Cooper's Transplant Journey
Donation protected
Hi my name is nathan pentecost and i am the panthers wheelchair rugby league captain i am also the penrith men of league welfare officer.
On the 9th and 10th of june I will be pushing my wheelchair for 100km's around the sydney international regatta centre to help raise money for Coopers Kidney operation and on going medical costs. Please read Coopers story below and donate on this page thanks.
Cooper (8), was diagnosed with Congenital Posterior Urethral Valves when he was still in his Mum's womb, this then resulted in Chronic Kidney Disease Stage 3. His parents were told to expect the worst when he was born as the doctors were unsure of what was going to happen. Once Cooper was born he was transferred to Sydney Children's Hospital were at 24 hours old he underwent Laser Surgery on the Urethral Valves to help release his urine.
To monitor Cooper's health he attends Westmead's Children's Hospital on a regular basis were he has Blood Tests, Ultra Sounds, PET Scans. Cooper suffers a lot of Urine Infections. In January 2015 he had another surgery Metronoffenoff which was unsuccessful. Cooper now needs to wear Calostrol Bags 24/7 to catch the Urine that leaks from the hole near his belly button. In September 2016, 20 months of having to wear a Calostrol bag Cooper’s belly was getting infected from the bag and was causing it to bleed and a lot of discomfit, the after another surgery the doctors were able to tighten the hole near his belly button. Now a bag is not required and a catheter is inserted every 2 hours to drain the urine. Cooper now requires a Kidney transplant; he is lucky his Dad is a match and will be donating his Kidney to Cooper. (Kidney transplants last for average 10 –12 years and in rare cases a 2nd transplant can be received.)
Cooper has a few health issues from this Nocturnal and Diurnal Enuresis,Secondary Hyperparathyroidism of Renal Origin, Metabolic Acidosis, Bilateral Hydronephrosis, Trabeculated Bladder and Iron Deficiency Anaemia.
Despite all this Cooper does not let this bother him. He is a very happy go lucky kid with a one of a kind sense of humour. Everyone that meets this kid loves him. Coopers attitude is positive and fun loving. Cooper loves hanging out with his cousins and their friend ship is indescribable.
All funds raised will help with the ongoing costs of medications, doctors’ appointments, Bags and anything else that might pop up along the way that will help Cooper.
Thank you for taking the time to read Cooper's story. Every dollar counts so please help me make a difference with a secure online donation, big or small – just click on the ‘Donate’ button.
On the 9th and 10th of june I will be pushing my wheelchair for 100km's around the sydney international regatta centre to help raise money for Coopers Kidney operation and on going medical costs. Please read Coopers story below and donate on this page thanks.
Cooper (8), was diagnosed with Congenital Posterior Urethral Valves when he was still in his Mum's womb, this then resulted in Chronic Kidney Disease Stage 3. His parents were told to expect the worst when he was born as the doctors were unsure of what was going to happen. Once Cooper was born he was transferred to Sydney Children's Hospital were at 24 hours old he underwent Laser Surgery on the Urethral Valves to help release his urine.
To monitor Cooper's health he attends Westmead's Children's Hospital on a regular basis were he has Blood Tests, Ultra Sounds, PET Scans. Cooper suffers a lot of Urine Infections. In January 2015 he had another surgery Metronoffenoff which was unsuccessful. Cooper now needs to wear Calostrol Bags 24/7 to catch the Urine that leaks from the hole near his belly button. In September 2016, 20 months of having to wear a Calostrol bag Cooper’s belly was getting infected from the bag and was causing it to bleed and a lot of discomfit, the after another surgery the doctors were able to tighten the hole near his belly button. Now a bag is not required and a catheter is inserted every 2 hours to drain the urine. Cooper now requires a Kidney transplant; he is lucky his Dad is a match and will be donating his Kidney to Cooper. (Kidney transplants last for average 10 –12 years and in rare cases a 2nd transplant can be received.)
Cooper has a few health issues from this Nocturnal and Diurnal Enuresis,Secondary Hyperparathyroidism of Renal Origin, Metabolic Acidosis, Bilateral Hydronephrosis, Trabeculated Bladder and Iron Deficiency Anaemia.
Despite all this Cooper does not let this bother him. He is a very happy go lucky kid with a one of a kind sense of humour. Everyone that meets this kid loves him. Coopers attitude is positive and fun loving. Cooper loves hanging out with his cousins and their friend ship is indescribable.
All funds raised will help with the ongoing costs of medications, doctors’ appointments, Bags and anything else that might pop up along the way that will help Cooper.
Thank you for taking the time to read Cooper's story. Every dollar counts so please help me make a difference with a secure online donation, big or small – just click on the ‘Donate’ button.
Organizer
Bec Davidson
Organizer
Emu Plains NSW
