Updated posted by Michael Dempsey 27 days ago
Well I’m back and yes I’ve...
Well I’m back and yes I’ve been negligent in my updates but life is crazy and with Canada trips we are always playing catch up. I hope you are all in good health. We have reached 20% and I wanted to acknowledge this milestone with a quick update and thanks to each of you who have taken an interest in Finn’s Journey
Finn is now on his 4th and final trip to Toronto for this year. I’m just back from 2 weeks with Finn and Claire is completing the final three. He is making great progress as you can see from the clips – on my facebook page. The days are busy with 3 hours of Functional Physio and 1.5 hours massage therapy but Finn rarely complains as long as “the Wiggles” are on the iPad. We have started Finn on a walker and his progress is slow but he really is making getting stronger daily
We had a great time, father and son bonding. With both surviving being a good start combined with bribery of daily presents for “no tears” and visits to Wimpys (which we don’t tell Claire about) for Pancakes. The family did have one day together where we visited the new Toronto aquarium for a really enjoyable family day out.
I don’t want to turn this into a poor Oscars speech dominated by thank you’s but it would be remiss of me not to single out a few special people. Most recently, Stacey Daucer’s mum June hosted a highly successful Halloween fancy dress party, Jason Crumley completed a half marathon and kindly had Finn as his named sponsor. He must be a sucker for punishment as I believe he’s just signed up for a full marathon so many happy trails to him. Our Canadian cousins for putting up with us continuously in 2013 however it’s been a real pleasure rediscovering this side of the family. Oonagh Collins who walked the Camino in Spain and hosted Coffee mornings and Larry Brophy for his continued support .
Both our families who never stop helping and are greatly under-appreciated
Rathgar Tennis club
Our Neighbours in Terenure
And of course my wonderful wife – who deserves the most credit for putting up with ME
The soppy bit - They say a journey of a thousand miles begins with one step. Finn’s first steps may be a thousand miles away but we will get there, as we too, also have to believe, Finn can do Anything. Or I am just too stubborn to take “no” for an answer and will change the rules to get what I want. You decide.
Oh and in case you were wondering, both Claire & I are incredibly proud of Finn and he surprises us daily.
Updated posted by Michael Dempsey 4 months ago
Hello Everyone, It's been a while but...
It's been a while but I thought you all deserved a quick update of Finn and what he's been up to this Summer.
As usual, I like to start by thanking every individual who is supporting us, either financially or otherwise. It is tough but even knowing that others are interested in Finn's progress helps to keep us going.
Well Finn and Claire have returned to Toronto for the past 2 weeks and have 3 more to go in our 3rd session this year. Incredibly Claire is doing all 5 weeks by herself this visit and I am missing them terribly. But this does not mean I am not taking advantage of their absence and spent a wonderful weekend in Donegal last weekend with the Dempsey's under the baking sun.
I am talking to the Canadians immigrants regularly on Skype and I can see Finn growing in strength every week he spends in Toronto. This time Nathan the Physio is focusing on getting Finn to start using his hands and pushing down rather than his usual arm curl.
As a part of his weekly Irish treatment we also go Horse riding every Friday in Festina Lente in Bray. I have posted some links to video taken by my sister Gillian with Claire and Finn in front of the camera with Jacinta the Trainer. The horse riding is to help Finn understand balance with motion and also to strengthen his trunk in general.
We also hope to start Finn on a walker - a Zimmer frame for kids on this visit. Once he starts to master this we will submit more videos to the clinic in the US for the operation. They are looking for Finn to be visibly stronger before he becomes eligible for the major operation. I know he can do this and it will make an incredible difference to his quality of life.
Unfortunately, apart from his physical progress Finn seems to have inherited his Daddy's sense of humor and is already trying to make up his own jokes so this may be his biggest handicap in life. On a serious note, Finn did have a psychological test to define his eligibility for normal schooling and he passed with flying colours so this is another important milestone and hi is scheduled to start in Pius X in Sept 2014.
Thanks again for the support - and repeat after me. Finn can do ........ ANY - T-H-I-N-G
And a special thanks to my wife Claire for all her hard work
Created by Michael Dempsey on January 7, 2013
Finn Oscar (4) was born at 29.5 weeks to Claire and Michael Dempsey in 2008. We all live in Dublin, Ireland with our white Alsatian Sophie.
Due to Finn's traumatic birth he had a bleed in his brain that resulted in him being diagnosed with quadriplegic Cerebral Palsy - basically the part of the brain that controls his gross motor skills and means he cannot control his arms and legs as normal. Irish doctors classified him as having a minimal chance of improving his position so we have sought further advice abroad. To date we have been to clinics in Slovakia and we are currently in Toronto to give intense physio to Finn and after constant work at home we have seen small but significant improvements - he can now sit independently for short periods of time and is using his left hand and he loves using the iPad.
Last year Finn was lucky enough to start working at an amazing clinic in Toronto, Canada called Health in Motion where he does 2 hours each day in physio and 1.5 hours of massage and stretching. He went there 3 times last year and he is in the middle of his first trip this year. We are planning 3 more trips this year so he will be spending 20 weeks in total in Canada. We are lucky to have amazing cousins living over there whose hospitality and support have made it all the easier to be away from home for such lengths of time. The improvements he has made in the last year have been amazing, he has learnt to roll, sit by himself and is almost crawling with just a little support. We are really excited to see the results that this year will bring.
Our goal is to help Finn lead as normal a life as possible. We intend to get Finn strong enough via physio so that he can be suitable for a spinal operation to remove his high Tone (rigid arms and legs) - It's called SDR - spinal dorsal rhizotomy, performed in St Louis in the States. The spine is opened and each nerve is examined and the damaged nerves are removed. By removing the damaged spinal nerves it gives him a better chance to balance himself and he will have more control over his limbs and general movement. The operation costs 50K and is obviously serious but is it equally important to follow up with intense physio as the operation removes damaged muscles/nerves in his spine and need to be built back up again over the following months and this accounts for the remaining funds as we intend to hire an SDR experienced physio to live with us for 6 months post Op
Finn is a delightful child and brings great joy and happiness to our lives. He is developing his own personality and has the curiosity and interests of a normal 4 year old
Your donations will go directly to help Finn's physio and operation and large or small are all greatly appreciated. We welcome your comments and questions
Have Questions? Contact the organizer of this campaign now:Contact
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