Arawyn's Funds

 
Raised: $125.00
Goal: $10,000.00
 
 
 

Created by

Cheryl Samide

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Arawyn was born on March 25th, 2013 at 10 weeks early, she has Spina Bifida, Hydrocephalus, and Arnold Chiari Malformation. The family needs help financially right now because Arawyn doe... more

 
 
 
 
 
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Created by Cheryl Samide on June 19, 2013

Arawyn was born on March 25th, 2013 at 10 weeks early, she has Spina Bifida, Hydrocephalus, and Arnold Chiari Malformation. The family needs help financially right now because Arawyn does have 2 older brothers, Aries and Phoenix, and this situation has been a huge blow to the family's finances. Thank you for anything you can help with.



 
 
 
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Arawyn had a doctors appointment today and it went great, I'm finally starting to be able to rest easy for now, but I am still so worried that her shunt will fail sooner than later. I doubt myself sometimes when it comes to me being able to know when there is something wrong. I have faith though that I will just know.

posted by Cheryl Samide 9 months ago

Well the car is up and Running again, thank God, and it has recovered from the fire. Arawyn is doing good, but seems to be getting more and more sleepy, I really hope this isn't a sign of shunt failure, not yet at least.

posted by Cheryl Samide 9 months ago

Arawyn has had 4 surgeries in the first 2 months of her life. Her first surgery was to close up her spina bifida lesion on her back, which she was only 18 hours old. Her second was to put a reservoir into her head to help drain the fluid of off her brain. The third surgery was to revise her reservoir. The forth surgery was to put in a complete VP shunt from her head to abdomen. Her feet and part of her legs are paralyzed, and her ankle is on backwards. Arawyn also can't completely drain her bladder because it is mis-shaped, and she has no bladder control. She also has no colon or sphincter muscle, which gives her no bowel control. Also she only has one kidney. Arawyn though despite everything that is wrong with her is a very happy and sweet baby, she will be the light at the end of anyone's tunnel.

posted by Cheryl Samide 9 months ago

On Tuesday Arawyn's doctor told us her eyes are uneven in her eye socket, whatever that means, but now we have to take her to an Optimologist next month, I am just hoping this is not something else to add to her plate.

posted by Cheryl Samide 9 months ago

My son to has spina bifida hydrocephalus and a severe chiari II malformation ... Good luck with your baby angel, they sure are blessings

posted by Ashlee Toledo 9 months ago

Well the family car started on fire last night, another financial blow, but at least the children weren't in it. Arawyn is doing good today, what a little fighter :)

posted by Cheryl Samide 10 months ago

1 - 6 of 6 Comments
 

Recent Donations (3)

$125 raised by 3 people in 10 months.

$110.00

TutuGoddess Michelle

9 months ago

 
 

we ended up raising $108 for u! just made it even ;)

 

$10.00

TutuGoddess Michelle

9 months ago

 
 

Sentrell Heluvsus from Sisterly Crafts Bowitque is kindly donating $10 for Arawyn!!!

 

$5.00

TuTu Goddess

9 months ago

 
 

Doing what I can for you Arawyn!

 

1-3 of 3 donations

 
 
 

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