I wanted to thank everyone for all of your generous donations and support. I wanted to thank also for all your donations at the National Cuban Sandwich Festival in Ybor, which also served as a fundraiser for Emberlyn.
Please continue donations as times are tough. My sons family still only has one vehicle and is having to coordinate things between Emberlyn's many appointments and needs.
But on a lighter note, we have some AMAZING news. Emberlyn has been doing incredible, recently we found that the doctor has deemed her fit to come off the Ventilator during and the day! She will be going into the hospital for a few days for that.
This is truly a blessing, although she still faces many challenges Emberlyn is making waves of progress. She still has a very long road to being in the clear and her prognosis is still bleak but it is becoming brighter!
I wanted to also send special thanks to Mr. Armand Assante who held an event for Emberlyn unfortunately he could not attend but he was gracious enough to donate $1500 and take time out of his hectic life to send us a special video. I wanted to thank him for his kind words and his generosity. See the video from Mr. Assante.
Thank you for all the support thus far, please continue to donate to help our Granddaughter please do not forget the Cuban Sandwich Festival/Fundraiser for her on March 22/23rd in Ybor's Centennial park! Please come enjoy the food and support this cause!
Nearly three years ago our families lives were forever changed by the birth of our youngest grand daughter Emberlyn. On 9/11/11 Emberlyn was born with Congenital diaphragmatic hernia (No diaphragm), one partially working lung, failure to thrive, trisomy x, chromosome abnormalities, chronic repository failure and severe pulmonary hypertension these conditions make a common illness like the cold for us into a life threatening illness for her. For more than half of her life Emberlyn has been in out and of the hospital, she's underwent more than 15 surgeries, she has survived many brushes with death and always fight her way back; However last March Emberlyn became critically ill and had to undergo an emergency tracheostomy and became totally ventilator/life support dependent to live, this situation was meant to prolong her life as her condition is terminal and based on Emberlyns past the doctors are skeptical whether or not she will survive this cold and flu season.
My son a (Navy reservist) was activated last year and sent to Afghanistan, his tour however was cut short by Emberlyn's sickness last spring. Before my sons deployment his family lived in Florida traveling 4 1/2 hours from their home to the hospital numerous times a week, while taking care of their other children this as you can imagine took a terrible financial toll on his family. Last year my son and his family decided for the sake of his family and Emberlyn it would be benefical to be closer to a hospital that had the capability of taking care of Emberlyn and was closer to home. So they chose Children's Healthcare of Atlanta. Where they currently live.
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