Noah has continued to astound us with his progress and now he has his 2nd prosthetic and custom shoes he has come on massively with his walking. He's now spending the majority of his days wearing his leg and walks pretty much unaided throughout. Training is now underway for our next fundraiser for Noah, a cycle from John o'Groates to Lands End in September this year. Please visit www.facebook.com/Jogle4Noah and like and share our page.
Our apologies for not updating for a while but we have all been busy especially Noah. Over the last few months he has come on leaps and bounds with walking initially taking steps with a walker but amazingly in the last few days he has started taking unaided steps on his own and he is living his new found skill. Hopefully in a few weeks he will have his upgraded prosthetic and his first shoes, watch this space. We have continued to find raise which included running the Cardiff half marathon. We have recently announced our next event which is a mammoth group cycle ride from John O'Groats to Lands End in September 2014, taking 10 days to cycle the near 1000 mile route. Please help support us and visit the event page on Facebook, just search for 'Jogle4Noah', like and share. xxx
Only 6 days to go until the Cardiff Half Marathon until myself, brother Nick, his fiancee Hannah and friends Jase and Matt will be running it raising funds for Noah. Thank you all for your continued donations and please feel free to sponsor us by donating on here for what for some of us is a huge undertaking. xxx
In4 weeks on October 6th, I will be completing the Cardiff Half Marathon. I'm mainly doing it for health and challenge reasons, however if anyone would like to sponsor me, as I've had a few requests, then please feel free. My brother Nick and his partner Hannah are also doing it, so if you fancy sponsoring any of us, then please make a donation, tell us who you're sponsoring and note it's for the half marathon. All proceeds will be going directly into this fund for Noah's future. xxx
A huge thank you the Daily Mail for running a story on Noah, hopefully it will help raise awareness of the terrible virus that struck indiscriminately on Noah and help save a few more people in the future.
Huge thanks to all who participated in various ways for the Cavaliers skittles marathon held on Saturday to raise funds for Noah. We managed to reach our target of 5000 pins in 12 hours with only 9 minutes to spare. We have raised an early estimated amount of about 2900 pounds. ðŸ‘ðŸ‘ðŸ‘
Thank you again to Rob Parry for getting signed Sam Warburton's shorts from the recent Lions tour thrashing and auctioning them for Noah's fund for 500 quid. I would also like to remind those who are interested that on Saturday 3rd August at the Tynewydd in Barry, my skittles team, the mighty Cavaliers are undertaking a 12 hour skittles marathon. In that time we hope to hit 5000 pins which will be a tough ask. We would encourage people to come up and see us, lend some support, have a drink or two of course, buy some raffle tickets, we have loads of great prizes, place some bids on our three auction items and if you are so inclined, get a team of 6 or 12 people together to challenge us throughout the day for a small fee which will be halved if you beat us. We hope to see you all there. xxx
£10,000 barrier blasted through courtesy of Phil Newton and Pontypridd GC, their 2nd instalment added, more to follow. Hopefully the Cavaliers skittle marathon on Saturday 3rd August at the Tynewydd Inn in Barry will bring yet more. xxx
Noah has finally had his prosthetic appointment and all the staff are very happy with him and say he's ready to walk so in a few weeks time once it's fitted and made he'll have his first prosthetic leg to start to learn to walk and fall over.
A huge thank you to everyone who helped make Noah's charity golf day a success. Pontypridd GC, Rebekah the sec, John the pro and the many others who put in some really hard work for us. All those who donated, played, bought raffle, the hog roasters, the band Johnny Trashed and Phil Newton, each and everyone of you were amazing. We raised somewhere in the region of £4000 and I've just added the first payment, but there is more to follow and I should know by then the final amount. So many people had a great day and asked for a repeat and Phil and I have agreed to do another one for Noah, but first we will have a break.
Well, Noah keeps getting stronger, quicker and more adventurous as the hours pass by and yesterday we celebrated his 1st birthday and we are so glad he made it. We would also like to thank Neil for shaving his beard raising about 700 for Noah, and Rob who auctioned off some Lions signed kit for another 500 or so. Looking forward now to Friday for Noah's charity golf day at Pontypridd Golf Club, should be another cracker. Tickets for the night and golf spaces in the day still available so get in touch if you would like to come.
We just wanted to say our thanks for everyone's continued support. Noah keeps amazing us with his recovery and although there is only two finger tips left to fall away and heal, his stump has completely healed over now and he's not having a dressing, just the other sock in not quite the manner it should be used for. He's crawling quicker and easier and is now sitting a lot and trying to stand so hopefully soon he'll gets on the road to having a prosthetic ready for standing and walking. There are still fundraising events to come, including his charity golf day at Ponty GC on Fri 12th July, spaces still available for the golf in the day, party in the night and raffle tickets. There's also the Cavaliers skittles marathon at the Tunewydd pub on Saturday 3rd August and we are still taking bookings for 6 or 12 man teams to challenge us throughout the day as we aim to hit 5000 pins in 12 hours. And finally a colleague Neil Hodgkiss is shaving his rather shabby and extensive beard to raise money too. Thanks all xxx
Just wanted to say a huge thankyou for everyone's continued support wether it be emotional, fundraising, donating, auctioning or giving up time and effort, we are very thankfull and suprised how quickly his fund has grown. We thought you would also like to know that his stump has completely healed over and we now move forward to the phase of getting him set up with a prosthetic and up and walking whenever he's ready. Still nothing bothers him except teething, he's our little star. xxx
Amazing £1700 raised today by Mel and Mike Aldridge who tirelessly auctioned, raffled and held a kids party for Noah's fund with the help of her their family, friends colleagues and Flippin Funtastic Mascots, thank you so much guys. xxx
Nicki and I would really like to thank her work colleagues for raising an amazing amount of money for Noah doing various fundraising activities over the last few months we are eternally grateful. Also to Shannon Shears baking and selling cakes at school, mmm. Please continue to support us as we continue our journey to help Noah recover as is Mel Aldridge who has organised a sold out kids party this Sunday for him along with numerous auctions of generous gifts from some very kind people. We would also like to thank Phil Newton who is organising a golf charity day for Noah to be held at Pontypridd Golf Club on Friday 12th July where there will also be an evening party for golfers and anyone else interested. There's still spaces available for the golf and plenty for the evening party at £15 per ticket, please get in touch if you want further details, it will be a cracking nights with music, live Johnny Cash tribute act, auctions, raffles and two hog roasts for food. With regards to Noah, he continues to astound us and the medical staff who still care for him. His leg stump has pretty much healed over and we begin to look forward to the next stage of getting him some prosthetics ready for when he wants to walk, but at present he is more than happy to be crawling around at speed as though nothing has happened to the annoyance of his older brother Zak and our dog, Maisey. His remaining toes and fingers continue to heal but we are now just waiting for scabs to fall away to see what he has left but again it hasn't bothered him and he seems to have plenty enough to be happily grabbing at anything and everything. xxxx
A massive thank you from Noah and family to Neil Gaskin and Mr&Mrs Wong who together with the quiz night and boxing DVD's have helped raise £375 towards Noah's fund. Thanks to everyone who turned up and contributed, we hope you had a good as night as Nicki and I. Much love. xxxx
We haven't updated for a while but we thought everyone would like to know that Noah is really doing great since being home. He's really started to act as though nothing has happened and the rate in which he's crawling, grabbing things and shouting just shows that he's not letting it effect him in anyway. We as a family are so pleased at the amount of people working really hard to raise money for him and the next event on his behalf is a quiz/party night at the Wenvoe Arms this Wednesday from 7pm. For anyone wishing to come and give support whilst enjoying an evening out, entry costs £3, each quiz team a further £5 with a maximum of 6 players and there will be raffle with prizes and a 20% discount on all drinks. The event is open to all and we hope we may see some of you there. xxx
Noah's had a great few days. He keeps getting better everyday and is now back to his very happy, smiley, bouncy self. He's found his voice and is just loving watching his brother Zak play around and with him. He's lost the tip on the toe next to his little one, but he still has a stump there much like the little one which is much better than nothing. His right thumb lost a tiny corner but retained a nail but it looks like that will grow back completely as will his left thumb that's just shed it's black scab leaving a complete thumb with nail which is great. It is a waiting game at the moment as it looks like he'll lose the tips of his middle and ring right fingers and also the tips of his remaining two toes but his big toe looks good and maybe only lose a nail for the time being. Daddy has changed his dressing today for the first time so we don't have to go back to the hospital each day over the weekend to have them changed, he passed with flying colours and now wants a nurses outfit? Dunno why? We continue to work hard with him and he's responding like nothing has happened or will stop him doing what he wants. We would like to thank those who keep working to raise money for his funds at various events and those who keep finding wonderful raffle and auction prizes for the cause. xxxx
It's been a few days since the last update as the WHOLE family has been busy settling in back home. Although Noah lost the tip of his right index finger, he did lose also the scab on the thumb which looks like it will grow the nail back and be fine. This however hasn't stopped him almost immediately getting back to his normal self and he's shown us quickly that any disadvantage this has caused him hasn't affected the way he's carried on rolling around the floor after his brother, and his brother's toys. Thank you so much for your continued donation and a big thank you to Shannon Shears who kindly made a tonne of cakes with her friend Olivia and sold them in school, raising £65 for Noah. xxx
NOAH'S HOME - This morning after 5 very long weeks that we'll never forget, Noah was allowed home. He's still having his dressing changed every day by community nurses and there are plenty of planned appointments with various people to keep us busy, but we are happy to again be a complete family in our own home and beds. Noah continues to get better each day and already this afternoon he's been enjoying a crawl on the floor with brother Zak. We will however have to wait and see how the tips of the remaining toes and fingers heal and he will probably lose a few tips before healing completely. We would like to thank from the bottom of our hearts the medical staff who saved his life and brought him back to health enough to get him home today, we can never repay them. We would also like to thank those who continue to donate to his fund which is almost at an amazing £2000. Please also support our friends who are doing various events out of the goodness of their hearts to keep the funds coming for Noah. There is a quiz/raffle/booze night arranged on May 15th at the Wenvoe Castle pub. There is a kids disco/face paint event in Newport on 2nd June, a golf charity day 12th July at Pontypridd GC and on August 3rd my skittles team the Cavaliers will be doing a sponsored skittle marathon of 12 hours and a 5000 pin target at the Tynewydd pub in Barry. There's also various other people raising funds in their own way for Noah, including his uncle Nick and Aunty Hannah who are doing some running events. I will also be taking the plunge with colleagues and entering this years Cardiff half marathon and in a few weeks I will be having my legs and buttocks waxed and tanned for my skittles tour where I will be getting dressed up in lederhosen gear like Bruno from the film for our annual fancy dress theme. We have a very busy schedule ahead but it will all be in the hope to get Noah the best possible childhood and future. We thank you for your continued support, offers of help and messages of hope and luck, we are VERY grateful. xxxxxx
Noah's had a mixed day, he just keeps getting better and finally had his feed tube out, just one more to go then he's tube free. During this morning however his worst effected toe, next to the little one, the scab fell off leaving a stump half toe which was expected despite Mummy initially thinking the little black thing in his bed was a woodlouse? MRSA is still present in his stump and mouth but thankfully it doesn't need treating and is not affecting him in any way. We may also be home at the end of the week which will be a huge relief and boost towards recovery. A friend is organising a kids party/disco in Newport 2nd June to raise funds, details of which I have shared on Facebook. xxx
Noah's been great today, the surgeons are very happy with his stump and how it's healing and they told us they would look at it again towards the end of the week with a view to giving him the nod to go home. So long as he doesn't need antibiotics for the MRSA in his line and we are hopefully getting the feed tube out tomorrow, so things are looking up and fingers crossed we can get him home for his road to recovery and walking. xxx
Noah's had a great day and is really got back to his usual self despite teething. Tomorrow we are hoping to get his feed tube out if his nose now he's feeding normally again and we will hear how the MRSA in his stump is doing and we hope it won't need treating through a line which would mean getting his last tube out if him. His stump is healing lovely and although there's a long way to go we are praying for a break and maybe discussion again of a going home plan. Today he made headlines, front page of Wales on Sunday and tomorrow he'll be making another appearance in the Echo. I find myself quickly turning into agent/PA/cater/Daddy. But that's fine. xxxxx
Noah's Fundraising Golf Day is almost completely arranged. It will be held at Pontypridd Golf Club on Friday 12th July. There will also be an evening do with hog roast, live music, raffle, auction, presentation and booze. I have 25 tee slots available for fourballs. The competition will be team based and stableford rules with some great prizes to be won. Please contact me to book your fourball place, payment will need to be completed through a contact at the club before the event where tee slots will be given. I will add those interested to the list and pass on details of who to contact and how to pay when known, let me know quick before they run out. Competition briefing will be at 09:00 where there will be free tea/coffee and bacon roll provided. Attendance at the evening do will be free to players however there is room for those not playing to attend at £15 per person. Again places will need to be booked through me and paid upfront to the club contact. Don't waste time, get in touch, book your team or evening ticket ASAP for what us going to be a great day and night all in the benefit of Noah. xxx
Thank you everyone for the continued donations for Noah. Nicki and I are deeply touched. Please stay tuned for some details of fundraising events coming soon which we hope you can support for Noah and the very generous organisers. There will be some great raffle and auction prizes available and don't forget the Wales on Sunday this week and SOuth Wales Echo on Monday for his article. xxx
Today Noah's been for a stroll in the pushchair, on the playmat with a dance therapist and in the sensory suite with two physios all was looking promising and nurses were contemplating a going home plan as he's back on his food and were waiting for consultation with the surgeons about his stump to see if they were happy to release him but then his dressing was changed this afternoon and although it looked better and there was signs of more healing, some of his stitches had split on one side and we'll have to wait till tomorrow now to see if he'll need stitching again in an op or if they'll let that heal itself too. Two steps forward, one back, but we'll get there. Noah's golf charity day is gathering pace too with confirmation of a hog roast at the evening do, mmmmm. I will publish full details when we know on that one. xxxx
Noah's had another fab day, eating jar food and buttons aswell as rolling around on play mat and ward tour. He's having a night with Nanny as ward monitor and Mummy and Daddy are going home for our first night break, amazingly it coincides with two for Tuesday pizza. Massive thank you to Phil Newton who's arranged a golf charity day for Noah, further details to be confirmed and updated on FB for interested golfers. xxxx
Noah's had a fantastic day, bouncing around, chatting, crawling, and playing with big bro. He's off the morphine completely just on paracetamol now on he hasn't fed from the tube for over a day and is loving his yoghurts. He's got a big day tomorrow, interview with Echo reporter and photographer for an article to help raise awareness for meningitis. xxxx
Noah's having a good spell. He's off his morphine again after the op and is only on a little bit when he needs it which doesn't seem to often over last two days as he's back to his bouncing bubbly self, nattering away and trying to get everywhere he shouldn't. He's back on his bottles and having yoghurts and pro-biotic drinks that apparently have good bacteria in them, nobody told me? Thank you all again for the continued donations to his fund, £1270 so far which amazes us. xxxxx
Today marks three weeks that Noah had been in hospital and it seems a lot longer. However today he has been a lot less grizzly than the past few days and there's been no temp spikes today so far and he may be finally shaking off the operation effects. He's had a busy visitor schedule today and had even managed one while big boy strawberry yoghurt. He's now settling down with Daddy in front of the telly to watch the Masters golf while Mummy had a well deserved break. Thank you all again for your continued support and donation, much love to you all. xxxxx
Well Noah's had a tough day battling the after effects of his operation yesterday and a few temperature spikes today but he seems to settling a little now and is happy playing with Zak, teaching them sharing. xxx
Noah's just come back from theatre and his operation was a success. He has a small area the size of a penny at the end that wasn't closed but that will heal itself. The doctors have cleaned up some of the scabs on his fingers and toes to where we can now see really healthy skin. He's now having a well deserved morphine assisted snooze. Thanks for your continued donations they are greatly appreciated, £1090 so far which is massive and will be put to the best use helping our boy walk and smile again. xxxx
Noah's had another good day and he's really been almost his old bright wriggly self. Mummy having a well earned break tonight and Noah is now snoozing for Daddy ready for his op tomorrow to close his stump as much as possible, fingers crossed, xxxx
Nicki and I would like to thank from the bottom of our hearts to everyone who have very generously donated to Noah's fund, it has truly shocked and touched us the level of support you have shown and we are deeply grateful. Noah today has finally cleared himself of all lines apart from his feed tube and has again today been a lively boy despite his demonstrations at nurses approaching his cot. He is getting better all the time and we are now building towards Thursday when he is due his operation to close his stump. Thank you all xxx.
In March 2013, our beautiful 8 month old son Noah contracted meningococcal septicaemia (meningitis) and came very close to losing his life. In the days that followed whilst trying to battle the virus his body lost circulation to his extremities causing some of the tissue to die. As a result, his left leg was amputated below the knee. Thankfully he beat the virus and we now move forward to his road to recovery, walking and a fulfilling life. As parents we want to provide the best we can for Noah, and as a growing child, he will require treatment and prosthetic legs at the same regularity another child would need new shoes. We have been deeply warmed by well wishes and offers of help by our wonderful circle of friends and family, many of whom wanted to make a donation or raise funds for Noah. We know that providing the prosthetics he will need to lead a normal life may become expensive as will the cost of treatment. We have set up this fundraising page to establish a fund for Noah so that whenever he may need the finances for his prosthetics there will be some assistance from this fund. If you are visiting this page then you may be thinking of making a donation or raising funds for Noah and for that we thank you. We would like to stress that any funds will be used for Noah alone and should we find excess funds in the future, we would like to make donations to the appeal that provides assistance to the wards that have treated him, The Noah's Ark Children's Hospital. We ask you only give what you firstly want to, and secondly, can afford. We have no specific goal or amount, we merely want to have a fund to help our beautiful, brave little boy. Thank You, xxx.
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