Updated posted by Michael Dempsey 2 months ago
Hello everyone, Finn and Claire are...
Hello everyone, Finn and Claire are back from Canada and we thought it would be a good idea to give you all an update.
It was a tough 5 weeks for Finn with lots of hard work, plenty of snow and cold temperatures but well worth it. They did lots of work with Finn in a sitting position getting him to push up on his hands and on his hands and knees, he really built up his stomach and back muscles and although its slow its progress which is amazing to see at last. Since we have been home he has got the confidence to roll and crawl around everywhere and we find him in the most bizarre places usually hiding under tables or chairs which he finds hilarious.
Our goal remains to build Finn up for the SDR operation and Claire continues to do home physio several hours a day and we are scheduled to return to Toronto for three more 5 week sessions with the Health in Motion clinic under the Physio Nathan’s watchful eye. Our next trip to Toronto is April 15th - Michael is taking the first 2 weeks and Claire will do the remaining 3 weeks.
On the good news side, we have grown a lot closer to our Canadian cousins who have been fantastically supportive – Aine and Steve with kids Ella and Roan who we impose upon for putting a roof over our heads but also Terry and Mark with their 2 kids Aidan and Emma and I think Finn improves as much from interacting with the kids as he does from the training sessions.
The video shows Finn thanking everyone for their very generous donations (which we are very humbled by) and also shows his fun personality which is great, if not a bit cheeky. He is particularly proud of being able to sit alone and raise his hands from the ground. I am playing psychological warfare with Finn as I ask the question – What can you do and he has to respond – “Anything”!! We have found that even doing the video is good as he is interested in seeing himself on the “Puter” and this helps with keeping his head high and back straight. You can see me briefly at the end of the video clip – I think Finn is a mini-Mick but you decide!
We are very grateful for all your help up to date and ideas for further fund raising, most of which seem to involve me doing lots of exercise but I welcome them all and will post updates on events coming up this summer.
Updated posted by Michael Dempsey 3 months ago
Hello everyone and a HUGE thank...
Hello everyone and a HUGE thank you to every single person who has got involved.
Finn and Claire are coming to the end of the latest 5 week stint in Canada with the Health in M0tion clinic and we thought we show his progress for January.
The photo shows Finn sitting independently and more importantly, weight bearing on his hands while trying not to fall over - Brilliant
The more Finn gains control over his Core/Central line the better he can control his head movements.
All the best and thanks again,
Created by Michael Dempsey on January 7, 2013
Finn Oscar (4) was born at 29.5 weeks to Claire and Michael Dempsey in 2008. We all live in Dublin, Ireland with our white Alsatian Sophie.
Due to Finn's traumatic birth he had a bleed in his brain that resulted in him being diagnosed with quadriplegic Cerebral Palsy - basically the part of the brain that controls his gross motor skills and means he cannot control his arms and legs as normal. Irish doctors classified him as having a minimal chance of improving his position so we have sought further advice abroad. To date we have been to clinics in Slovakia and we are currently in Toronto to give intense physio to Finn and after constant work at home we have seen small but significant improvements - he can now sit independently for short periods of time and is using his left hand and he loves using the iPad.
Last year Finn was lucky enough to start working at an amazing clinic in Toronto, Canada called Health in Motion where he does 2 hours each day in physio and 1.5 hours of massage and stretching. He went there 3 times last year and he is in the middle of his first trip this year. We are planning 3 more trips this year so he will be spending 20 weeks in total in Canada. We are lucky to have amazing cousins living over there whose hospitality and support have made it all the easier to be away from home for such lengths of time. The improvements he has made in the last year have been amazing, he has learnt to roll, sit by himself and is almost crawling with just a little support. We are really excited to see the results that this year will bring.
Our goal is to help Finn lead as normal a life as possible. We intend to get Finn strong enough via physio so that he can be suitable for a spinal operation to remove his high Tone (rigid arms and legs) - It's called SDR - spinal dorsal rhizotomy, performed in St Louis in the States. The spine is opened and each nerve is examined and the damaged nerves are removed. By removing the damaged spinal nerves it gives him a better chance to balance himself and he will have more control over his limbs and general movement. The operation costs 50K and is obviously serious but is it equally important to follow up with intense physio as the operation removes damaged muscles/nerves in his spine and need to be built back up again over the following months and this accounts for the remaining funds as we intend to hire an SDR experienced physio to live with us for 6 months post Op
Finn is a delightful child and brings great joy and happiness to our lives. He is developing his own personality and has the curiosity and interests of a normal 4 year old
Your donations will go directly to help Finn's physio and operation and large or small are all greatly appreciated. We welcome your comments and questions
Have Questions? Contact the organizer of this campaign now:Contact
Recent Donations (93)
12.558€ raised by 93 people in 4 months.
3 days ago
4 days ago
15 days ago
1 month ago
1 month ago
1 month ago
1 month ago
2 months ago
2 months ago
2 months ago
1-10 of 93 donationsNext