Julian's bucket list!

 
Raised: $2,560.00
Goal: $10,000.00
 
 
 

Created by

Sarah Patient Hoefer

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Help us fulfil little Julian's last request!! We should'nt have to come up with a bucket list at just 7 years old!  Keep those donations coming and keep little Julian smiling! more

 
 
 
 
 
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Updated posted by Sarah Patient Hoefer 18 months ago

Julian with his company for the day. The Anaconda's. There is something I love about this picture!!!! Photo by Tommy Gilligan. — at United States Military Academy at West Point.

 

 
 

Updated posted by Sarah Patient Hoefer 18 months ago

It's been awhile since I have posted an update and I am so sorry, hopefully you have all been following along on Julian's Joust Facebook page. Julian has been a busy boy with treatment and fulfilling his bucket list thanks to all your help.. We are still trying to get Julian to FL to cross some things off his list there so I am asking you all to please keep sharing his story and re posting to your page, lets keep his story moving!! Julian deserves this, he is such a little fighter and inspiration to us all!! God Bless all of you!!

 
 
 

Updated posted by Sarah Patient Hoefer 19 months ago

From Julian's dad

People often ask me on how one can function with all that has gone on…it is simple…you just do. Joshua 1:9b states-”Be strong and courageous. Do not be terrified; do not be discouraged, for the Lord your God will be with you wherever you go”. I wear this on a medal-a shield of faith around my neck, when I have times of doubt and discouragement I read those words and quickly snap out of my mood. As a father my life stopped the day my child was born, I begun to live for them. That is how I live, work, and play. Yes, I live my life and make decisions in a way that will be positive for them. When I worked I valued my job because it fed, gave medical coverage, and provided me a means to give shelter to my children. I won’t comment on that any further because I am restricted right now on what I can and cannot say, because my former employer chose to revoke my employment because of Julian’s illness…so that is all I will say on this subject. I play just like one, if I see that one is ostracized, I’ll get down and play with them-my child, a relative’s child, or a friend’s child. A kid’s life should be a happy one, even if I don’t get along with the mom, dad, or both doesn’t mean I take it out on the child. Notice I said dislike, because I can’t say I’ve ever hated a person- I hate people’s actions, motives, words…but I don’t hate people. I do hate their actions, but as being a human and I make mistakes, I understand it is not my position to judge others. There is good in all of us. I have made my share of mistakes…those I wish I could take back, even those I am ashamed of I made…but I am human and I learned from each of them. LOL there are plenty I make them daily :0)
I want to be crystal clear on some things...some people think because I believe in God makes me weak or uneducated…believe it doesn’t. Nor does it make me NOT respond to people if I see them treat others wrong. I truly believe in my heart God wants us to treat others the way we would treat each other and to love one another. That being said I also don’t think God wants us to turn our back or ignore when someone hurts, attacks, or takes advantage of another. If I think your wrong, I’ll let you know…but notice I say If I think you’re wrong, because there is always another side to an issue…I may feel I’m right but from another’s point of view I am wrong. Having an education does not make me or anyone else smarter…just more knowledgeable in a certain field…it is just a few pieces of paper I have and a few initials I can place behind my name…not important in the scheme of things to me. I learned more from people than I ever have in a classroom or a book. One of them being my Grandfather who had a third grade education, but he was one of the smartest people I’ve ever come across. Another “uneducated” person I’ve learned so much from hasn’t had that much schooling either-it is Julian.
During this journey I have met so many people I’d never had if it was not for Julian’s illness. I could write a book about the people…from those that battled and lost the fight, those currently battling, and those we have just crossed paths with. I started to type the names, but to be honest; there would be hundreds I’d need to note. Just know that I always think of you even if I may not acknowledge it to you or in your presence. There was a recent conversation I had with someone at Norfolk I feel I need to share; I won’t identify them because we had a private conversation that remained between the two of us. I can share with you some of it without revealing too much to identify them (as I hadn’t asked their permission to share)…We were talking…I thanked them for all they had done for my son and for helping fulfill some of his wishes and dreams. They responded by thanking me…I thought for what and even asked them. I was told that Julian had an influence on them. The conversation continued for a while and got me thinking…thinking about the various talks with this person, people at the hospitals, the strangers I met…God does have a purpose for Julian’s suffering…it is to teach us and bring us back to God.
If you know me I am not a preacher, I’m just a normal guy that will talk to you about any subject and I won’t hold back on a thing. When I was a child I LOVED God and did everything for him. I went to church, went to Sunday school…even went to religious education during the summer on a neighbor front porch as a child because I loved God that much. BUT as my life continued I changed…my brother had a severe brain injury, my parents who were married more than 25 years split, I saw the horrors of life, and I became educated by a different doctrine. I started to see the world not through the eyes of a child who loved and listened to their parents and God…but become someone who thought they knew better because of what he had learned and seen. It took a seven year old to “wake me up”.
Some people think that my faith has changed or that I have given up on a miracle? The answer to both is no. If I could I’d beg everyone to pray for Julian and all those suffering, I would. I still believe in God and pray for a miracle. I just HOPE that is what God has planned…God knows all and I fully trust in that. I may pray and ask for a miracle, but it might not be something God will grant me. Not because he can’t but maybe because he has something else planned. That is the reason for Julian’s Bucket List…LOL trust me list is much bigger than what was shown online, he is seven and has many wishes and dreams…some of them are impossible, some impractical, some unattainable…that is why Mom and I narrowed them down. I still have faith that Julian will be here for a long time, if anything the Bucket List will enrich his life…but at the same time, if God has a different plan I want him not to live out his dreams or wishes…so again it is only God that knows what lies ahead on our untraveled path.

 
 
 
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Created by Sarah Patient Hoefer on August 15, 2012

Help us fulfil little Julian's last request!! We should'nt have to come up with a bucket list at just 7 years old!  Keep those donations coming and keep little Julian smiling!
 
 
 
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So happy for you Julian that you are getting to fulfill your dreams. I am seeing Train on Friday. Their music is very good and they seem t be a great bunch of people and talented. have a great week.

posted by Mike Sheats 20 months ago

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Recent Donations (64)

$2,560 raised by 64 people in 20 months.

$50.00

Anonymous

19 months ago

 

$50.00

Anonymous

19 months ago

 

$40.00

Anonymous

19 months ago

 

$50.00

Anonymous

19 months ago

 

$10.00

Christa Manzi Donofrio

19 months ago

 
 

<3 Praying for you! XOXO

 

$20.00

Anonymous

19 months ago

 

$20.00

Anonymous

19 months ago

 
 

Sending you White Light!janer

 

$20.00

Roth Herrlinger

19 months ago

 
 

$80.00

xwvp13

19 months ago

 
 

Such a beautiful smile!

 

$10.00

Josephine Sabea

20 months ago

 
 

1-10 of 64 donations

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