Eevie just finished her last dose of IV antibiotics. Yea! She will see her local oncologist this week for IV chemo and will begin steroids. She is starting to be more vocal and is beginning to say Bye Bye!! Eevie is also making multiple animal noises:).
Eevies counts are looking good:) she has two more days of IV antibiotics. She has a speech therapy appointment today to work on eating real food!
Eevie has been feeling ok. She has been teething...there are bite marks all over mommies coffee table...she continues to take antibiotics. She was able to visit her great great Uncle!!
Eevie continues to receive IV antibiotics. She is also taking the oral chemo 6mp along with oral antibiotics to prevent pneumonia. She is feeling much better despite her cdiff and infection. She is VERY active and giving Mommie lots of exercise! Go Eevie go!
Eevie's pediatrician said she is AMAZING and AWESOME...literally! No worries about development at all cognitively or fine motor or gross motor....she is small in size but is on the growth chart and he's not worried:) He said she is GREAT! Here she is on her 15 mos. birthday today mimicking daddy! What a ham!!!
Eevie is back home and celebrating gammy's birthday! Happy birthday Gammy Nancy!
Cultures just came back positive again. Looks like Eevie will be in the hospital a longer time...into next week. They also need to do a patch on her spine and have to put her under for that..we continue to covet your prayers!
Eevie played a lot today. She continues to put on a happy face despite circumstances! Her culture showed Serratia in her line which is a nosocomial bacteria..meaning hospital acquired. Still gram negative. Changing antibiotics. Dr says its treatable. She also has confirmed CSF leak from her spinal in kc last week.
Thank you all for the many prayers and the outpouring of love!! It means so much to all of us that Eevie has you as her prayer warriors!!!
Eevies fever is back down to about 100. The drs have determined she has an infection from gram negative bacteria in her chemo line (Hickman) so she is now on two antibiotics and they are flushing her line trying to save it. If they can't she will have to have surgery in KC to remove it and put another in. Hopefully they can get rid of it! Here's a pic of her feeling better. She'll be at the hospital a few more days.
Eevie needs immediate prayers...she is at the hospital with a line infection and c diff and her temp just shot up to 105.5....please pray!
They have released her...cdiff is the problem. She will she a disease specialist this week as this has been a chronic issue.
Eevie woke up early this morning with 102 fever and very unhappy. She is at the hospital having tests run. She does have cdiff but could have another infection as well. I will update more soon.
Eevie came to Aunt Kimmy and Unkie Mike's house today! We had such fun!!! She played with Gracie and Wally and even patted Creed on the head! She has C-dif again but has a great attitude!!!
Eevie has been feeling good! She's on her fourth day of steroids and had been very active and chatty! Aunt Kimmy got to talk on the phone with her! She had to go to the hospital today for an IVIG. This pics caption is "OMG! I'm at the hospital AGAIN??" Haha! What a ham!!
Today Eevie had a spinal tap and received three chemos. She begins steroids tonight. Wound care looked at her bum and gave mommie and daddy a few new ideas. Nutrition was happy with her weight gain!!
Eevie heads to KC tomorrow for a spinal tap. She will begin the dreaded steroids tomorrow night.
Eevie is feeling great! She has been crawling non stop and is sporting her kneepads her great aunt Kimmy gave her! She loves walking with her walker! She is taking oral chemo.
Eevie had good labs today. Her hemoglobin was 12.5! Go Eevie go! All of her therapists continue to be amazed at her extreme progress. Her diaper rash is on the mend but still a problem.
Eevie had IV chemo yesterday afternoon. She is having a good day. She is really starting to take off on her walker! Go Eevie go!
Today Eevie went to the zoo for a few hours. She LOVED the giraffes. Her bum is still broken down. She has a chemo infusion tomorrow in Wichita.
Eevie had a great day today...even though her favorite sports team (Green bay Packers) lost. She played and watched the game with her grandparents. Her bum has more breakdown and she is having trouble keeping her feeds down.
Eevie has had a GREAT day. She has been playing a lot and has been mimicking mommie and gammy. Eevies labs looked good yesterday.
Today Eevie had an appointment with a speech therapist to work on feeding. Eevie impressed as always. She was cooperative and tasted bananas, twizzlers, and pretzels. She will work with her therapist to calm her very sensitive gag reflex. Come on Eevie get rid of that feeding tube girl!! You can do it!!
Eevie's bum is starting to look a tad better. She received IV chemo yesterday. She has been gaggy but content! She has learned to growl like a tiger!!
Aunt Kimmy got to babysit Eevie!!! She was a busy body, into everything just like a 14 month should be!
Eevie had good labs today. She continues to have breakdown. Tomorrow she has appointments with her oncologist and a feeding specialist.
Today Eevie is much better!! She is smiling and laughing and even licked a sucker! Her bum is slowly beginning to heal. She is taking daily oral chemotherapy.
Eevie is better today! She continued to have severe bottom breakdown. She had a PT/OT evaluation at the hospital today. The therapists were blown away by Eevie's strength and said that she is right on track and is not in need of their services! Wow Eevie! You are a wonder.
Eevie is at the doctor getting her bum looked at. Her breakdown has gone from bad to worse. She has been extremely fussy and is very uncomfortable. Steroids have been awful. Feel better soon Eevie!!
Eevie has had a very rough day because of steroids. She has been crying most of the day with very little sleep.
Eevie is one year in remission!! Happy Happy New Year!!
Today we had a HUGE scare. Eevie's blood work showed 3.9% blasts. The oncologist in KC had her mommie and daddy wait multiple hours while her cells were examined by a specialized laser-based machine to determine if the leukemia was back. The family felt nothing short of terror. Results indicated .8% blasts that DID NOT have leukemic markers. The oncologist stated that we can celebrate that Eevie is still in remission this New Years.
Eevie is about ready to get her spinal chemo. She is smiling at the nurses and the doctors. She had IV chemo earlier today. Keep up the good attitude Eevie. You continue to inspire!!
Eevie's diaper rash has gone from bad to worse. She has open wounds. Mommie bought her a vinyl play area so she can air out her sore bum:/ she heads to Kansas city tomorrow for a spinal.
Eevie has had bottom breakdown from her antibiotics. The open wounds on her bum are making her very unhappy. However, she played with her great grandparents for several hours and loved watching her Papajon play the piano. Later in the evening, she played with her Nana, Papa, and Gammie.
Eevie has been doing quite well. She has 6 teeth coming in! Her counts are still recovering. She has been enjoying time with her Aunt and uncle this week!!
Eevie had a very ️MERRY Christmas today with her family! Here's our little elf wishing you and yours the happiest Christmas ever!
Eevie's counts are back....drum roll please......WE WILL BE HAVING FAMILY CHRISTMAS AT THE RELATIVE'S THIS YEAR!! She is on her way to count recovery and feeling much better. The Mulloy family could not be more thankful this Christmas to have Tiny Tim at home and well. MERRY CHRISTMAS ONE AND ALL!!!!
Eevie is playing in the bathtub and feeling great! It's a very merry Christmas Eve eve!!!
Eevie's headed home from the hospital! Yay! Thank you for your prayers!
Eevie was admitted to the hospital at midnight last night. Her temp was 102. She has been very uncomfortable. Blood cultures were drawn to check for infection. We are waiting on results. Antibiotics have been started.
Eevie's counts have officially bottomed out. She has no defenses against germs. Her family is preparing for the Hospital....hopefully Eevie will get through this last high dose infection free. Stay strong Eevie we love you! As a side note...Eevie is learning how to tie christmas bows...
Eevie is starting to get very nauseated from the chemo. She is having a small amount of skin breakdown. Yesterday she was very uncomfortable and restless. Her hemoglobin and platelets are low. Tomorrow she will have infusions at her local hospital.
Eevie crawled all over the place today! She loves being able to get where she wants to go! Here she is all smiles under the Christmas tree!
Aunt Kimmy got to play with Eevie today!!! She was crawling and pulling up everywhere! Look out mom and dad...here comes mobile Eevie! Here she is on her Minnie airplane!
Eevie's counts are looking good. She is doing well considering all that has been pumped in her tiny body. She is a tad nauseated and her face has some breakdown. However, she has been playing a lot. Her friend from the leukemia lymphoma society brought her a birthday book today:))
Eevie is home! She did very well in KC with her last dose of heavy duty chemo. Here she is playing on her Minnie airplane!
Eevie is on dose 3 of 4 of the high dose chemotherapy cytarabine. She has had several episodes of nausea and has had low grade fevers. However, medical staff is impressed with how well she looks considering her past. Keep it up Eevie!! We believe in you!!
Eevie is beginning her last round of high dose inpatient chemotherapy. She will receive four three hour infusions and one injection. The chemo can burn her eyes so she must have eye drops. It can also cause high fever. The injection she receives Wednesday can cause a very serious allergic reaction. An Epi pen will be close by. Stay strong Eevie! Your getting closer sweet thing!!
Eevie has been fussy and was up all night last night. Mommie thinks she may be teething? She has also had a few stomach cramps. We are unsure if her stomach infection is back.
Eevie had a good day. She went to her great grandmothers house to hang her Christmas ornament :)
Eevie has had some trouble with a gassy Tummy :/ hence the face!! Haha!
Eevie has been a tad fussy these last few days. Teething? Infection? Not sure. She has also been playing and enjoying her giant Minnie that was given to her! Yesterday we found out that her blood work looked good with no cancerous blasts present. Her platelets were too low to begin her LAST round of high dose chemo week.
Eevie is at her papa and nanas house decorating their tree. She has been feeling much better today!! She is even rockin out with her Minnie guitar!! Rock on Eevie!!
Eevie has a cold. She has been stuffy and sneezy :/ however...She has loved spending holiday time with her family!! Happy holidays Eevie!!
Another amazing day of fun with Eevie at our annual Christmas tree farm visit! Eevie was so happy and we even went on a hay rack ride! SO THANKFUL for these special days that were only hoped for one year ago! Hearts are full!!!!❤️❤️❤️
Eevie had her very first Thanksgiving at HOME with her family. She felt great and attended two family parties. We are so very very very very beyond thankful for Eevie's health and happiness this very special Thanksgiving!!!!!!!!
Eevie continues to do well...her counts are still going up and she received platelets today.
Eevie is slowly building counts and recovering from her neutropenia. Go Eevie Go! She has some bottom breakdown from the antibiotics. Ouch! But has been playing and a tad wild today.
Eevie had a rough night of sneezing and coughing but her fever broke this morning and she's played all day..,except for a short nap with Annie!
Eevie update: little miss tiger has been roaring at that fever and is doing much better today! Getting released from the hospital to go home! Yea Eevie! Thank you all for your love and prayers! Tigers still need prayer warriors!!!
Eevie has 101 fever and is starting antibiotics. They drew cultures and she will stay at the hospital overnight.
Eevie has a fever of 100 and is now in the hospital. Hopefully it's just neutropenic fever and she will recover quickly. I will update as I receive info.
Eevie has been in a good mood. However, her counts are really dropping and she will be neutropenic soon if not already. This means she can easily get a life-threatening infection. Stay healthy Eevie girl!!
Eevie continues to be happy and cheerful despite her chemo nausea...here she is comparing hoodies with daddy!
Eevie has been throwing up but continues to be happy anyway! She's my daily reminder to quit complaining and laugh!
Eevie was nauseous and threw up quite a bit today, but still very happy and playful.
Eevie's at home playing with her new toys she received on her birthday! Today is a happy day!
Eevie is on her final infusion day for this round of chemo. She has had progressively more trouble with nausea and vomiting. She had a great time staying at the Ronald McDonald house this trip! THANK YOU RONALD MCDONALD!! Mommie found out that the KC House is in great need of blankets. If you are able, please purchase and send queen or king size blankets to the following address...
2502 Cherry Street, Kansas City, MO 64108
Eevie is on day 4 of 5 of high dose chemotherapy. She is beginning to get more nauseated. She is receiving meds to help control the vomiting every 4 hours. Last night, she was slightly obsessed with the Elvis poster at Ronald McDonald's...she loved listing to Elvis music as well...didn't know she was a fan until yesterday.
Eevie continues to stay positive and smiley despite high dose chemo that is very nauseating. Today she received two infusions of chemo and one "rescue" drug called MESNA thar saves her bladder from being burned by one of the infusions. She has thrown up one time so far. She has been enjoying Sesame Street.
Eevie is currently at the hospital for high dose chemotherapy. She has gagged a few times and has some bottom breakdown but is pretty cheery. She watched The Grinch today! She is in the oncology clinic all day from 8-6 and stays at the Ronald McDonald house at night. Here she is trying to escape from bedtime! Thank you Ronald McDonald house!!
Happy 1st Birthday Eevie Elouise Mulloy!!! Love you SOOOOO much!!!
Little miss cutie pie said Mama today!!! And that hat is TOO much!
I enjoyed being with Eevie today!! Spent 5 hours with her and she never cried!!! We played and played!
Eevie still has cdiff! She's been happy though....not too many stomach cramps...she tried very hard to stay up for trick or treaters but just got too sleepy!
Eevie had a blood transfusion today. She had to wait at the hospital a long time so she didn't get a good nap and was cranky. Mama tried to cheer her up with some silly glasses
Eevie has been enjoying ducking on pretzels once again. She still receives all of her nutrition from her feeding tube but mommie is working on that! Tomorrow Eevie goes to the hospital for an infusion to build up her infection fighters.
Eevie had another good day today. She was VERY hyper and babbled a lot. She is a little gaggy. Chemo again next Friday. Here is her pumpkin that Grammie and daddy made for her!!
Eevie had chemo today at her local office. She has been in a great mood!
Eevie is still recovering from chemo. She is achy. Eevie continues to receive steroids and her experimental chemo until tomorrow. She just had her bath and cap and dressing change and is now relaxing on her giraffe:)
Eevie is having a rough day. She is very restless and achy. She has been vomiting and has had to take many meds. Stay strong eevs!!
Eevie went to the pumpkin patch today and then to Aunt Kimmy's for dinner! She was all decked out again...lucky someone didn't mistake her for a pumpkin!
Eevie went to her first Halloween party..,as a peacock! Later we celebrated the six fall birthdays we have in the family so Eevie got to blow out a candle...well mommy helped!
Eevie has to go to kc's children's mercy tomorrow for a spinal. She continues to vomit from time to time but has been in a good mood otherwise. PT came by today and was impressed by her ab strength!!
Today mommie and daddy looked at cakes for eevies upcoming 1st birthday! Eevie has felt a tad better today!
Eevie continues to have vomiting. Not sure of the reason. More extensive testing may occur. Her labs looked good this week. She's the cutest lil punkin ever!!!
Eevie has been playing a lot today. However, we think she has a stomach bug. She has been vomiting lots in the morning.
Happy 11month bday Ms. Eevie!!!
And GO JAYHAWKS!!!
Today, Eevie enjoyed her little play gym that Papa Jon got her! She loves all the funny noises...it reminds her of Papa Jon!:)
Eevie seems to have cdiff again...icky! She's still got a great attitude though! She had fun playing with cousin Tristan at Aunt Kimmy's today! Here she is in ANOTHER Halloween outfit!!!
Don't look now but there's a black cat on top of your head!!! I love all of Eevie's October outfits! She's a little nauseous today but still happy!
Looks like SOMEONE'S been in the candy corn!!! Eevie continues to have a wonderful week! This Sunday she will be the honored guest at Old Mission Mortuary's walk of roses...they are planting a rosebush in her honor to remind all that life blooms in the midst of pain and chaos...and Eevie is blooming despite the odds! Precious champion! The event is Sunday October 5 at 2 pm and Buffalo Wild Wings on the east side will donate a portion of every purchase that evening to Eevie!!!
Eevs counts are good. Hemoglobin 9...platelets 63,000...white count 3...anc 3000...not neutropenic at all!! No blasts. Go Eevie go!!!
Eevie had a good day. She sat in her new high chair at her great grandmama's house! She saw her papa and nana and watched their aquarium. Eevie loves fish! Tomorrow She receives chemo at the local office. Here she is dressed for Fall!
No news is good news...and good news is better! Eevies feeling great and looking cute! Sure love these good days!!!!
Wow...T & J Photography took photos of our Eevie for the Leukemia Lymphoma Society! Here she is...our 10 1/2 mos old Life Warrior!!!
Eevie has had a good day. She is feeling much better as you can see!!!
Eevie continues to feel better! Her counts were good except for her liver enzymes being high due to chemo. Might have to lower the dosage...Eevie's been very content and playful! She loves mimicking sounds....especially smacking her lips after someone else does!
Eevie had a great day today! Happy and feeling good! She visited her oncologist today and played a lot with her toys, mommy, Annie, and even Aunt Kimmy!
Eevs had a good day. She smiled and played a lot with her extended family. She even tasted some frosting! Yum! She remains on antibiotics and has started an oral chemo at home. More chemo to come next week at her local oncologists.
Spent the day with Eevie and she was feeling much better! She did pull her feeding tube out and daddy had to come to the rescue! Eevie's hero!!!
Eevie is feeling a little bit better today. She is on two different antibiotics. However...she is a tad tired of mommie choosing her outfits...
Eevie is still very cranky! Chemo and cdiff are making her extremely uncomfortable!
Eevie has been very fussy. Mommie and daddy took her to the doctor today and he thinks she is achy from one of her chemos. She is being tested for a bladder infection and a stool sample was taken. Eevs has been receiving pain medications to help ease the aches and pains. However, she still enjoys Oreos:)) who doesn't??
Thank you to Ronald McDonald house for such a special video of the Mulloy family and making last night such a wonderful event! Congrats to Ronald McDonald house of KC for raising $450,000 for their organization last night!!!
The Mulloy family, Ryan and Brynne and Eevie onstage at Ronald McDonald house's Red Shoe Shindig!
At Eevie Elouise Mulloy's Ronald McDonald House Red Shoe Shindig!
Eevie had a spinal tap today. She's not feeling very well this evening. Tomorrow's her big night at Arrowhead Stadium!
Eevie, mommie, daddy, and Annie are all in KC awaiting Eevie's spinal chemo. She will receive the treatment in the early AM. Saturday is the big Ronald McDonald Red Shoe event where she is the guest of honor!!
Happy 10 month birthday Eevie Elouise....aka Life Warrior!!!! Keep fighting and keep smiling precious girl!!!
Eevie went to the hospital today to receive blood. Her hemoglobin was the lowest it has ever been at 6.7. Hopefully the blood will help her feel better. She continues to fight off her c diff and remains on antibiotics.
Eevs had a so-so day. Her bottom has some break down from her medication. Her PT and OT stopped by today to work with her and are impressed by her sitting! Eevs continues to be a tad cranky from stomach cramps and diarrhea (hence the skunk tee shirt). She did smile for mommie and giggled a little! Stay strong eevs!
The Mulloy family would like to put out a HUGE THANK YOU to the hosts of the neighborhood party and fundraiser for Eevie!! Thank you everyone who helped set up and who participated! The Mulloys were blown away by your kindness and generosity! The shirts, food and drink, balloons, and surprises were truly amazing!!
Eevie is tuckered out from her infection. She has been vomiting up the medication that she needs to fight it off. 5 more days of meds to go at a rate of 4 times per day! Whew!
Eevie has a new infection. Her stool was positive for C diff. This causes extreme belly cramps and can cause hospitalization. She starts antibiotics today.
Eevs went to her oncologist today. She has been having blood in her stools. However, she has been quite happy at home and has been smiling and sitting up very well.
Somebody had fun at Great Grandmama Lorna's today...looks like she'll be crawling in no time! Eevie had a drs appt and her blood counts are going up like they should!! She's doing such a great job! Go Eevie!!!
It was taco night again at the Mulloy's!
Got to play with Eevie today! She was wonderful! Sitting strong all by herself playing with her toys! She was more interested in tasting her books today than reading...maybe a tooth is coming??? Here's my little sugar with a smile!
Eevie continues to amaze us! Doing so well back at home! Her counts are going up (good) and nausea is much less. She's been playing like every baby should!:). Here she is sittiin' proud!
Eevie is home! She is doing much better! Thank you for all your prayers! Her neutropenic stage was shorter than expected after such strong chemo. Here she is enjoying one of her many books!
Eevie is VERY restless and fussy. Probably from stomach pain or agitation from steroids. However, she continues to recover and has not had a fever or vomiting. Feel better soon eevie!!
Eevie is slowly beginning to recover. She has not had a fever in about 20 hours. Whew! However...she threw up so hard she threw up her feeding tube. The nurse had to place a new one today. It looks like Eevie will continue to be hospitalized for a few days.
Eevie had an awful night! Fever went up and throwing up and diarrhea constantly. I'm holding her now and she's finally in a deep sleep. No fever for 8 hrs now. Hopefully through the worst. Looks like it's neutropenic fever from the chemo and not an infection. Continuing to covet your thoughts and prayers! Thank you!
Spent the afternoon at Wesley with Eevie...she finally slept for a few hours...woke up happy but had diarrhea and 20 minutes later started vomiting again! Poor Eevie! Feel better precious girl!!!
Full update: Eevie has spiked a fever and it is going up and up. Mommie is getting nervous. Eevie is now inpatient once again. She has been vomiting and is very lethargic. Her counts are near zero. Infections are very dangerous at this point in her treatment. Please stay strong and recover eevs!
Fever and vomiting...every illness is serious when the immune system is compromised, especially for an infant. Please keep Eevie in your healing thoughts and prayers.
Eevie had spiked a fever and is being admitted to Wesley hospital. Will update more soon.
Eevie has been working with her OT/PT therapist today. She is sitting up much better and has enjoyed sucking on pretzels! She continues to receive meds to make her bone marrow recover more quickly as well as her experimental chemo and anti nausea meds. Roar on Eevie!!
Today eevie received both blood and platelets at the hospital today. The blood has given her a small boost of energy. She continues to be sore from the GCSF (medication that stimulates her bone marrow) and is still somewhat nauseated from the experimental chemo. Here she is taking a bath with her new rubber ducky!
Side effects of this round of chemo are starting to show their ugly faces...eevie has been restless and has been vomiting frequently. She is starting to feel achy. However, she continues to talk a lot and occasionally rolls around on her favorite play mat.
Eevie's just chillin'...watching Mickey Mouse Clubhouse...chemos been making her feel icky but Micky helps distract from the bad feelings! Love you Eevie!!!
Eevie is doing well so far at home. She has had trouble with vomiting but has been taking the edge off with high dose anti nauseas and Popsicles! She has been babbling and making some crawling motions. Keep strong eevs!! Mommy's missing her friend Anna's bridal shower but Eeves is wishing you well today too Anna!!!
Eevie's home from KC. She has a rash on her face likely from chemo and is throwing up quite a bit but is doing well considering:)). Here she is on her way to see the dr. She's in her plastic bubble to protect her from germs!
Eevie has been very nauseous from chemo...throwing up frequently. Here she is watching the music video for Eye of the Tiger for inspiration! We love you Eevie! You can do this!!!
Eevie just began her next round of high dose chemo. She receives four doses and an injection. This med can make her have high fevers and rashes. Eevie must also receive eye drops to prevent the chemo from burning her eyes. Stay strong eevie!!!!
Happy 9 month birthday Eevie! Look at you...sitting up all by yourself!
Eevie is making lots of progress with her physical therapy and sat up on her own a lot today!! Mommie is so proud of her! She also licked a ranch potato chip and liked it:) still on for chemo on Tuesday.
Eevie went to her oncologist today. Her counts are still looking ready for chemo on Tuesday. Eevies central line in her chest would not draw but her doctor fixed it. Keep on keepin on eevs!!
Eevie is doing great! She's almost ready for the next round of heavy duty chemo! Looks like the family will return to kc onTuesday for the next round. She also passed her hearing test with flying colors! Here she is playing with some of her favorite toys!
Eevies counts looked good today. She may be ready for high dose chemo on Thursday. If her counts aren't ready Thursday, she will go for treatment on Tuesday next week. Roar on eevs!!
Tomorrow Eevie goes to her local oncologist to see if her counts are ready for her next round of intensive chemotherapy. If she is ready...the family heads to KC for a very high dose treatment.
It's taco night at the Mulloy's so here's Eevie in her taco shirt!
Eevie's having a happy healthy week just continuing to gain strength after her illness last week. Here she is all decked out in summer pink!
I got to play with Eevie today! She was all smiles and laughter! Here she is in her high chair laughing at mommy and just looking beautiful!!!
Eevie's all tuckered out after visiting grandmama and papa Jon's this afternoon! She played and enjoyed being with her great grandparents today!
Eevie's counts are rising again after her heavy chemo...go Eevie go! Here she is with Gammy at the drs office!
Despite pulling out her feeding tube in the night and not sleeping....Eevie's doing much better today and is heading home! Hopefully the family can finally REST!
Eevie is still very sick with vomiting diarrhea and fever. Drs aren't sure yet what it is. Brynne Ryan and Gammy have not had much sleep for three days now. Please pray for all four of them! Thank you!
Eevie is still at Wesley hospital and will likely be there a few days. Fever of 102.5 and vomiting. She's on antibiotics and we're waiting on blood cultures.
Eevie was taken to Wesley Hospital today as she has petechiae (bleeding into her skin) which is a side effect of her last chemo treatment. Her blood is unable to clot properly and they must give her platelets.
Eevie has started to feel some of the effects of chemo and is somewhat agitated and fussy but not too bad! Here she is working on one of her brilliant cures to leukemia...at least the pic looks like it!
Eevie has been nauseated from her experimental chemo. However, she continues to be happy to be home!!
Eevie continues to be all smiles this week! The family is now back home after five full days of chemo in KC. They have been interviewed by Ronald McDonald house charities and are the featured family for the RM Red Shoe Event on Saturday September 13th, 2014 at 7pm at Arrowhead Stadium in KC! So excited for Eevie and her family!!!
Eevie still hasn't gotten sick from chemo this week...fingers crossed it continues! Tomorrow the family has the Ronald McDonald Red Shoe interview. They will represent RM at the Red Shoe event in KC in September.
Please donate whatever you can give to my precious newborn niece, Eevie Elouise. She was born by emergency c-section November 10, 2013 in Wichita, KS and was flown by Children's Mercy Hospital in KC to be treated for congenital acute lymphoblastic leukemia (ALL). Congenital ALL is an extremely rare condition affecting 1 in 5,000,000 ( Only 4 million babies are born in the U.S. every year). Your support and donations are so appreciated. Brynne and Ryan need all the support they can get as this will be a long uphill battle.