Hey everyone! This is Candice, Colton's mother. I want to thank all whom have followed and helped us through our scary journey. I am so happy to say that we made it home safely, March 4th.
The first week back was a little nerve-wracking, due to Colton being hospitalized at Fl Hosp Tampa for an unknown stomach virus that caused him to projectile vomit, leaving his blood sugar super low. We luckily were only there two nights and was sent home as a better baby. He's developed acid reflux, but with the aid of medicine and the right treatment, my baby boy is doing OK!! I am currently checking his blood sugar 3-4 times a day. So far, so good!
Colton and his twin Camden are sprouting away; Colton weighing 13.6lb and Camden weight 13.15lb. BIG BOYS!!!
I have been so grateful to all of you whom donated and also sent your prayers strong. Without ALL of you, we wouldn't have come so far. But, we have and are fighting strong still!
Now, as far as procedures, Colton underwent a surgery to remove 75% of his pancreas on February 14th. This was to cut down the amount of insulin production(too much insulin=low sugar levels). He received no other treatment after except for just monitoring his blood sugar and watching him maintain it all on his own.
Our discharge was bittersweet, only for the hard reality that MY SON IS NOT CURED. This is what I have to come to accept and live through it, praying he will soon, one day grow out of this; especially to not become diabetic later in his childhood. (boys through their growth don't require as much insulin as girls do, so this will be a wait and see what happens)
Continued prayer is what we truly desire and hope to move past all of this. I will say something though; through all of the pain and suffering Colton went through, he is one TOUGH and HAPPY baby!
Thanks again to everyone! Love to all!!!
We have increased the goal amount to $12,000. Although they have safely arrived in Philly, the Ronald McDonald House is not available. The cost of rental car, train passes, food, etc. are quickly adding up! THANK-YOU to all who have given. We truly believe you are "Colton's Care Angels".
You all are AMAZING and fully appreciated!!! Thanks to EVERYONE whom have supported us through this hard time. Hopefully this next month will be the last of treatment for Colton. Tomorrow, 1-31-14, we leave for Philadelphia. Wish us luck and keep us in your prayers!
God is good!
We haven't heard from the hospital on an exact date this week when we're leaving, which is putting us in a whirlwind of planning. Hopefully Monday we have an exact date so we can get the ball rolling. Thanks to all that have shared, donated and just supported us through these tough 2-1/2 weeks. Colton I know appreciates it as well as mommy! ;-)
God bless all
Candice, Colton, Camden, Chloe and Jon
Colton has been diagnosed with congenital hyperinsulinism. The only option for a successful treatment is to go to Children's Hospital of Philadelphia. Candice and Colton will leave this week.
Although the medical will be covered, they have suggested they will need $5000 for additional expenses (food, cabs, travel for Camden, Candice's mom, Chole and Candice there and back home). Jon is staying behind to work, but the financial burden is overwhelming!
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