Please Help Me Heal Jazir's Brain Injury

 
Raised: $3,800.00
Goal: $10,000.00
 
 
 

Created by

Lara Marjerrison

2105 Friends

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NOTE: The PayPal account associated with this page is in my mother (Jazir's Nanny), Margaret Barton's name. My name is Lara Marjerrison. I live in Toronto, Ontario, CANADA. I am the mother of a darling seven year old boy, named Jazir, w... more

 
 
 
 
 
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Updated posted by Lara Marjerrison 4 months ago

Good morning to our generous donors.. Reflecting back on 2013, I'm astounded by all that has transpired for us and reading through your list of names below, I'm once again blown away by your love and generosity. As long as I'm alive, I will never forget how you pulled together and helped us get through the toughest time of our lives. Today.. I'm in need of your postal mailing address (snail mail). Many of you donated anonymously and some of you are friends of friends, whom I have yet to meet. That means that I cannot reach out to you by any other means than this. Please email your postal address to me directly at jazir.patel@gmail.com With much love and gratitude.. L&J. xoxo.

 
 
 

Updated posted by Lara Marjerrison 14 months ago

UPDATE: Good Saturday afternoon all. Thought I'd post a bit of an update with respect to Jazir's progress. A few weekends ago we were in very dire straights. Jazir had lost almost ALL of his language, he asked the same couple of questions hundreds of times per day, had to have his clothes changed multiple times per day because they were saturated from him obsessively chewing upon them and he was beginning to lose vital functions as well. His prognosis was heading in the direction of the worst possible outcome; if we didn't turn it around, he could die as his brain function continued to deteriorate and more vital function was lost. As you can imagine, we were beside ourselves with grief.

I am very happy to report that this past Thursday's EEG showed that much of the near-constant seizure activity in his brain has subsided as a result of the change in medication and we are getting much closer to seeing a clear EEG. Evidence of this is showing up in him as his language and comprehension return. He is speaking in full sentences again, able to carry on conversations and recalling events both recent and past. He is putting information back into context, requesting libraries of music and stories that he once loved and his delightful personality is returning. He even looks like himself again!

Our next EEG will be an overnight audio/video EEG at Sick Kids and we hope by then to see a clear image and normal brain activity. Now that we have a baseline again from which to begin, we will implement the program that I was taught in Philly. We will need to re-teach his brain how to see, sort, organize, recognize and recall the details of his environment and the people in it. We will re-teach him his alphabet, numbers, colours, shapes, etc., as we would an infant starting from scratch. Given his innate intelligence, I suspect there will be aspects of this learning process that will frustrate him, but I believe with diligence we will be able to achieve results that allow him to function at his age level and possibly beyond.

I look forward to posting more and better news as we continue down this path toward total healing.

Thank you for your continued love and support.
L&J

 
 
 

Updated posted by Lara Marjerrison 14 months ago

Yay.. some positive news to share! After just a few days on his new medication, Jazir's cognition seems to be returning. He is not back to his whole self yet and I expect that will still take quite some time.. months or even years. However, from mid-last week up to and including yesterday, we experienced the absolute worst few days of his life. I'll spare you the details; suffice it to say, it was heartbreaking and terrifying. We now seem to be moving in a positive direction again and all of us are breathing a little easier today. I hope (and fully intend!) to continue to post more good news in the days, weeks and months ahead as we progress. :)

 
 
 
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Created by Lara Marjerrison on November 7, 2012

NOTE: The PayPal account associated with this page is in my mother (Jazir's Nanny), Margaret Barton's name. 


My name is Lara Marjerrison. I live in Toronto, Ontario, CANADA. I am the mother of a darling seven year old boy, named Jazir, who suffered a TMI (traumatic brain injury) at age 2.5 years. Initially he presented with Epilepsy only, which we have treated and successfully controlled. Recently, however, his revised and more accurate diagnosis of CVI (Cortical Visual Impairment) and Visual Agnosia has continued to mystify his Neurologist in that it continues to worsen and debilitate him further. 


My son has regressed to the point that he is now legally blind. His eyes are completely healthy and functional but his brain does not process or recognize what he is looking at. He has lost all ability to see faces, including mine and his dads and relies wholly on the sound of our voices to identify us. He can no longer identify every day objects, has lost his ability to differentiate colours and now struggles to dress himself because he cannot recognize different articles of clothing nor determine what their function is. He is disoriented and gets lost or confused even at the simplest task, such as getting himself from his bedroom to his bathroom. He cannot be out in the world without holding the hand of an adult, it's not safe for him. He doesn't recognize where curbs become roads, where edges drop off. We must be on alert for his safety at all times. He is now beginning to struggle to eat properly. His condition is deteriorating rapidly and he is losing more and more of his independence. Every day offers a new challenge as we strive to adapt. He presents much like a little boy trapped inside an Alzheimer's riddled mind. He becomes more reclusive, frustrated and anxious as time passes. 

His MRI is normal. He is intelligent, compassionate, loving, affectionate and musically talented. He lights up a room when he enters and everyone that meets him remarks, "There is something about that boy.. " Watching pieces of him slip away is torturous. His doctor believes that, based upon his normal MRI and other demonstrated abilities, we can HEAL this injury. We just need the right people and procedures to help. 

There is an Institute in the US that can do just that. It's called the Institutes for Achievement in Human Potential. I need to attend their programs to learn how to heal his injury, detox him from his meds and get him thriving again.. to return him to himself and to us. Two years ago I had to give up my job in order to give Jazir the proper care and attention he needs and that his condition demands. We survive on next-to-no income and live very frugally. 

I need your help. I require travel, tuition and living expenses for the programs that I must attend at www.iahp.org to help my son. This is a critical next step in his healing process and the time to act is now. The program begins December 3rd, 2012. Please help me to get there.

I remain most humbly grateful for your compassion and consideration. 

In health,
L. Marjerrison

 
 
 
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Recent Donations (67)

$3,800 raised by 67 people in 17 months.

$50.00

Little Organic

14 months ago

 
 

$50.00

Anonymous

14 months ago

 

$50.00

Blair Packham

15 months ago

 
 

$50.00

Paul Marek

15 months ago

 
 

With much love and optimism.

 

$200.00

Jimmy Smith

15 months ago

 
 

$100.00

Anonymous

16 months ago

 

$100.00

Karrie Gregson

16 months ago

 
 

May the Universe shine huge blessings on you and Jazir

 

$100.00

Samantha Mussells

16 months ago

 
 

with much love to you and Jazir

 

$100.00

Jodi Bodkin

16 months ago

 
 

Lara...I am so blessed with my boys good health and to read Jazir's challenges breaks my heart...I pray and hope he can be healed to experience and see the world again..xo

 

$50.00

Anonymous

16 months ago

 

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