting a little more like closing her eyes when i cover mine then opening them up when i say peek a boo. she's improved so much in one week. for that i'm so thankful. really hope it keeps going.
Now that Katie's account is up those of you who wish to donate money directly to her you can go into any "Tennessee Valley Federal Credit Union" bank and deposit your checks or cash in Katie Barkley's account. They said to just give them first 6 of her account number 210229. And they will deposit it. Or you can mail them to my home 3475 hedge dr. Cleveland tn 37312 and as soon as I get them I'll place them into her account myself. Those of you who have made donations I thank you from the bottom of my heart. Every little bit helps pay all these medical expenses. I hate seein my baby girl having to endure all of this but glad to have people in my life willing to make it possible to get what she will need.
They were talking bout taking off catheter in the morning. sadly Catheter not being removed. They need it to be constant a while. Probably won't see specialist till after rehab. I do hope when she sees one they'll let her be off one cause she is pooping and peeing on her own and most of the time empties it. She tolerated full feeds though they r bringin it down the calories of it so she don't gain too much weight till she can be more active. Trek being changed Monday. She just burped. Miralax every other day. Tomorrow will be on antibiotic for preventing uti. Kidney and lung docs will be here today. They will see her again after rehab to see if catheter can come off. The other handles vent stuff but I'm gonna try and get tony on that. My cousin. Said she may be partially blind due to not reacting to quick movement toward her face. But that's something that'll be worked on at rehab. Said she'll see a specialist to confirm or dis prove that after rehab.
Thank you lord for letting Katie know me. For giving her to me. The blessings you allowed her to show today warmed my heart. To see her grin when I sang. To see her calm with my touch. To see her show her love with her sweet kiss. And to see her down when I left. That showed she was gonna miss me and didn't want me to go. I thank you for all she showed me today and pray it's your will for her to continue to show this to me and to continue to progress forward. I know it was you that healed her enough to show what she did today. And I can't thank you enough. From the bottom of my heart and soul thank you. Amen.
Katie will be going to Scottish Rite. They are thinking that she will being going Wednesday or Thursday. They said that she has a good chance where she may be able to speak and eat without feeding tube with time and a lot of work. walking or breathing on her own they are giving her a very small chance. I'm glad that when at the rehab rather then being across the street I'll be either in her room or a room close by on same floor. It'll be nice to be with her through everything day and night. I'm really hoping that I'll see her improve past their expectations in the 6 weeks we'll be at rehab. they said she'll be able to be taught how to speak with the trek but i'm hoping she'll one day not need it. But they can attach another machine to make it easier for her to talk through the trek. Please continue to pray. Pray she'll do the impossible and breathe on her own. And walk. Lord please make a miracle. Be with my baby girl. Heal her.
In case any reader or interested party would like to read more and view more pictures daily, please go to Pray for Katie Barkley on FB; or to Glyndora Condon's page, or to Katelynn Barkley's page, and even to Kathy Quinn's page; and there will be more to read and more current pictures each day regarding our Katie.
Katie now has a feeding tube directly in her stomach and no longer in her nose, in fact her little nose is now free of tubes. She has an IV in her toe and is connected via trache. to a ventilator, still wearing a halo to support her head, neck, and spine. She is being given antibiotics to offset high risk UTI's and for MRSA which she now has. Katie is awake longer now, and shares several expressions. She has stuck her tongue out when asked and seems to understand her name. In addition, she and her mommy share kisses as they pucker their lips at each other which gives us hope. PT is coming daily to provide range of motion exercises and her grandmother, Glyndora-does these for Katie when she is there with Katie so that she has more exercise and remains more elastic. Tomorrow many family will have to love Katie from afar and will depend upon prayer, facetime, phones, cameras, and reports to follow Katie's progress while in rehabilitation at Scottish Rites which will be difficult for we who are behind...but we believe that Katie will exceed the doctor's reports and will return to us.
Tomorrow Katie will be going to Atlanta for rehab; Scottish Rites Rehab for pediatric children. She continues to be catheterized every 6 hours, is getting a more flexible trache. and will possibly have xrays regarding her arm today. Family and friends poured in to see Katelynn and Katie due to their leaving Chattanooga tomorrow...Katie will be transported by ambulance and her mommy and daddy will be taking training for her care. The doctors continue stating that Katie will have to remain on a ventilator her life. Prayers are rising from people we do not know who have been following Katie's story and we continue receiving gifts from many we do not know to help us provide for her. Katie will need a new, handicap friendly home and transportation, supplies, and round the clock nurses or she will not be allowed to go home...and we are working diligently to implement every possible resource that will help with the costs. The hospital bill presently is in the hundreds of thousands...and she still has more surgeries to endure. WE cannot take her pain away but we can help her to be home with her family where she can be more comforted...and want to thank all of you for helping us bring her home....
Katie's broken arm has been bound to her side since the accident, 2/12/14. Her collar bone and arm has been healing (we hoped) but her doctor now says that it may need to be set and that he cannot see the xrays due to her halo, therefore may need to unbound and raise her little arm for the xray which may break the arm again...we shatter as to the latency of the arm's care; why was it not set before strapped to her? We shutter of the pain she may endure when they lift that arm for the xray. Wonder if it is frozen? Lately her facial expressions depict pain as she grimaces...and our hearts sink lower. Each of us willing to take this from her if we only could....Please God, heal this little angel.
Katie grimaced today appearing to be in pain. My heart sank as I wished to be able to take it from her. I ask God to take the wheel; to steer this situation that we find ourselves living; and to heal our Katie, yet I seem to struggle with allowing God to take complete control as if He needs me to help him straighten this out...Katie must be given to God for him to take through this nightmare. God can give her comfort and cradle her in His loving arms. Please God, let Katie be the miracle that brings others to you and give you the glory.
Katie with her mother, Katelynn.
a few seconds ago
Got to see Katie! She was awake through the visit from the time I said her name upon arrival at 11:30. Hurriedly I pulled a chair close to her side where she was turned, then said her name, then commenced singing her favorite songs; the itsy bitsy spider, Jesus Loves Me, The Little Lamb, Twinkle Little Star, and even a few extras. Then I spoke to her about how much I love her, how I missed her, and how I had tried coming all week and was soooo close, yet unable to walk through the door to her. I shared how much her mommy and daddy, her uncles and aunts, her cousins, and friends, her extended great relatives; and many new friends were all loving her and praying for her. Her trache ventilator hose had slipped up some and was bubbling so I asked the nurse to please come and to check it for her since it did not look right to me...and thanked her for her assistance when she adjusted it and cleaned around it. She said that Katie would be getting another new trache that would be more elastic to allow for more mobility. She then could be turned better without the cord slipping. Katie remained awake until 1:30. I observed more facial expressiveness and small periods where she appeared possibly lucid and familiar with the songs and the words that I said. "Ole McDonald" would have been proud of his full farm...LOL. When my voice grew tired, I grabbed my trusted phone and played the video of me singing her songs, holding it close to her face so that she could see me and hear me, moving the phone from left to right, and from up to down to see if Katie followed the image, but did not see this. A few times she appeared to frown and other times she appeared to almost smile...but mostly she only watched while making a chewing motion with her mouth. What really excited me was when her physical therapist came into the room and stated that she would be happy to show me (when I requested) how to help Katie with her range of motion. WE took off her little brace boot and worked her ankles and feet, then her little legs working through some tremors that occur and a little stiffness of the ankles that soon eased. The PT stated that Katie had not lost range of motion in the limbs or hip that she was able to move and to work with at this time and this was good. Only time with her rehab would be able to answer many questions of her future, and time... Little Katie became sleepy afterwards so I chose to take my leave. I hope to be able to come to her again before she leaves Tuesday and while in Atlanta to give her more support and to learn more regarding her care...Continue to pray for my granddaughter please. Never stop as she continues her journey. I believe that God will restore her beyond what the doctors say, making the impossible real and when He does, I will give him the glory. I pray for those caring for her at this time, for her parents, and for her trip and rehabilitation. I pray for her upcoming surgeries; the new trache, the return of her portion of her skull, the pacer for her diaphragm, and any other surgery or procedure to be successful and to heal quickly with little pain as possible. I pray that we remain advocates for her and are able to give her strength on her journey consistently and lovingly, and that relationships are strengthened during this process. I pray for wisdom and for peace with the absolution that Katie be whole. I love you sweet Katie.
Katie's mom and dad are required to attend training that averages 3 hours daily when Katie is in rehab, costing hotel and food accomodations over 6 weeks. WE are hoping that insurance or March of Dimes will aid them with some of this cost since the hotel alone exceeds 6000.00 for that length of stay for only the mother. Pray that they find resources to help them.
Katie is now voiding, but still must endure catheterizing every 6 hours according to her doctors until she comes home in 6 weeks, placing her at higher risk for UTI's.
When Katie returns from rehab, she will undergo surgery to replace a large portion of her skull that was removed to remove hematoma, and to stop bleeding of the brain. When her swelling is down, then this occurs so her skull was placed in a freeze dried storage and will be replaced then...bless her, another surgery....also they are considering (down the road) a diaphragm pacer to help her to at least partially breathe on her own...
Katie met with rehab staff from Atlanta today and if she is up to 100% of formula in her feeding tube and is processing it okay, then she will be transported to the rehab center for 6 weeks of intense therapy. It is doubtful that she will walk or breath without a ventilator, however, we pray that she will eat without the tube and may talk again... It is not known if she will be able to move her left side but it is believed that due to left brain damage, that her right side is effected. WE will know more as to what she will be able to do after these next 6 weeks. Her mother will be accompanying her and learning care giving skills. A team of nurses will need to be with her 24/7 when she comes home. The family already has been alerted to the need to move to a one level residence due to wheelchair needs; and that Katie will need a room of her own for her bed and equipment, and nurses that will be working with her. Her mother is going to need a vehicle large enough to transport her chair and equipment to and from appointments for her care. Without these issues resolved, Katie would not be able to come home with her parents. They pray as family and friends research resources to help them.
I have gotten to visit with Katie while nurses were holding her trache-tube until the respiration specialist could come to re-stitch the broken stitch. this frightens me to think that stitches can just come loose which could cause her to not get needed oxygen. I also am sad that she has to continue to endure these issues, surgeries, and much more during this time in her young life. Please God, give her a miracle, heal this child.
Katie had an iv removed today due to her not needing seizure meds; had to have a stitch repaired for her trache; had a tube placed in her tummy for her feeding, and doctors are concerned about her lack of spontaneous movements and her inability to follow commands. Her mother is improving but still in much pain with her crushed heal. Family are rallying to help find support and resources for Katie's life struggles and her family: a special thank you to Tony and Kathy Quinn and Richard and Beverly, who have come to our aid; in fact we have so many to thank for food, prayers, visits, cards, and donations as we care for Katie. God loves her and we love you all.
UPDATE ON KATIE (by mom Katelynn Spring Barkley )
Katie will have a peg (g) tube put into her stomach tomorrow or Wed. This will take the place of feeding tube she currently has in her nose. So nothing else will be in her nose anymore. Lady from Atlanta (rehab center) is coming Wed morning sometime to assess Katie.
Katie's still taking meds for MRSA infection and also some meds to keep her from getting a UTI considering the catheter is used on her every 6 hours. Took some blood cultures today to make sure all is looking good. Results should be in tomorrow. Also will be using a new machine on her 3x a day. Unsure of the name of it but basically it's for her weak cough. This machine will more or less send vibrations to her stomach and help all the mucus and such become loose and then they'll suck it up. They said it'll help her lungs operate better. I'm hoping that it'll mean that Katie's cough will get stronger 'cause once it is they'll be able to wean her off breathing machine. Doctor is supposed to call me later this afternoon and explain things in bit more detail so I plan to ask her about maybe if Katie could start be giving a chance to breathe a little on her own. Will update y'all again once I've spoken with her.
Once full of laughter and joy, Katie now struggles to do the most simple tasks...yet she now wakes and this is a baby step that we praise God for.
Katie opens eyes and follows prompts
Katie has opened her eyes for the neurologist and stuck her tongue when requested for him, follows objects with her right eye better than left; but does not move her legs or feet when asked. She is soon to be sent to Atlanta for rehab which is an expensive need and her parents need to be with her to help support her during this difficult task.
Glyndora Condon shared Katelynn Spring Barkley's status.
8 minutes ago
Praise God, Katie remained awake and interacted some with her mother tonight during bath time...
Just got back from seeing Katie. Kept her eyes open the whole visit. One eye moved a lil faster than the other but I believe that can heal. I hope. She once again stuck out her tongue when asked and then she couldn't stop stickin out her tongue. Didn't do kissy face when asked but she may have just been satisfied with her tongue at the time. Tried to get her to follow my phone. She tried. Didn't do so well but she did do it. Giving her a bath would've been simple with both feet but standing on one foot the whole time wasn't easy. When leaving, both feet hurt and tingled but; was well worth it. Sang her favorite songs to her before I left. And talked to her the whole visit.
No new changes so far other than she has developed a serous viral infection. Katie is still on life support.
Katie survived her spinal surgery and did get a new trachometry( misspelled). It was a 5 hour surgery yet she was a trooper according to her Orthopedic and Respiratory Specialist. She sleeps now. Her neurologist is pessimistic regarding her brain and spinal cord functions and states that he wants to see something from Katie that will show him that she thinks and can control moves. WE too want to see progress but will let her rest after this major surgery, then will proceed to stimulate her.
A TALK WITH GOD
Probably all of us as one time or other have heard of someone who died for so many seconds or minutes but then returned to life and when they wake, they speak of a light, or seeing an angel, or seeing God. Not only has this happened one time from one culture, but we hear of this from multiple cultures and from multiple people. Wonder if, when those are in coma or dying, or near death; wonder if they really do see what they say that they see. Wonder if they are given a message to bring back? Wonder if all sees the spiritual side, but some choose to remain with God once they know their future?
It is now that these imposing questions rise while our little Katie sleeps day after day; with her doctors stating that she should have been improving more, with procedures that are uncomfortable, and surgeries, with tubes and respirators, more holes and stitches, being pinched in hopes to make her feel pain so that she responds time and again, with sounds of the respirators and the beeps of the machines as they need tending too; and with strangers, turning her, cleaning her, catheterizing her, and cleaning the areas that the halo penetrate into her head, etc"¦facing yet another serious surgery, pumped with pain killers and sedation medicine"¦knowing that Katie may not waken and may not ever see, taste, smell, laugh, give a hug or a kiss again yet exists due to machines, with multiple infections, pneumonia, and other dangers continuing to invade her. While this is occurring, the family continues praying and sacrificing their own lives and joys, trying to hold to Katie"¦Wonder if Katie is talking to God in her slumber? What could this discussion be like? I am not Katie. I can only imagine me being in her shoes and can only decide for me as to what I would choose"¦What would Katie choose?
"¢ Katie: Who are you?
"¢ Where is mommy and daddy? Brother? Mamaw and Papaw? Grandmother and grandfather? My cousins and Aunts and Uncles? My playmates at day care?
"¢ They are close, see them there?
"¢ Yes, they are so sad, why are they so sad? Some even look mad sometimes.
"¢ See the little girl in the bed? This is your body Katie and they are worried for you. They do not understand why you are suffering and they want you to wake up and be with them again.
"¢ I cannot waken"¦why?
"¢ There has been an accident on an icy road Katie and it hurt you very badly. Your neck was broken, your spinal cord was stretched and pinched, and now is bruised; your shoulder and collar bone was also broken, and your brain is partially dead. You could not breathe on your own well and began to die at the accident site. Much has happened to try to keep you alive and give you time to heal Katie. The machines are keeping you alive. That is the best that man can do.
"¢ Will I heal? Will I climb and dance as I love to do?
"¢ No Katie.
"¢ Okay, will I hold mommy and daddy again? Eat my favorite foods? Play with my toys?
"¢ No Katie.
"¢ Will I see my daddy and mommy smiling at me and will I smile back? Will I cry or laugh? Anything?
"¢ No Katie.
"¢ NOOOOO? What will I do?
"¢ Nothing but live due to the machines until your organs begin to shut down. There will be allot of cost to your parents and loved ones; you will have multiple infections. Your loves ones will care for you, sacrificing all other things if needed to be with you.
"¢ (Katie is quiet and thinking) I do not want to live like that. If I cannot breathe, eat, see, talk, choose, hug, kiss, walk, or do anything but to lay there, then I do not want to stay there, so can you please take me to heaven?
"¢ Yes Katie but Katie, your mommy and daddy want you to live very much. I hear their prayers rising all day and all night. I hear many other people praying for you to live. I feel their pain. I see their heart. Some of them are blaming your mother and me for your condition and if you come with me to heaven, where there is no more pain and where you can soar; then these people will most likely place their soul in the Devils hands and they will be lost eternally. They will be miserable on earth, eaten with the hatred that will engulf them. One of those people may be your father. One may be your mother. Many others may also be filled with hate.
"¢ Katie, I have been working with your father, giving him a wife who loves him, then you to help him to find love in his heart for me, a steady job, family who love him, his home, and all that he has but he resists loving me. He was tolerating me. I have been also working with your mother, giving her your father, her son, you, her talents and job, and spared her from major health issues during the wreck. I believe that if you come with me, then he and possibly she will choose to hate me and then you will never see him or her again since he nor she would not be able to join you in heaven. They are only a young couple with many stressors on them and are barely able to stand under this pressure even prior to your accident. I love marriage and love between two people. I believe that they may not be able to stand together and provide each other the support they will need to have to overcome their grief if you were to pass to heaven now"¦so I have let you sleep so as to be here for them, to give them time to pull together for your sake and for theirs but, I hurt for you as you are imprisoned within your damaged vessel and relying on man's machines for breath.
"¢ "Oh no God, I cannot let my daddy or mommy be so sad"¦I will stay then. I want daddy and mommy and me to go to heaven together. I want them to be happy. I want my daddy, mommy, my grandparents, my friends, to be in heaven with us, my brother, and all of those people who love me"¦so I will stay then, yes this will be what I will do!"
"¢ If you stay, I cannot promise you that they will choose Me, and turn to Me Katie. They may still choose to not put me in their lives and if that occurs, then they will be lost. Sometimes, when loved ones die on earth; then this is so painful that it turns others to me. I do not control free will choices. I provide opportunities and windows for all to make the right choices but do not force them. Katie, their choice can go either way regardless of if you remain or if you come.
"¢ Then what do I do God? I do not want my daddy and mommy to make a bad choice due to me.
"¢ Their choice is not your responsibility Katie.
"¢ What is your choice Katie is if you wish to remain or if you wish to come with me where there will be no more tears, no sorrow, and no pain. Whatever you choose Katie is what we will do together since I will not leave you. What I will promise you is, from whatever your choice, I will make something good come from it and will use it to fulfill My purpose. You are a special creation that is worthy to work miracles in others lives regardless of your choice Katie.
"¢ I do not want to hurt and to only exist yet I do not want to leave my mommy and daddy.
"¢ I know Katie. Sleep Katie and think about what you want. If you choose to let go of life then I will carry you and will comfort your parents and loved ones; if they will let me. If you choose to stay, then I will carry you and will comfort your loved ones if they will let me. I will not leave you. I love you Katie. When you are ready, I am here.
"¢ I hear that you can heal me? I hear many ask you to make me whole. Can you really do that? Can you heal me?
"¢ Yes Katie. I can raise the dead. I can make large numbers in armies lose to a hand full of people, I can part the waters of the ocean and allow my people to pass safely then engulf their enemy, I created the world and hung it on nothingness, and created all life within. I AM all powerful, all knowing, and all present to all of my creation. I could have spared the world from the flood and I could have spared Sodom and Gomorrah had there been enough believers in me; and often, when I hear the prayers of my people and see that their hearts are pu
Katie's mommy was able to visit today and tickled Katie's legs and feet. Although slow, Katie did move both feet. We take encouragement with this but the doctors are still guarded with their support of any progress being made. Many what if's are occurring at this point...and why? Mamaw was unable to visit Katie for the first time today. She has been there every day but the ICU chose to restrict all visitors and changed the code. Without a parent with her, she can not see Katie. There was a conflict with time today.
Kaite's spinal cord was stretched, pinched, and bruised when the accident occurred and she was in her toddler, safety seat, belted in that back seat of the auto. Question: How did she get so injured? It appears that the back seat buckled in the middle which twisted the seat area towards the rear left door, slamming Katie into the door then backwards. A damaged spinal cord resulted, along with multiple breaks, with one; her neck. She has been fitted with a halo to provide support and we wait for the swelling to decrease to see if any messages are being retrieved or sent through her spinal cord.
Katie in her halo.
Katie with Halo; and Katie prior to accident. Katie loved to dance and to sing; will she ever again? Please keep praying for Katie and her family.
Katie with a halo for support
Katie, age 2, before accident
I wanted you to see little Katie when she was 1 and during her last Christmas 2013 prior to her accident to know more of who she really is.
Today Katie continues to sleep and shows no changes. Her IV will be changed to her arm due the halo which is interfering with the one in her chest. She will have her spine fused Friday. Many good people are sending prayers and also many good people are donating for her care...God Bless each of you.
Katie had three tubes removed today, is preparing for her vertebrae fusion Friday, and will have a CT scan tomorrow to check for fluids on her brain. Katie sleeps today.