Today is the first Cage has spent more that 15 minutes in his chair and was for over four hours! With no complaints too!
We just had a couple of awesome donations to go towards the ramp that total $875! Thank you everybody for making this happen for us and Cage. With all of the bad luck and constant set backs in life it just takes a few people to make a difference in others lives. I just hope and pray that I can someday return this favor and pay it forward. Thanks again!
Tonya Alt and Lynn Foust have been raising money to build a proper wooden ramp for Cage leading into the house. Please help us out as I have pledged what money is left from our fundraising efforts into helping build the ramp. Thanks again to those that have already donated. You are all the best!
Cage just sat in his chair with his brace on for fifteen minutes. Tha is really good progress. Now we just got to get him eating full meals and make a poop he will be completely on target.
Cage is now out of surgery and into PICU. When he woke up his first word was MOM. He is doing well but is heavily medicated. I really hope he heals quickly as he does not take pain well. If you would like to visit please send me an email and I will get you the details. If you cant make it no problem. Please take a minute to complete a free e-card at the Nationwide Childrens Hospital Website. The last time we were here he loved getting those. Thanks everybody for everything.
Getting ready to head to Children's Hospital. Long road ahead.
A special shout out to the teachers of the Galion intermediate school who collected money for a gas to help us this week during Cages surgery. Love you guys and thank you so much!
Well we are Nationwide for Cages final visit before surgery next week. The poor guy is getting poked and prodded for the majority of the day so he isn't happy. Looks like a trip to Toys R Us on the way home will be in order. Cross your fingers, meditate on helping and pray to whatever creator you believe in to help.
Diana has told me that everyone with the exception of the new donors should have received their gifts from Cage by now. Please let us know if you have not received anything. Thanks again for your help.
Cage has a surgery date to add growth rods to his spine and to reduce the effects of his scoliosis. He will be in the hospital April 9th for 5 days. It is a very scary time for us but we are confident in his doctor and his abilities so here hoping. Please keep Cage in your thoughts and prayers, meditations or whatever you do as the little guy will need it.
Just a quick update...we received the portable ramps for the van and I will get a photo up when the weather breaks of Cage using them. Unfortunately I ordered the larger ones so they dont fit in the back of the van. LOL. Also, Cage has finished the artwork and cards for the donors so expect those in the mail sometime soon. Thanks again everyone for your help and please pass the links along as we still need equipment and ramps for the house.
We have raised enough money to purchase portable extendable ramps for the van so we have them on order. Thanks everyone for their help and I will post pics of the ramps as soon as they arrive.
Merry Christmas everyone and a special thanks to all those that have contributed making it possible to get the things that helps Cages quality of life.
The little guy got the heart wrenching news yesterday that he will have to have grow rods implanted in the spring. It broke my heart to watch him cry as soon as he heard this.
Cage heads to Children's tomorrow to see how bad the curve in his spine is now. Hopefully it has not increased since his last visit. If it has then he may have to have surgery. Please keep him in your thoughts and lets hope for the best. Oh and watch out for those Mayans!
Thanks for the help guys we have now been pushed over the $600 mark...lets keep it going!
Well looks as though we have stalled in donations for several days now. Thanks again for all those that have helped. If no further donations come in will use what we have to build a new ramp for the house. Thanks again everyone!
We we have had 288 visits total to our page. Keep sharing the link everyone and thanks again for your help.
I want to thank everyone again for their donations and for helping by forwarding this message on to their friends. We are now almost to 3% of our goal with your help.
Almost 2.5% of our goal, thank you everybody!
In seeing how many responses we are getting to help our gofundme site I have added a little explanation about Cages condition so that those that do not know him will understand the disorder that he has. Not only are we thankful for those that have donated to us but we also want to remind everyone that there are millions of kids out there that suffer from SMA. Please consider making a donation to the MDA (mad.org) and help fight for a cure.
Over 1% of our goal down! Please forward this on.
For those that may not have seen this posting yesterday we are asking for help in obtaining a wheelchair van for Cage, however, if that goal is not met we will be using the funds to purchase, repair, or replace equipment that he needs that insurance refuses to pay for. Thank you for your help.
One of our ultimate goals was to get a Wheelchair accessible van for our son Cage. With having a big family like ours it is next to impossible for all of us to go anywhere together with Cages power chair. This why we need your help. By donating you will be helping Cage in being able to take his power chair wherever we go and giving him the freedom to roam. If we do not reach our goal we will use the funds to purchase wheel chair accessible items that we still need like: Ramps for the van and house, additional medical equipment that insurance refuses to pay for and pay off medical equipment/bills that we still owe on.
For those that do not know Cage
he is an awesome little guy that has a form of Muscular Dystrophy know as
Spinal Muscular Atrophy. Spinal muscular atrophy
(SMA) is an incurable autosomal recessive disease caused by a genetic defect in the SMN1 gene which codes SMN, a protein necessary
for survival of motor neurons, and resulting in death of neuronal cells in the anterior horn of spinal cord and subsequent system-wide muscle wasting (atrophy).
Spinal muscular atrophy manifests in various degrees of severity, which
all have in common general muscle wasting, and mobility impairment. Other body
systems may be affected as well, particularly in early-onset forms. SMA is the
most common genetic cause of infant death.