***SCOTT UPDATE ***
Sitting around the kitchen table this morning, eating cereal with the kids, and Brayden picks this book up. Says "Oops, I can't read this book... It says a bad word." I guess for Scott this felt like the right time to tell the kids and to tell you all, as well. Yes, the cancer is coming back. Yesterday we received news his tumor markers are up to 93. What we haven't told many people is that they brought us in to start chemo a month ago. Gave us about a 10% chance it would work and expected us to get started right away. Scott said no way, I'm not ready. So, we've done some research and talked to others. We're trying to get in with Dr Feldman in NYC who does molecular profiling and also spoke with me about the possibility of surgery /ablation. He gave us some hope after the other doctors have basically just said there's no cure for Scott at this point. Obviously when I watch the love of my life tell his kids, around a breakfast table, that cancer is coming back I want to fight from every angle possible and will not stand for doctors who try to make us lose hope. If you know me, I'm a realist... So I'm not delusional. But I have no patience for people that just tell you this is the end, but take some more chemo. Brayden immediately went to his room, made a paper airplane, and wrote BEAT CANSER() on it. Then he grabbed his sword and starting fighting cancer. In the words of Stuart Scott "Fight like hell. And when you get too tired to fight, lay down and rest and let somebody else fight for you." This is too hard alone. Too hard to constantly push away the thoughts of our lives without Scott, yet the thoughts don't go away. Feeling like every moment could be the last. The things the brain goes through and the body tries to hide. We're fighting like hell DAMN IT and will continue to do so. Scott is still LIVING. Playing soccer. Being the most amazing father. Loving me, without even trying. Heading up our Relay Team efforts. Being in a cancer survivor fashion show. Telling our story to WSB soon. There are so many positive things coming out of this and we choose to focus on that. This is hard to share, but the Circle is what has kept us going and I know will keep loving us in the midst of hard times. Please never stop fighting like hell for us when we need a rest.
Scott Schoenthal's Circle of Love wishes you all a very healthy and happy New Year. Thank you for all you have done to support Scott and Misty through this journey. Testing through the next several months and hoping he will be declared in remission with no doubts by late Fall! At this moment he is bouncing back so quickly from the huge treatment and transplant in Indiana and living life as a three (or four) time survivor back at home with all of us.
That is a HUGE blessing and each of you helped make the stress a little less as he fought for survival.
Stay tuned for updates as they are needed and pay attention to emails for donor letters.
If you are local to us...we will be holding a Skate for Scott event this SUNDAY 10/19 5:30pm. Great Skate Jefferson. Come join us! Scott has been told his body is in remission...a huge hurdle he has fought hard for. Next round of high dose chemo is THIS FRIDAY and then once complete he will get the final round of stem cells back and recover. Looking at returning home in early November. Keep those prayers coming. If he can stay clear for a year, he will be considered cured.
From Misty (Scott's Wife):
Soo... This past couple of days hasn't exactly been easy. Scott grows more uncomfortable each day. He's been up and down with fevers, he was pretty delusional for a few days, and his heart rate has been responding with some arrhythmia. I was pretty scared yesterday. They have changed his pain meds which has helped him be more lucid. They keep telling us all this is normal and that's why we came here. To be with the very best. And his numbers are dropping... 28.1 was the highest and we are down to 4.7. Dr. Einhorn himself said he pleased. I have to give a huge shout out to my in laws Mike and Marsha Schoenthal for giving us the gift of kid therapy this week. They stayed with Scott while I spent much needed time with the kids. The kids were able to see Scott twice a day and outside of that we went on some adventures. Indy zoo, children's museum, fed ducks on the canal, played tag in the ACSM fitness garden... I hate to say goodbye to them today. I've missed their silly expressions, laughs, and hugs. This is the hardest thing we have ever had to do... But we know one thing, we are in it together to beat the shit out of this cancer. Thankfully Scott can still keep his focus on the reason we're here because I'm sure I would be lost now without him. I'm also thankful for some other amazing things that happened this week. A sweet card from some awesome girls Mandi Binkley Sause Bryna Wasmus Tiffany Helms Hawkins. Love you guys. Chris' company named this month Scott Schoenthal month for incoming mortgages. Countless calls and text messages each day to keep us from losing it. Me realizing that the people that came into my life the day I started working as a personal trainer are the most amazing, generous, uplifting, supportive clients you could ever have... I miss you all terribly. I'm so lucky to know all of you and be a part of your lives. So. 2 1/2 weeks down. The plan is to start chemo again on October 9th. Right now we are just keeping fingers crossed that Scott can get out of the hospital in a few days so he can have a breather before that starts. He's being unbelievably strong... And he's being tested like never before. But he doesn't quit.
Beginning September 15th, Scott and Misty will be in Indiana away from the kids for weeks as Scott gets his last try at showing this freaking cancer whose boss. While we have been blessed in the past 11 months with support, at this point I ask that you pray for both of them. This is going to be a true mental challenge uprooting to a new city for the stem cell replacement / high dose chemo treatment and leaving the two kiddos here with all of us. That will weigh heavy when you throw the medical side of this in. But most of all, THIS HAS TO WORK. There is no if anymore, THIS HAS TO WORK. 34 years old. Two kids. BOTH unemployed. Tell me that isn't scary. If you feel led, we still operate as a charity to assist them with life's expenses and medical fees that they will face. Whatever you feel led to do to help, I say thank you. From the bottom of my heart.
As of today, the cancer is back for Scott. While we are still in diagnosis and treatment mode, there will be the need for fundraising again so this site will remain active to spread the word. We are still using funds previously raised to pay off the treatments and bills from 2013. And now we are looking at even costlier treatments that the insurance will likely not cover. Thank you for continuing to support Team Scott.
We as a group supporting Scott and Misty were able to raise $98,000 in 3.5 months thanks to the generosity of all of you on GoFundMe plus multiple fundraisers! Thank you for that and keep your eyes open on your email for your donor letters. Have a blessed day!
Thank you so much to all who have helped Scott and Misty! He has been told for now he is showing NO signs of ACTIVE cancer! He is able to breathe for a month and they will run some tests to make sure it is staying inactive! This is huge news and a great way to start 2014! Thank you for all you have done to help us. Please make sure we have your mailing address for donor letters!!!!!!!!!!!!
The magic number is 42. If we can get 42 people to give just $30 today to help with the medical costs, we will meet this goal that is ALMOST met. We got this...One dinner out becomes a stay at home evening and it covers this...we can do this. Spread the word.
All I need is 140 people! That is all. 140 people to donate $20 today and we have met our benchmark of $55,000...we can do this. That is just one meal at home for two instead of going out. How easy! Just a boring hump day for most could bring $2,800 in fundraising to Scott...come on Team, spread the word!!!!!!!!!!!!!
We are getting so close to our next goal but we aren't there yet! Spread the word and thank you for all you are doing. Scott is home for now trying to get some energy back and waiting for tests next week. If you can share the site please do, we need all the help we can get. Thank you.
We are now a 501c3 non profit! You all have gone so far beyond our expectations. We will continue to pray and grow as long as it is needed. Thank you for all you have done! Goal has been raised to $30,000!
Imagine being 33 years old and being told you have cancer, again, for the third time in your young life. Except now, at this moment you have a wife and two children under 5 to support. You have a brand new job you've longed for, but now your reality has drastically changed.
Scott Schoenthal is my brother-in-law and he is a survivor, a fighter. But to do that he needs us to help keep the stress of life down as much as possible. Please join us as we attempt to offset medical expenses and daily life home expenses while he is out of work fighting this. Thank you
Campaign Not Ready
There's an issue with this Campaign Organizer's account.
Our team has contacted them with the solution, it's a simple fix!
Please ask them to sign in to GoFundMe and check their account.