Addison's Feeding Clinic

 
Raised: $2,405.00
Goal: $6,000.00
 
 
 

Created by

Brittany Beane Kerstiens

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Addison is a 3 year old girl who has Pancreatic Colipase Deficiency (Pancreatic Insufficiency) which is a problem with her pancreas in which it doesn't create enough enzymes to break dow... more

 
 
 
 
 
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Updated posted by Brittany Beane Kerstiens 3 months ago

Yesterday was a big day for Addison as we had an appointment at Brenner's Children's Hospital. Addison grew 1/4 of an inch & is now 3 feet tall, she is finally on the growth chart after 4 years. We will not need a follow up with Endocrinology for 1 year! It may only be the 1st percentile but we are beyond excited. Addison also ate dinner last night, never in a million years would I have thought she would eat Chicken corn chowder, But she not only ate one bowl but 2 Praise The Lord!! Addison & Asher will have an E-Feed Evaluation on January 30th with the clinic to see where we will need to start with treatment once we arrive. We are now about 5 weeks away from leaving for New Jersey as we start finalize plans & preparing I ask that you pray for the team of Doctors we are about to meet, the staff, our family & for safe travels.

 
 
 

Updated posted by Brittany Beane Kerstiens 4 months ago

To All Those who have donated our family cannot thank you enough.

 
 
 

Created by Brittany Beane Kerstiens on October 31, 2013

Addison is a 3 year old girl who has Pancreatic Colipase Deficiency (Pancreatic Insufficiency) which is a problem with her pancreas in which it doesn't create enough enzymes to break down fats in food so her body can absorb them, so to get enough nutrition she has to have formula through the tube. She had her NG tube placed in May 2012 (pictured left) & was moved to a G Tube in September 2012 (pictured right). Along with the Colipase issues Addison has aversions to food, where foods will make her throw up & gag. She also has food refusal & behavioral issues. We have done a feeding program through Brenner's Children's Hospital & we've had therapist come into the home. After all that she still doesn't eat much food orally. We were accepted into an Intensive Feeding Day Program in Paterson, NJ at St.Joseph's Children's Hospital. We are raising funds to cover our lodging, food, gas, & medical cost. Brandon will be out of work for 5 weeks & on only one income we will not be able to attend the program without donations. If you are not able to donate we ask that you just pray for Addison & our family. This program has a great success rate & we have hopes of her coming through the program & finally eating like she should so that we can have her feeding tube removed!


Thank you for all your love & support

The Kerstiens
 
 
 
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Recent Donations (30)

$2,405 raised by 30 people in 5 months.

$250.00

Anonymous

1 month ago

 

$20.00

Kandis

1 month ago

 
 

Praying for Addison and your family!

 

$100.00

Megan Henderson

1 month ago

 
 

Praying for Addison and your family.

 

$90.00

Anonymous

2 months ago (Offline Donation)

 
 

$25.00

Michael Borchers

2 months ago

 
 

In all things may God be glorified!

 

$50.00

Roger Davis

2 months ago

 
 

$500.00

Anonymous

3 months ago

 

$50.00

Andrei Pelech

3 months ago

 
 

Andrei and Janie enjy having Addison in Sunday School Class! She is a ray of sunshine!!! We love you Addison!!!

 

$100.00

Arlene Brill

3 months ago

 
 

Rodger and I are praying for your family

 

$50.00

Sandra Davis

3 months ago

 
 

Joe and I will pray for you and your safety as you travel.

 

1-10 of 30 donations

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