Good Afternoon, been a while since I updated, and I'm without phone also, but this is a good one. Raj coming home tomorrow, and we have been bringing him home everyday for the past 4 days, just to see how we all do. It was a great transition, from hospital to rehab, so he could build some strength.
It also looks like he is coming home "without" oxygen. Between rehab this morning, and his appointment with his Cardiac Thoracic Surgeon, they have been experimenting with him without the oxygen, and it looks like it may happen. He is out of breath while doing it, but like the surgeon said, his life of running around and lifting heavy stuff, and go go go is done, and he will be short of breath throughout his daily life. But putting it into perspective, from what his lungs have gone through with almost every complication that could happened did happen, the Surgeon is absolutely ecstatic with how the lungs look now. The left lung that was peeling down off rib cage has expanded bigger and therefore now standing up straight, and the Surgeon is comfortable with how it looks. He will always have "hard" lungs now, and not the nice soft spongy ones, hence the reason he will always have to do things slowly now, no high elevations, no diving, and absolutely definitely no smoking. Pulmonary Fibrosis "Hard" lung and scarring of the lungs, which in Raj's case happened, just because of all the other illnesses he had. I'm sure if any of you have read about it, it doesn't always give a great prognosis, but the Surgeon was so happy with how they looked, he said you'll be fine. Just got to slow down with everything you do, and listen to body!
So that is it for now, hopefully in the winter months, we can keep him healthy, away from crowds, and just take each day at a time. Please remember May 18th the fundraiser for Raj here in town, and I will continue to update on this site even once Raj is home.
Thank you all for coming along on the journey with us, there were some hills to climb, and some sharps turns here and there, but for now have managed to get back on the straight and narrow. So for now we are going to try and enjoy this straight and narrow, until it curves off again, which hopefully wont be for a while. Thankss
Raj continues to build strength each day. He is walking, very slowly unassisted and do the stairs in rehab. He is exhausted after he is done, which is due to the reconditioning of his body, and his lungs. He remains on oxygen and does not look like he will be without for sometime
. Depending on how much the lungs heal will determine, whether or not he stays on oxygen, and surgery will be based on that also. ARDS is what had weakened the lungs, if you look at an image of a healthy set of lungs, and then Raj's his look like hamburgmeat, and this is where time will tell
Anywhere from 1 to 2 years, and wherever they are then is what he will be living with! If your interested Google ARDS, SEPSIS, PNEUMONIA AND PNEUMOTHORAX "COLLAPSED LUNGS".
Have a wonderful Wednesday!
Raj's upcoming week involves, appts in pulmonary, etc, and maybe another tooth to come out, lol
He will continue therapy twice daily focusing on steps, walking, and overall strength. Oxygen is more than likely coming home with him whenever that is, he has been there three weeks now.Saturday is his birthday and he will be a whopping thirty three, yer yer yer he's younger. ! Lol
Will start posting updates every 3 to 4 days, as the progress really does not change daily but is more noticeable weekly. We still have a long road ahead of us regarding Raj returning to work, any donation helps to try and pay bills while we are working through this. Also a very good friend of ours is setting up a fundraiser for May 18th in our town, of Stafford, I have shared her info with all friends on my page, and would love to see you there, thanks
Update on Raj, The therapists work with him daily, one hour upper body, and then 0ne hour lower body! He can take steps with a walker, but very slow. He had a numb leg yesterday, that seems to be his Sciatica nerve creating the numbness. He was immobile for quite some time, so any work can have some side effects that go along with it, just part of the recovery. But they checked for blood clots regardless just because of everything he want through. He has another Pulmonary appointment tomorrow at Uconn Health Center, and then the other tooth pulled on Friday, his pain level should go down a bit then! in his mouth anyway. That covers it, pretty much, oh he is still gaining weight, and looks and feels stronger, its the lungs that don't look that great, from the Ards, but with time hopefully they will get better and stronger also. Night all!
Hello, apologies for my lack of updates in the past couple of days! The boys and I were sick, and just took some time to get better!
Update on Raj as of today, pretty much the same with regards to recovery each day he gets a little stronger, and then some days he is really tired like yesterday he was zapped from going to two follow appts at Uconn Health Center on Wednesday, Pulmonary/Cardiac/Xray. Anyway something as simple as that, tires him out, even the drive to and from in the ambulance can be stressful for him, with bumps in the road and stuff. Anyway if that wasn't enough, for the past 3 weeks he has been dealing with an awful lot of pain with two teeth in the back, and finally he got to a Dentist today, back at Uconn again, and had one of them pulled, the other will be pulled next Friday. Because of how sick he was and how much weight he lost, and what type of meds the dentist can give him, he could only get one tooth done at a time, to prevent to much swelling in the face, and allow him to continue eating! So he will be tired today again, but with a lot less pain!
Friends and family, please continue to spread this link, we have a long recovery ahead of us and need all the support we can get, even if you are unable to donate, maybe someone that you share the link with will be able to, or maybe you can offer some advice on other sites that I can share the link with. Thanks it means a lot to us, and minimizes stress on Raj, if he knows I am doing okay paying bills etc, and in return he can focus on just getting well!
Good evening, Raj working each day with Physical/Occupational Therapists, if you look daily maybe there isn't much change, but as a week goes by he is a little bit stronger than the week before, and that is probably how we need to look at it for a while, little baby steps that will eventually lead to bigger steps, when he is strong enough and ready!
Have a wonderful week! more snow yipee! Not, lol
Hello, update on Raj. He has been transferred to a rehabilitation center, where he will spend at least 6 weeks relearning how to do everything that we do daily and don't think twice about it
He is still on oxygen and he will get Respiratory Therapy also. Raj has a very long road to recovery, and I would like to reach out again and ask that you continue to share the fundraising link, and if you are able donate to his fund, any amount helps, to try and cover some bills. I know if anyone of my friends was in the same position, I would be right there supporting them! For everybody that has supported monetary and otherwise, thank you so much!
Good morning, I have just been reading the Gofundme succsess stories, they are very inspiring! If you have time today, take a moment and go read some. Thousands of dollars, pounds etc have been raised here, in such a short span of time, for a variety of different reasons. Its a great place to reach out and get support. Thank you to everybody that had donated for Raj, and please continue to share link and spread the word. No matter how big or small the cause we too need support!
Thank you Heidi
Raj's update today, not much different. Working on gaining weight, so he can build his strength up. He still has quite a bit to gain. Other than that, no news is good news!
Update on Raj, still the same, trying to build strength, he tires very easily, which must be frustrating for him. He will get there, patience. Is a virtue!
Update on Raj, no change! Baby steps, but no steps backwards which is all that matters!
Thank you Heidi
Good evening, Raj still about the same, yesterday and today the nurses have been trying to seen him down on oxygen, but he is not ready yet, and gets quite a bad headache when they do. So holding off got a while, which is good. Otherwise moving forward slowly.
Happy Valentines Day Raj,
You are my best friend,
You are my lover,
You are daddy to Jameson,
And a good one at that,
You are handsome and sexy,
Romantic and emotional,
We fit each other like a glove,
And a soul mate like no other.
I love you my sweetheart, and now its time to eat chocolate! Hehehe
Update on Raj, No news is good news! He is getting stronger each day, sounds better, eating better, vitals for the most part stable. No roller coaster rides for quite some time, which is a relief! On the mend! Happy snowman making days!
No change for update today, its just a slow recovery, and so sometimes daily you don't see night changes. He is eating good though. Which help him build strength. If you have not visited this site the gofundme sight yet, check it out, some of the peoples stories are very inspiring, and if you are able to donate a little for Raj that would help also. But definately read some of the stories.
Raj moving along slowly, but doing so much better, getting stronger each day! :-)
Update on Raj, pretty much the same, just letting his lungs heals, slow recovery, just needs to stay relaxed!
One chest tube coming out in next couple hrs! woo hoo!
Update today, not much change, 2 xrays being done today, to look at lungs in different positions, some blood test being done just to make sure overall system is ok. One of the chest tube suctions, has been turned off as nothing is leaking anymore, although that lung has some air bubbles in it. Will have a better update, when results all come back. He is getting sronger each day, but tired, he doses off while we are talking, it is actually funny! lol
Update on Raj, there is really not much change today, they are weaning him from pain med's by shot to oral med's, and are trying to find a happy medium so he is not in too much pain. The chest tubes create a lot of discomfort. He is gaining weight, eating well, and has a good attitude . Its a waiting game, the lungs need to heal, it could be a month it could be three months, then to a rehab center after before returning home. His recovery at home will be slow also, and could take up to a year, before returning to normal. As far as work goes, he may have to change his line of work also. "patience" is going to be the new word around here. If you are reading this then you are well aware of the fundraiser. If you are able to donate even a little amount...its a big amount when a lot of people are included. So if you could spread this link as far possible as you can, it will all help, as we have some time ahead of us without Raj's income.
Thank you so much for your continued support and encouragement!
Update on Raj, forgot to mention they disconnected him from his big monitor yesterday, that shows heart beat, blood pressure etc, and today took the little oxygen clip off finger, its all good and scary at the same time, you come to depend on the monitors and there is a sense of security about them. Other than that, he is getting a little stronger each day, but has to rest, if they even attempt to move him or try and have him walk, he can relapse, get stressed and then it sets him back, its amazing how the body heals, sometimes quick, sometimes slow, depending on the illness, but its amazing regardless!
In a lot of pain from Chest tubes, but he is taking care of the nurses with that! lol They have been very good to him, and are taking care of him, how can they not he's such a handsome dog, with that contagious personality of his!
Good day so far, no changes other than moving forward very slowly, has a little more strength! Will update again later tonight maybe!
Hello, update on Raj. Well the other lung collapsed, which explains the chestube pain on left side. So the old ticker is strong. So he has another chest tube in the left lung, and as soon as it was done heart rate returned to normal, breathing and talking way better, and best nights sleep since he was sedated. He stood for 40 seconds on his own tonight. Surrounded by all his nurses! Lol so he would not fall, and was exhausted from doing do
But very very small little baby steps. Goodnight zzzzzz
Raj had a bit of a tough night, pain in left lung, when chest tube is in right lung, both lungs are inflammed, so it could simply be pain associated to the inflammation from phneumonia. Did some ekg's just to check the old ticker, and ran some labs, should have results sometime today.But he sounds stronger when he speaks!
Good evening Raj continuing to make little baby steps everyday. He is still very weak, but is able to sit in chair and eat which is huge. He tires easy, but staying awake longer. Lungs still need to heal and that is the focuse for now, however long it may take!
Good evening everyone, not much to report on Raj today, about the same, its a slow recovery, and he was very tired today. With each day he will gain more strength!
I have a very special couple to thank. Fred & Colleen, thank you so very much for setting us up with transportation. I know I keep repeating myself, but the support from family and friends, its just remarkable, and we are so thankful that you have all reached out to help up!
I am at a loss for words, and in complete ore at the support from family and friends. Truly, truly thankful, for all of you reaching out to our family, while Raj is sick!
Update on Raj...my sweetie had a bit of a set back, and is back on a high intensive care ward, one step down from ICU. Some patients take longer than others and he just wasn't ready for the lowered oxygen level, and the lung collapsed again:-( It is going to be very slow for Raj, but he will get there, its just taking him a little longer.
Today's update, pretty much the same, with regards to moving forward, and now sitting in chair and eating and drinking! Yaaaaaay
Sorry about errors, my keypad is so sensitive, it sent before I proofed my message. Anyway this I can laugh at, because its funny!
As most of you know from updates on fb and texts, Raj has made huge progress considering we could have lost him. He still has the mask for oxygen. And they try to lower it ad they go along. The Respitiry Therapy will help with that also
Buy he is extremely weak and exhausted just from trying to sit up. He is on the ment ioned but it will be a slow recovery. Hopefully with not too many set backs!
Hello my name is Heidi, and I would like to share with you, what our beautiful little family has been through in the past couple of weeks.
My boyfriend Raj, daddy to Jameson almost 3, and a wonderful guardian to Trent 17 and Brett 14, is at this moment fighting so hard, and is lucky to be alive, but he is getting a little bit better each day.
Raj had quite a bad case of the flu, at the beginning of January, but instead of getting better his condition just got worse , and then 2 weeks ago ended up in the ICU ward completely dependent on a ventilator. I did not realize how serious it was until I was told to make arrangements to come and see him, because the Doctors were not sure if he would make it through the day. He was diagnosed with Pneumonia, an then the infection went into his blood (Sepsis), with his lungs now already weak (ARDS) set in, Acute Respiratory Distress Syndrome. 11 days later after being in a sedated state, and assisted by oxygen Raj came off the ventilator and now has a mask, and more importantly is still with us, miraculously. He is working hard every day to recover, but not without the ever roller coaster ride, of ups and down, and because of the severity of his illnesses, complications along the way. He makes progress daily, but little little baby steps.
It is uncertain as to when Raj will be home, it could be months, and even then he will have a mountain to climb with regards to gaining strength in all areas. My car has already been repossessed, and without Raj's income it is very hard to pay bills, and unfortunately they are beginning to mount up.
Hence this is why I came to this site, to reach out to family and friends, to ask for your support as Raj continues to recover from this dreadful sickness.
We miss Raj so much, and some days are hard to get through. Trying to stay strong for family, and just dealing with life in general, doesn't seem to be as difficult until faced with anything that disrupts, what we all come to call our routine.
Out of bad, always come some good, in this case just realizing how precious our lives actually are, and I find myself slowing down a little, and letting things go, that once may have seemed so pressing.
I would like to thank you all for taking this time to share in our story, and for the many that will read this and who know Raj, it is evident that he has touched your lives in a special way also.