Over a year since first diagnosis, two bouts of beating meningoencephalitis and multiple hospital stays later.... Elianna is still battling neurological trauma and many lasting affects of the illness. The ongoing after care continues to be a financial burden. Prescription co pays are huge, not to mention all the other incidentals. I'm going to close the account soon and wanted to give everyone one last opportunity to help if you can. Thank you!
Well it has been awhile since this has been updated. Elianna has been home for a little over a month now and loves being home! Elianna has intensive physical therapy and occupational therapy, despite being so hard on her she is so strong and amazing and pushes through each and every session with a smile. Despite being home Elianna suffers from many long lasting physical and more severe neurological effects of the horrible disease that threatened her life not long ago. Miranda, Elianna's mom continues to stay by her side and wont return to work until her FMLA is up December 29th. Thank you to all that have already donated and remember no amount is too small, this family needs all the love and support they can get.
The doctors and Miranda have said FRIDAY they may be packing for home!!!! So now starts the trips to specialists, which means commuting to Portland regularl & Miranda still unable to work. Let's keep this going until she can!
The end is in sight! The end of the hospital stay that is. Elianna is improving each day :-) Getting stronger and stronger. Preparing to return home in a couple of weeks. Miranda is still uncertain when she will be returning to work. Once they do get released, they will have transition time at home. Let's keep this going to see that her daily needs are met.
Thank you EVERYONE!!
Hello everyone! I'm spending the day with Miranda and Elianna today. Well, Miranda had to go get some dental repairs, so she is away right now. When I got here Elianna was sleeping after having a bit of her omelette and oatmeal!
THINGS ARE ROUNDING THE CORNER!!!! Her days and nights are getting better and better. Elianna still experiences pain and discomfort often, however she is smiling, a little bit active and remembering her manners :-) She was a bit grumpy and mouthy for a few days. That is not like her at all, but completely understandable with being in bed constantly and not seeing friends and family or even being able to visit while they are there.
HUGE THANK YOU'S to everyone who sent their love, support and prayers. Last week was very scary, we are so very thankful that this week we have good things to report!
We should know in about a week how much longer they expect to keep her. Until they go home, let's keep sharing this page so Miranda doesn't have to worry about missing work!
SINCERELY WE THANK EVERY ONE
September 29- Good evening Elianna's friends! Today has been our best day yet! We still have a long road to recovery but Elianna was able to sit up in bed for well over 2 hours (with the help from her pain button) to do nails and play with clay with her cousins Lillian and Gracie while mommy visited with Auntie Angie, Keli and Grandma Veronica. She only had one episode of convulsion earlier and with the exception of the great visit she spent most the morning and the rest of the evening napping. I really hope that she doesn't have a rough night from her activity today, but I'm optimistic that we are finally going to have more and more good moments and less and less bad moments. They started VERY slowly (5ml per hour) dripping nutrients in her stomach via her NG tube in hopes that in a couple days we can start backing off of her TPN's (IV nutrition supplements she gets in her PICC line). Yesterday she ate a few saltines and about 3oz of jello!!! That is Huge and AWESOME! She even kept it down, her vomiting and dry heaving has literally been cut in half which is fantastic because she was vomiting or retching every single time she sat up! I am so excited to watch my daughter get a bit better each day! I am realistic in knowing that my daughter isn't just going to jump out of bed tomorrow and be healthy but I know that she is a beautifully spirited fighter and will give recovery all she has got and we will all be there to hold her up!!! Baby steps.... "” at Doernbecher's Childrens Hospital 9th Floor Pediatrics. (Written By Elianna's Mom Miranda)
Cuddling cousin Elianna
I brought the kids today, however she slept most of the time and was upset when they left, blaming herself for not being able to visit with them. We got her calmed down and went for a walk to the sky bridge. She wasn't impressed. She is so emotionally ready to play with her sisters and her cousins, just not physically. It's hard for her to understand it is ok to sleep, she needs to get better. As Mandy and I visit and catch up on Facebook, she is playing with her clay and watching Glee. :-) Wishing for a good night.
Thank you all for your continued support and encouraging words.
Many of Elianna's supporters right here :-) Waiting to see her smile again!
Some of her family awaiting SMILES!
This outpouring of kindness is incredible! Lets keep it going! Please, if you haven't already, share this page on your Facebook wall so we can get as much help as possible for Elianna's family! Thank you all for your support and donation!!!
Nights seem to be getting easier, but make for a rough morning! Baby steps :-) whatever it takes to get there. We will!
I can't wait to see them smiling again!
Every day is a new day. Last night was not as rough, but this morning isn't smooth. If Miranda can pay her premium for insurance, while not working, she is able to maintain it. That's my goal here, to help her take care of the finances she normally maintains with her pay.
I spend the afternoon with Elianna and Miranda yesterday. It was a nice visit. Poor Elianna just wants to go back to school :-) It will be wonderful when life can resume to normal. On my way down, I stopped at Miranda's work to get a packet for a Leave of Absence and found out that she has only one week of pay left and will not have enough working hours to maintain her health care.
The $500 goal was minimal and realistic, however friends, being out of work for 3 weeks, she will loose more income than that. Let's do what we can to help the family.
Thank you friends.
September 14th 2013 Elianna was diagnosed with Viral meningitis after being misdiagnosed with strep throat and then a typical virus, she was seen in 2 different emergency rooms before her third visit where her symptoms were finally taken seriously and she was immediately tested for meningitis (via spinal tap). Elianna was hospitalized and after about 3 days it was determined that her meningitis was viral and not bacterial however her spinal meningitis had turned into Meningo encephalitis and pancreatitis. Eliannas health has gradually gotten worse despite being on anti viral (which she has to continue her iv anti viral for 21 days) at day 4 of hospitalization Elianna had to go under sedation to place a PICC line (central line) and an NG tube. Day 7 Eliannas health has continued to deteriorate and she is now having convulsions and delusions. She is on 14 different types of IV meds including lipids, nutrients, 3 different types of anti nauseas, a morphine pain pump, anti viral and many more. Eliannas mom has stayed by her side day and night and has and will continue to miss work until her daughter is well. She is at risk of losing her health insurance from not being at work. The family has 2 younger daughters and Eliannas dad is traveling an hour each way several times a week to see their daughter.